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mcgregor52

@mcgregor52

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683

following

Full time Dad of 3 girls
3.5yrs sober
Fundraising 4 Sara’s health

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Sharing simple facts for those new and old to this space!

Brutal truths but true..

To think we began buying property so young, to have 'financial security' when we had kids, just to go on in nothing but pure survival with relentless health battles that our country wont fund, treat, no medications are on the PBS, and most treatments and programs that work are on the other side of the world.. all out of pocket too

And what sucks is you can heal.. its just costs a relentless amount of money!!!

We are just going to keep sharing our truth..

We have lived and survived off everything we ever worked for.. and now what?!?!?

A wife who cant care for her kids year after year, a husband who cant work or provide an income as a full time carer, medications we cant access without funds, drs and treatments now out of reach

We have circled around VAD (voluntary assisted dying) several times.. and here we are still fighting for treatments and a quality of life

The harder it gets the louder we will be.. we have nothing left to loose....

#lymedisease #lymeandcoinfections #autoimmuneencephalitis #panspandas #help by @mcgregor52

25

9

a month ago

We can’t do this alone…

Needed to call these guys yesterday as Sara had nothing left
Her legs wouldn’t carry her & even holding her head up was too much.
She felt like purging & her heart was all over the place, cold sweats, hot sweats.

We walked 1km to bateau bay square cos it was overcast & cool but she tanked.
Always wishing she had the ability to live life like the rest of us she strives for the outside world.

I couldn’t even get her to the toilet at the shops as we waited so long for a taxi, luckily her mum was driving the area when I called her & we got a lift home.

In this season she is struggling more than ever.
Each week, each day seems to be worse than the last.

It’s been a massive week & I’m personally feeling overwhelmed, exhausted and there is a feeling of despair.
We had to keep tahlia home this week for extra support and safety, the young two have both had conjunctivitis with days off.

She pleads for more support but if I take on anymore I won’t be able to give much at all.

Why can’t we get help from the system is beyond me.
We are in survival & are fending for ourselves in what feels like the edge or a whirlpool.

We had lots of possessions & things, house rich but money poor in the past but we have sold them all. Things have changed. 2 business down to one then none.
Our House, tools, businesses, investments are gone. Keeping only the basics

We raised 10k over the last fortnight and it’s paid for medical supplies, food & rent.
It’s gone.

I thanks everyone who donated money, food or anyone who shared my post & the gofundme.

Please can I ask anyone who reads this to share it again, post it to your stories for 24hrs, tag someone who needs to see it or someone that can help. Help create awareness for me so I can keep supporting Sara & the family.

I cannot do this alone.

The ambo’s where absolutely amazing and a massive shout out to bateau bay crew Jay & Harri #nswambulance

#sara #help #mcgregor #gofundme by @mcgregor52

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40

a month ago

So I seen a picture of my wife yesterday & it was the front page of a ‘gofundme’

My lips shook, my eyes welled up & I said inside… “your fucking kidding me!”

Its not like I Havnt had many of these moments already but this one felt surreal..

“how did we get here”

“What’s going on”

“When will things shift”

You see a lot of fund raisers, gofundme’s & you don’t expect to see your wife..

Watching your love, your best mate, the mother of your children deteriorate in health, every week it gets worse & it’s horrible.

We should be doing life with Sara
Sara should be doing life with her kids
Sara isn’t living her life at all.

It’s heart breaking having little Sahri call for her mum cos she wants that connection from her that she only gets bits and pieces of.
I can’t imaging what that must feel like for Sara.
The big girls need their mum more than ever in the age they’re at too

Spending most of her days in bed after only making Brekky or pushing to make school foods, even admin, a few emails or calls (doctor calls or ordering medical supplies) knocks her down.
A visitor
The sun
I trip to the shops
They all lay her down for days with ‘brain on fire’ symptoms
Winter used to be a time she could venture outside but now it’s all too much on her system to manage.

She still try’s to live life but will suffer for days after any additional effort.
These pockets of the real Sara are becoming less & less.
We only get the Sara that needs bed
Can’t answer us
needs no noise
needs to take her meds
needs to wear the ice helmet.

Some people will never understand what she goes through, not even I.

Last year we spoke about medically assisted euthanasia.

Again inside my mind I’m screaming,

“What is happening!”

“What’s going on!”

The kids
My mate
How would I
How could she

She must be in so much pain & discomfort 😢

Meanwhile she helps & supports struggling kids & families who also suffer without help or assistance.
Builds communities of families & constantly helps them connect with the right help.

Whoever knows Sara knows she will help you out, support you, connect you, be there for you if she can by @mcgregor52

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19

2 months ago

Any hip drop has the risk of injury.

Any tackle in the game has the potential to cause injury.

Most tackles have intent to hurt the other player - it’s what you do.
Your trying to smash them, hurt them & scare them with hard hits

What’s the difference between Radlys hip drop and Crosslands 🤷‍♂️

Only the injury is different.

The players are not trying to hip drop and injure the other players.

Sending them off based on the injury and not the actual action is ridiculous.

Cleary is the protected by @mcgregor52

3

3

2 days ago

I don’t know how I have ended up here holding it down for 4 woman but geez I’m happy that most of the time I can do it.

6 hrs going from one to the next.

I’m more deaf than yesterday with Shari’s screams while I showers her in hopes of regulation… but it worked.

2nd last day of term had the others in breakdown mode… teenage girls just do it different. 🫠

Sara slips in and out of her treatments and planning a trip away for Auntie Gwennies funeral ❤️

Which means I’m driving this ship.
There’s a few holes in the sail and she takes on water most of the time but we are still floating ⛵️

As I type a zombie child walks out ‘I can’t sleep’
Cos she was on the iPad past her time as I was putting sahri to sleep… 🫣

I never had this capacity.

I checked out way before I got home from work.

1287 days sober could also be helping this man

Making an effort to be the man I need to be for my girls is another factor ✊

Another day that seems bigger than the last.

Wondering how we will get through it all…

My tired is tired from being tired…

I love em all

Begin again tomorrow. 😬

#girldad #sober #howdidigethere #dadlife #teenager

📷 credit - @sulfa
Event - @danceforsara by @mcgregor52

15

1

5 days ago

I had a days work last Thursday and everything was pressing down on me.
Finances
Kids
Sleep
Health

The effort and planning to even get to work is crazy.
Making sure I don’t leave it all on Sara.

To think I use to just walk out the door at 615 with a coffee and happy days.

I get up earlier and get lunches made for the kids.
brekky for them all, Sahris childcare bag is packed and she’s ready to leave without any effort.
Feed myself and pack lunch.
Any washing is hung and dishwasher packed already at 715
Then it’s a 1hr 15 trip to work

It can be a quiet trip but in the morning traffic is switch on mode. Especially with no car insurance 🤷‍♂️

Doesn’t matter if you been awake since 330am with a 3yr old touching, kicking and moaning it’s just get on with it.

I needed a place to breathe…

I knew a park was nearby the job so I pulled up.

Perfect 👌 I thought. Have a look at these big guys 🌳

I sat on the base, closed my eyes, hands on the roots and I allowed myself to float above the tree canopy in the Amazon listening to the birds….
A tear runs down my face with the joy of having a 5minute sound bath and being picked up and taken away by nature.
Permission to be nowhere and do nothing just for this moment. 🥲😌

On the 2nd time you press play,
Close your eyes
And pretend you are somewhere else.

#fig #nature #soundbath #newcastle by @mcgregor52

2

0

7 days ago

There is no time to sit and squander.

Big breath

Brush yourself

Learn from the past

Begin again

That is the practice

You’ll get it right

If you don’t

Begin again

*reflections in comment by @mcgregor52

4

1

10 days ago

I say hey…. NFL SNUBBED.

It’s the Hayne plane.

Also Dudded in the grand final by Melbourne who cheated the salary cap in 2009 which would make the right for winners Parramatta eels.. 🤷‍♂️

Haynes invite to the game today was lost in the mail.. or the address was wrong?
Unfortunate but think he had other plans with the parra team

Hayne brought the NFL to the Aussie dinner table.
#38 was the biggest selling jersey for the 49ers the year He was on the roster.

“It’s been a long time”

#sanfrancisco49ers #hayne #nfl #nrl by @mcgregor52

15

2

19 days ago

There is something so deeply profound that shifts within when being held and witnessed so deeply... When you are not only surrounded, but loved on, sung to, played for, prayed for, and supported on every level by community.

These are not shifts that can initially be seen, they are also ones I still dont yet have language for.. im still really learning how to keep stretching to receive in such big ways

To go from complete suffering in isolation, hiding all the pain, symptoms and difficulties day to day, to not be a 'hypochondriac' with such a wide range of symptoms, to keep others comfortable within relationships was the most painful period of my life.. it was purely existing in suffering with a big mask on..

There is healing to my shares, to people witnessing my struggles and greatests difficulties, my health issues and ultimately the depth I have always had.. AND being supported by those who CHOOSE me, who see the essence of who I am, what I stand for, and my family who have also suffered so much along the way.. the gratitude I have for you all simply cant be put into words as I am still integrating it all.. but I know the energy will be FELT through my words 🤍

People will always talk, but actions are where it shows and where it is felt..

There are spectators and there are supporters.. know the difference.. because people will SHOW you if they are there for you!!

Thank you to all the event hosts, facilitators, attendees, friends, community, music, frequencies and energetics that god has surrounded our family with ✨️

Financial supports are one thing.. but all these layers of being seen, held, witnesses and completely soul nourished by community, out of isolation, out of doing it all on our own, knowing we are so HELD is where the real medicine is!

Every day we keep getting these beautiful reminders we are no longer alone, a donation, a meal at the door, an offer for an organic facial, body work, help with the kids, men offering my husband support 🫶

I will never forget every act of kindness and generosity.. there are honestly so many atm it just brings tears to my eyes

Thank you, thank you, thank you 🤍🩷💛🩵💚💜🖤 by @mcgregor52

27

9

20 days ago

Getting this on the grid so it’s never forgotten.

Brekky was a hit

I got busted breaking dinning table ‘no phone’ rule 🤷‍♂️worth it

#laughter #kidslaughing #connection #fathersday2026 by @mcgregor52

30

5

22 days ago

To all the Dads who can’t be with their kids today 😢

To all the single Dads doing it alone 😉

To all the Dads being mums as well 😇

To all the dads stuck at work trying to provide 🤠

To all the Dads making their own Father’s Day Brekky 😝

To all the Dads doing to tough 🫡

To all the men whose dad is no longer with us. 😕

To all the men filling in as Dad ✊

To all the Present Dads spending the day with the kids 🥰

To all the Dads co sleeping running on minimum sleep 🥱

HAPPY FATHERS DAY

Tag a dad that is the B3ST DAD

#bestdad #presentdad #fathersday #dadday
#dad by @mcgregor52

1

0

22 days ago

And in other news!

@centralcoastnews are behind us in sharing our story, our gofundme as well as our fundraising event this Saturday evening at Mingara.

While its great they bring awareness to these 'not rare, just rarely diagnosed' diseases, its a shame they missed the main component - that patients are having to seek treatments overseas as there is not treatment pathway in Australia.

I guess thats a bigger story and investigative piece for another day!

Our story and event will also be shared on the radio today 96.3 coast fm

So much needs to change in our country, not just for our family but for every single individual and family suffering the gap in the Australian health care system

Were not done making noise, were just getting started 🔥🔥🔥

#autoimmuneencephalitis #panspandas #lymedisease #lymeandcoinfections #fundraising by @mcgregor52

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3

a month ago