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Marcel Jinoch

@marceljinoch

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Professional bartender in NYC. @lepavillonnyc
Cocktails and food enthusiasts. Loving father and husband.

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AUTISTIC POST

Takhle jí Eriček. 😂 Jeden hlt. A je pryč.

Chytit. Posadit. Další hlt. A pryč. Běhat, skákat, houpat se. s plnou pusou.

A znovu.

Eric prostě u jídla nevydrží sedět. Ne že by nechtěl jíst. Jen prostě potřebuje být pořád v pohybu. Už jsme si zvykli na to, že nám lidi říkají, že by neměl běhat nebo skákat, když jí. Hmmmmmm… nad tím jsme se fakt nikdy nezamysleli. 😂

Pro mě je na tom největší paradox, že jsem pracoval v nejlepších restauracích v New Yorku a Eric tam byl s námi. Když mu byl jeden rok, neměl problém jíst cokoliv, včetně pečených ústřic s kaviárem. Lidi kolem nas asi dodnes nechapou, jak je možný je jednoroční dítě se uplně v klidu krmí takovýma věcma. :-)

Dodnes věřím, že je nejmladší člověk na světě, který měl tasting menu od Daniela Bouluda. 😂

Každopádně o pár let dál jsme tady a nemůžeme jít s Ericem do úplně obyčejné hospody, protože víme, co mu restaurační prostředí způsobí.

Eric přitom jídlo miluje. Jen odmítá určité konzistence. Třeba bramborovou kaši úplně nesnáší.

Ale miluje téměř cokoliv, co se dá dát na kousek chleba. Ať už jsou to ráno vajíčka nebo odpoledne pomazánka. Zkrátka chleba je přítel vždycky.

Nepřítel je rýže. Takže sorry, moji přátelé z Asie. 😂

Je to strašně široké téma. A asi ne nejen u autistických dětí.

Jak to máte s jídlem vy? by @marceljinoch

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23 days ago

Tohle video je pět měsíců staré. Je natočené ve 23:30 večer. Náš autistický Eriček ukazuje, jak většinou vypadá večer u nás doma, když maminka a jeho 2 mladší sourozenci spí.

Eric normálně usíná někdy mezi 11. a 12. hodinou. Občas má tolik energie, že je skoro neuvěřitelné, že je vůbec noc. Běhá, směje se, skáče, dělá stojky na hlavě a prostě jede svoje. 😂

Teď jsme začali novou školku. Budíček máme v 6:30–6:45, abychom stihli připravit Erica i jeho mladšího bráchu a do 8:30 je oba dostat do školky.
Takže bych čekal, že po pár dnech vstávání takhle brzy Eric večer padne.
Zatím úplně ne. 😂

Ale něco mnohem důležitějšího už víme.
Eric novou školku miluje. A miluje i nové paní učitelky.
Po pouhých třech dnech vidíme, že se tam cítí dobře, a to pro nás znamená strašně moc.
Jeho noční energie tam pořád je, ale zdá se, že se pomalu zlepšuje. Takže možná časem začne chodit spát dřív.
A nebo taky ne.

Možná si prostě budeme muset zvyknout, že Eric žije v jiném časovém pásmu. 😂
Ale když se tak moc těší do školky a ráno tam jde s radostí, těch pár hodin spánkového deficitu nám za to stojí...

A teď mě zajímá jedna věc:
Jak dlouho vydrží vzhůru vaše děti? A máme doma jediného malého člověka, který si myslí, že 23:30 je ideální čas na stojky? :-D Je mi jasný, že nás je takových spoustu... by @marceljinoch

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a month ago

Bohužel občas musíme svoje dítě donutit udělat něco, co absolutně nechce. I když všichni kolem vás mají pocit, že jste krutí.

Eric miluje plavání, skákání do vody, lodě… „miluje“ ani zdaleka nevystihuje, co pro něj voda a plavání znamená. Bazén je asi to, co má na světě nejradši.

Normálně chodíme plavat pětkrát týdně. Minulý týden jsme byli jen jednou, protože v úterý nám oznámili, že celý zbytek týdne nepoteče teplá voda.

Říkal jsem si, že se nic hrozného neděje. Eric se už koupal v jezeře a voda taky nebyla zrovna teplá. Zároveň ho ale znám. Vím, že někdy po dvaceti minutách třeba v Podolí ve studené vodě začne být hodně nevrlý, vychladne a chce teplou vodu. A když není, tak spustí záchvat. A to se stalo.

Vydržel asi třicet minut. Pak chtěl pryč a spustil to a museli jsme jít.

Když jsme tedy o pár dní později jeli do bazénu znovu, věděl jsem, že voda už bude teplá a vše by mělo být v pořádku.

Místo toho Eric v autě spustil hysterický záchvat. (na videu). Jak kdyby si myslel, že jede na popravu. A pokračovalo to i v bazénu.

Křičel asi třicet minut. Všichni na nás koukali.

Cítil jsem se jako Herodes, který týrá vlastního syna.
Jenže já jsem věděl, co ti lidé kolem nás nevěděli.

Eric tohle místo miluje.
A nemohl jsem dovolit, aby jedna špatná zkušenost se studenou vodou způsobila, že se začne bát něčeho, co mu přináší tolik radosti. I tak jsme radeji odešli, abych ho dostal i sebe do komfortu.

Druhý den jsme šli znovu. Křik pokračoval. Ale byl tišší.
Po patnácti minutách přestal.

Dalších dvacet minut byl Eric neutrální.
Tak jsem s ním a jeho bráchou vlezl do velkého pětadvacetimetrového bazénu.

Donutil jsem je zaplavat dvě délky. A pak další dvě.
Potřeboval jsem ho pořádně rozehřát.
A pak… přišel první úsměv.
Konečně.

Ani nedokážu popsat, jak se mi v tu chvíli ulevilo.
Jako kdyby se někdo znovu rozsvítil.

najednou se všechno začalo vracet do starých dobrých kolejí.

Dnes, když jsme jeli znovu plavat, už nepřišel histerický pláč. Přišel hlasitý smích.
Ten druh smíchu, který znamená:

JDEME PLAVAT!

Problém byl pryč. Eric miluje plavání. Miluje bazén.

Ale někdy musí překonat překážky, o kterých my, obyčejní smrtelníci bez autismu, nemáme ani tušení. by @marceljinoch

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2 months ago

The most precious moment of our summer had nothing to do with the place, the weather, or the vacation.

It happened at an ordinary snack bar on Lake Garda.

After a year, we finally sat down at a table together as a family again.

For most people, completely ordinary.
For us, it was a little celebration.

Eric is nonverbal and practically cannot sit still during a meal. He runs around, does handstands, everything catches his attention, and food is often more of an afterthought — sometimes even an obstacle — than a reason to stay in one place.

So, restaurants? For a long time, simply not possible.

But on Lake Garda, we found a little snack bar on a pier. Eric loves water, and the pier was basically a small playground for him, so we decided to give it a try.

Eric picked a €3 bag of candy.
He ate some of it at first.

Then he discovered that there was a much better way to enjoy it.

Take a piece of candy out of the bag, throw the candy over the railing onto the concrete, pick it up, and throw it into the lake.

Then run back for another one.
One bag lasted about five minutes.

So we bought another. And another.

Meanwhile, we had a beer and a spritz.

And then something unbelievable happened.

Eric was entertained.

two-year-old Alan was asleep.
And our two-month-old Elly-Jana was asleep too.

That had never happened before.

So suddenly, all of us were there.

And nobody needed anything.

Nobody was crying.

Nobody needed us.

We just sat there.

At a table.

By Lake Garda.

And for a few minutes, we were simply two parents on vacation having a beer and a spritz.

The bill was about €50.

Two drinks and a pile of €3 bags of candy that ended up in the lake.

Economically speaking, completely ridiculous.

But we weren't spending those €50 on candy and drinks.

We were buying ourselves a few minutes of freedom.
And that's why that ordinary little snack bar may have been the most precious place we sat this summer.

Because eventually you realize that some things other people take for granted can become a luxury in your life.

This time, our luxury was a table, a beer, a spritz, and a few quiet minutes.

And those €50?

To me, one of the best bills we by @marceljinoch

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2 months ago

There she is. Our beautiful daughter Ellyjana was born today at 3:30pm. @heather_jinoch was super brave as always. Love you so much my ladies ❤️ by @marceljinoch

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6 months ago

🍋 Likér z citrusových slupek, který chutná stejně dobře, jako zní jeho příběh.

V kuchyni Mlýnce a @vzatisi_restaurant dáváme druhý život tomu, co by jinak skončilo v koši. Vznikl tak citrusový likér, který je výsledkem poctivé práce, důrazu na udržitelnost a lásky k řemeslu.

Nejen udržitelně, ale s respektem, chutí a přesností.

🍸Mrkněte, jak celý proces probíhal. Celý článek naleznete pod odkazem na našem profilu.
#mlynecrestaurant #mlynecmusthave

#restauracepraha #zatisigroup taken in Restaurace Mlýnec by @marceljinoch

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a year ago

40!!!🍾
Entering the 2nd half of my life with my boys and wife @heather_jinoch on lake Como.
What a fantastic day! Love you guys!
The show goes on ❤️🥂 taken in Lake Como, Italy by @marceljinoch

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a year ago

I grew up watching Jágr. He was always my idol. I remember him winning his first Stanley cup 34 years ago. Then he became the best hockey player in the world and won the Art Ross trophy 5 times. He won the Olympic gold in Nagano which forever will be the biggest achievement in history of hockey and world cup golds for the Czech republic. Meanwhile I finished elementary school then high school then I got a job and he was still killing it as a NY Ranger. Then I got a degree in marketing. Also got married and divorced with the wrong girl. Then I moved to NYC and made a career in the hospitality industry. Married the right girl. Made two beautiful boys and moved back to Prague. Now I took these two boys to watch this SUPER HERO named JAROMIR JAGR play another hockey game. @jj68jaromirjagr I am extremely grateful for having you in my life and now in my two boys'lives. You are an absolute legend and we will be forever grateful for your talent, dedication, and hockey love. taken in O2 Arena Praha by @marceljinoch

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2 years ago

Eric's autism could have many faces. Sometimes it's fun. For example today when we had lunch. The table next to us was dealing with their kids and didn't know if they should order pasta with tomato sauce or a schnitzel. "Hopefully they'll eat some of that" their dad said....
Meanwhile Eric was absolutely destroying lobster ravioli and foie gras 😂👌🙌 taken in Atelier Red & Wine by @marceljinoch

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2 years ago

🥂 @zatisicatering letos mixuje nejen skvělé drinky, ale i soutěž pro vás! Náš brusinkový spritz od @marceljinoch je hitem letošních Vánoc – a teď ho můžete ochutnat i vy!

🤔 Jak na to?
1️⃣ Sledujte náš profil
2️⃣ Napište nám do komentáře, jaký drink máte nejraději, a my vás zařadíme do hry o 3 lahve brusinkového sirupu a prosecca. Ať si můžete namíchat vlastní vánoční pohodu doma!

⏰ Výherce vyhlásíme v pátek 13. 12. – den, kdy budou mít tři z vás opravdu šťastnou třináctku!

🎄 Hodně štěstí, těšíme se na vaše komentáře!

P.S. Recept na drink najdete na blogu Špetka chuti: www.spetkachuti.cz

*Tato soutěž není žádným způsobem spojována, podoporována či sponzorována společností Meta by @marceljinoch

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2 years ago

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2 years ago

Eric. My beloved son and my angel. He is a special boy. He has autism. His brain closes the door to the real world right in front of his face. That's why he's not able to interact with others like other people do.
He's going through a long every day therapy with us parents @heather_jinoch
He's the most unique and perfect person I've ever met in my life.
His emotions are through the roof. His reactions to certain things could be strange and wild for "normal" people. But sometimes it's just an explosion of happiness. Like today on this boat. by @marceljinoch

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2 years ago