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ME Association

@meassociation

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We raise funds for medical research into Myalgic Encephalopathy and provide support, information and campaign for people with ME/CFS in the UK.
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**Trigger Warning: Some may find this content upsetting** The Olympic sprinter now bedbound for 22 hours a day "Dobbin has been diagnosed with ME, or myalgic encephalomyelitis - a chronic, fluctuating disease, causing symptoms such as sleep problems, problems with thinking and memory, pain and severe, persistent fatigue that does not improve with rest, and more. A conversation, or even something so simple as a light too bright or a sound too loud, can cause a "crash" that lasts 24, 48 hours, or in the worst cases, months on end. This year, Dobbin has left the house on just five occasions. "It's life-decimating like I can't even put into words," she says. "I feel like I've lost everything." Read more via LinkInBio, Threads, and Stories (24hrs) #MECFS #pwME #MyalgicEncephalomylitis #MyalgicEncephalopathy IMAGE DESCRIPTION: Photo of a bed in a dark room. Wording reads: BBC Sport: The Olympic Sprinter now bedbound for 22 hours a day. MEA logo. by @meassociation
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3 days ago
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We use LinkInBio as a way for our Instagram followers to access our links. We hope these handy images can be used as a guide on how to use LinkInBio. #MEAssociation #LinkInBio by @meassociation
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18 days ago
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Parliamentary Questions (PQs) on ME/CFS & Long Covid: Aug/Sept 2026 We've listed all the parliamentary questions asked during this period on one link that can be found via the link in bio. Questions that may be of interest include MP Tessa Munt (Lib Dem) - chair of the APPG on ME - asked questions on SNOMED-CT Coding & the Government's Final Delivery Plan on ME/CFS plus MP Max Wilkinson (Lib Dem) asked about research: Sequence ME for Long Covid & ME/CFS. #MECFS #MyalgicEncephalomyelitis #SevereME #UKParliament #Sept2026 IMAGE DESCRIPTION: An image of the Houses of Parliament with the wording: Parliamentary Questions: ME/CFS & LC Aug/Sept 2026 IMAGE DESCRIPTION: An image of the Houses of Parliament with the wording: Parliamentary Questions: ME/CFS & LC Aug/Sept 2026 by @meassociation
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9 hours ago
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OMEGA Event: Latest ME/CFS Research from Professor Karl Morten and colleagues! Karl and his colleagues will share their latest research, shedding light on what’s new and promising in the field, at this event organised by OMEGA (Oxfordshire ME Group for Action). Don't miss this chance to get updated straight from the experts and connect with others interested in ME/CFS. Date: Saturday 7 November, 2 PM - 4:30 PM Location: In-person (you can also take part online via Teams, listening in and asking questions) Anne Anderson lecture theatre, Women’s Centre, John Radcliffe Hospital, Headley Way, Oxford, OX3 9DU Find out more and get your ticket via the Link in Bio, Stories(24h) or Threads The MEA Ramsay Research Fund has been funding Professor Karl Morten and colleagues in Oxford to carry out research into various aspects of ME/CFS over many years. #MECFS #pwME #MyalgicE #Research by @meassociation
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10 hours ago
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REMINDER: Research: PRIME webinar The 4th webinar, The Neurology of ME/CFS, will take place on: Date: Wednesday 28th October, 2026 Time: 2pm-5pm GMT Location: online via Zoom More details including how to register to join can ve found in the link bio #MECFS #MyalgicEncephalomyelitis #PRIME by @meassociation
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3 days ago
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I Would be Here if I Could Mirrorbox Journey is coming to Brighton! Dates: 17-18th October (this weekend!) Time: 11am-4pm Venue: Jubilee Square Brighton Access information (link in bio) The team say: "For those of us unable to visit - follow the visit on socials, listen to Cate’s message and you are invited to write her a digital postcard back." More details via link in our bio If you'd like to see the messages map, please click the link in bio - TW: Some message people may find upsetting (see the 'I would be here if I could' website warning): The Mirrorbox Journey: Dates for 2026/2027 8-9 November 2026 Thornton Heath Leisure Centre, Croydon 13-14 March 2027 Tate Modern, London 14-15 May 2027 Whitby, North Yorkshire 16 May 2027 Robin Hood’s Bay, North Yorkshire 12-13 June 2027 Bingley Five Rise Locks, West Yorkshire #MirrorboxJourney #MyalgiaEncephalomyelitis #LongCovid #Brighton by @meassociation
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3 days ago
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Scientific Reports: Handgrip strength parameters as predictors of post-COVID syndrome severity and muscle weakness in an observational study First part of Abstract below: Post-COVID Syndrome (PCS) presents with persistent symptoms such as fatigue, muscle weakness, and cognitive impairments, which often impact quality of life. This study determines handgrip strength (HGS) using a digital hand dynamometer as an objective measure of muscle function in PCS, aiming to assess its utility in symptom quantification and explore its relationship with endothelial dysfunction (ED) and inflammatory markers. Please see link in bio, Instagram Threads or our stories for 24hrs Further studies and information on HGS with URLs added to Link in bio below: Springer Nature: Handgrip strength in children, adolescents, and young adults with suspected myalgic encephalomyelitis/chronic fatigue syndrome The ME Association also has a medical matters entry on HGS #pwME #MECFS #MyalgicEncephalomyelitis #LongCovid #PostCovid #HandGripStrength IMAGE DESCRIPTION: An image of a person using a HGS measuring device. Title: Scientific Reports: Handgrip strength parameters as predictors of post-COVID syndrome severity and muscle weakness in an observational study. The ME Association Logo (bottom right) by @meassociation
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4 days ago
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We would like to say a massive 'thank you' to Mel, Karen and Tracy from the Southend Vox Community Choir for raising over £3,000 for The ME Association! On 19th September, they did a 'strollathon' where they continuously danced or strolled for 8 hours to Rock n Roll sounds from the 50’s & 60’s! Thank you so much - your fundraising will make a huge difference in the lives of people with ME/CFS and Long Covid in the UK. To donate to their 'strollathon', visit the link to their JustGiving page via LinkInBio, Threads, and Stories (24hrs) #ThankYouThursday #ThankYou #MEAssociation #Fundraisers #MECFS by @meassociation
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4 days ago
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A new play is coming to London! "‘Condensation & Cannonballs’ is a One-Person Show about boyhood, friendship, and what it means to grow up with, and grow apart from, a best friend. It’s unflinchingly raw, disconcertingly funny, and devastatingly gentle at the same time." Created by Noah McCreadie, who will be performing this one man show at the The Union Theatre about his friend who had ME, and sadly passed away a few years ago. 4 November 2026 - 6 November 2026 Times: 7.30pm Tickets: £18 Noah will be donating a portion of the proceeds to the ME Association, and we're very grateful for his support! Get your tickets and find out more via the Link in Bio, Stories(24h) or Threads N.B This show may contain material which is upsetting to some viewers. @theuniontheatre @themccreadiecompany @noahmccreadie #MECFS #pwME #MyalgicE #MyalgicEncephalomyelitis by @meassociation
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5 days ago
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MEMBERS ONLY – Notice of Annual General Meeting of The ME Association and Registration The next Annual General Meeting (AGM) of The ME Association will be held on December 8th 2026, 2pm – 3pm. The AGM is open to all members of the ME Association, who may attend either online via ZOOM or in person at our office: 7 Apollo Office Court, Radclive Road, Gawcott, Buckinghamshire, MK18 4DF. The AGM will include: - Voting on any resolutions to be considered - Charity updates If you are a member of the ME Association and wish to attend, please use the link in bio, Stories(24h) or Threads to register by November 29th 11:59pm #MECFS #pwME #MEAssociation #AGM IMAGE DESCRIPTION: Photo of wooden blocks spelling out AGM. Heading: "MEMBERS ONLY – Notice of Annual General Meeting of The ME Association and Registration" by @meassociation
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6 days ago
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What causes ME/CFS? poster This poster, free to download, explores the different factors involved in causing ME/CFS based on current research. Download via LinkInBio, Threads, and Stories (24hrs) #MECFS #pwME #MyalgicEncephalomyelitis #MyalgicEncephalopathy IMAGE DESCRIPTION: Photo of a person holding the MEA's 'What Causes ME/CFS?' Poster. Wording reads: 'What Causes ME/CFS?' Poster. by @meassociation
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6 days ago
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News Medical: Severe long Covid associated with distinct oral and lung microbiomes "A study of more than 700 people has shown that those with long Covid have distinct differences in the mix of bacteria that live in their mouths and lungs, according to a study published today (Monday) in the European Respiratory Journal. The research also shows that these differences in the lung microbiome are linked to respiratory symptoms, as well as the cognitive and digestive problems known to occur in long Covid." Read more via LinkInBio, Threads, and Stories (24hrs) #LongCovid #LongCovidResearch IMAGE DESCRIPTION: Photo of a young woman, unwell in bed, clutching at her head and throat. Wording reads: News Medical: Severe long Covid associated with distinct oral and lung microbiomes. by @meassociation
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7 days ago
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