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What a wonderful #BlueSunday celebration with my dear friends in @meactionga today! First I received amazing chocolate cookies from @coryanderson_ of @babydeerbakery - the best chocolate cookies I have ever had! Thank you, Cory! Then, because the @meactionga event was virtual as well as in person, I was able to be a part of the event from my bed in my blue nightgown. The highlight of the event was @maggieboxey’s brilliant TEDx talk, “I Am One of the Millions Missing”, available on YouTube. Thanks to all who made this wonderful day possible!
I love my @meactionga community! #MECFS #StrongerTogether #TeaPartyForME by @minadjenkins
15
a year ago
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I am nominating Philly Phavorite @dralastanford to join the fight against #GreatestMEdicalScandal!!! I am a big fan of you and your work focused on equity and racial justice in medicine in Philly—and beyond!

As advocates like @chimereladawn and @minadjenkins have highlighted time and again, Black Americans with Myalgic Encephalomyelitis (ME or ME/cfs) have an even harder time getting a diagnosis and any help from doctors. We need doctors like you, Dr. Stanford, to combat this scandal within a scandal. 

Please visit JohnVsJon.com for a general overview of what #GreatestMEdicalScandal is, watch the documentary Unrest in which @jen.brea shows thru her story how #pwME are mistreated and dismissed, reach out to @chimereladawn or @minadjenkins to hear their first hand experiences, or read about the activism of Tinu Abayomi-Paul who suffered from ME and died last fall. https://thesicktimes.org/2024/10/04/tinu-abayomi-paul-writer-disability-advocate-and-person-with-long-covid-dies-at-52/

We need your help! 🙏 🛟 @johnvsjonvsme @meactnet #MillionsMissing #worldmeday2025 #myalgicencephalomyelitis by @minadjenkins
2
a year ago
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Most of our community are not well enough to protest on the street but we are making our voices heard from our beds about why cuts to ME/CFS research funding is so devastating to our community. Wilhelmina Jenkins is one of the #MillionsMissing who are showing up from our beds, our homes, in DC & around the world on May 12th. Learn more at
LINK IN BIO. 

As Wilhelmina shares. "I am here in my bed now. Unable to leave, unable to go out into the world, but from here, I fight as best I can, because nothing is more important than research to understand this illness. There are millions of us. We need urgency from our agencies."

Thank you to Wilhelmina for the sacrifice we know making this video was as well as for her many years of service via advocacy and support! We are huge Wilhelmina fans here at MEAction- as we are sure anyone who knows her is!

Please join Wilhelmina in sending a loud SOS to be heard by elected officials and other decision makers this May 12th.

#MECFS #MyalgicEncephalomyelitis #disability  #LongCovid #BIPOC #disability #DisabilityJustice #pwME #DisabilitySOS #MEAction #Georgia 
@meactionga 

ID: Wilhelmina ( a black woman wearing a red shirt) lies in bed as she speaks to the camera. by @minadjenkins
39
a year ago
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I am so honored by this award carrying my name! Many thanks to my dear @meactionga friends! My hope is that, when you see this award, you will remember the many advocates who have fought for justice for decades for those living with #MECFS as well as all of those who continue the fight. The struggle continues!

ANNOUNCEMENT from @meactionga!

#MEAction Georgia’s Millions Missing

Event: The Wilhelmina Jenkins ME/CFS Service Awards

Show your support for the ME/CFS community and join us in celebrating the champions who are making a difference.

Where: Atlanta Marriott Northeast/Emory (2000 Century Blvd NE, Atlanta, GA 30345)

When: May 8th, 2024 from 7:00 pm to 8:00pm

To RSVP and how to watch from home: https://linktr.ee/meactiongeorgia (link in @meactionga bio) by @minadjenkins
15
2 years ago
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Most people know @meactnet as a strong advocacy and activist organization that stands up for people living with #MECFS. What people may not know is what kind and supportive friends they are, both in my state group, @meactionga, and in the larger ME Action community. This has been a very difficult time for my family and me, but my dear ME Action friends have had my back.

These delicious blueberry muffins and egg bites were carefully baked to adhere to my diabetic restrictions by ME Action GA’s @coryanderson_  of @babydeerbakery. Everything that she bakes is delicious!

Our dinners have been a gift from @meactionga and the wider ME Action community who ordered from my favorite restaurant, @maepole_ , that specializes in healthy, tasty, natural meals. 

I am feeling very loved, well fed and grateful! 

#pwME #MEsupport  #MEcommunity taken in Atlanta, GA by @minadjenkins
8
3 years ago
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Repost from @meactionga
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@meactnet is livestreaming their press conference today at 11a PT/2p ET - facebook, youtube and twitter:

https://www.meaction.net/event/millionsmissing-2023-watch-livestream-of-press-conference/ by @minadjenkins
0
3 years ago
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IN ONE HOUR! Don’t miss it!

Repost from @meactionga
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See ya soon!!! For Millions Missing 2023, #MEAction GA is proud to host a special event featuring Ryan Prior and Elizabeth Weaver. For this panel discussion, Ryan and Liz will talk about their newly launched book, “THE LONG HAUL: Solving the Puzzle of the Pandemic’s Long Haulers and How They Are Changing Healthcare Forever.”

Join us! This Zoom event is entirely virtual.

Date and time:  Thursday, May 11th at 1:00 pm ET.

To join the Zoom Meeting, go to:

https://us02web.zoom.us/j/89439673891?pwd=NEtra0hjVll3Uit3U1VoWmtGVE1rQT09

Meeting ID: 894 3967 3891

Passcode: mm2023

— with Karen Gimnig and 3 others. by @minadjenkins
0
3 years ago
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Repost from @meactionga
•
Join Us TOMORROW! For Millions Missing 2023, #MEAction GA is proud to host a special event featuring Ryan Prior and Elizabeth Weaver. For this panel discussion, Ryan and Liz will talk about their newly launched book, “THE LONG HAUL: Solving the Puzzle of the Pandemic’s Long Haulers and How They Are Changing Healthcare Forever.”

Click the link for all the details.

This Zoom event is entirely virtual.

Date: Thursday, May 11th

Time: 1:00 pm ET

Attendees are encouraged to wear red in honor of #MillionsMissing awareness!

https://www.meaction.net/event/meaction-georgias-millionsmissing-book-event/ by @minadjenkins
1
3 years ago
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Repost from @meactionga
•
Join Us! For Millions Missing 2023, #MEAction GA is proud to host a special event featuring Ryan Prior and Elizabeth Weaver. For this panel discussion, Ryan and Liz will talk about their newly launched book, “THE LONG HAUL: Solving the Puzzle of the Pandemic’s Long Haulers and How They Are Changing Healthcare Forever.”

https://www.meaction.net/event/meaction-georgias-millionsmissing-book-event/

This Zoom event is entirely virtual.

Date: Thursday, May 11th

Time: 1:00 pm ET

Attendees are encouraged to wear red in honor of #MillionsMissing awareness!

https://www.meaction.net/event/meaction-georgias-millionsmissing-book-event/ by @minadjenkins
0
3 years ago
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Atlanta area friends! Don’t forget! Tomorrow, May 1, is the final day to order from @babydeerbakery for #bluesunday2023! Pickup will be on May 13 so that you will have your treats for May 14.
Repost from @babydeerbakery
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Our most popular Blue Sunday offering this year- a Tea Party in a Box!
Perfect for a small gathering with friends or family, each box includes
💙 4 Scones
💙 4 Cookies
💙 4 Small Cakes
💙 4 Tea Bags

100% of the profits are donated to @meactnet

Pre-order only for pick up on Saturday, May 13th, then share a picture of your tea party with #bluesunday2023 and #teapartyforme2023 anytime that weekend.
www.babydeerbakery.com/teapartyforME 

#bluesunday #teapartyforME #meaction #chronicillness #longcovid #atlantabakery #cookiesforacause #pwME #pwLC #atlantaspoonies #chronicillnessatlanta #meactionGA by @minadjenkins
1
3 years ago
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Repost from @meactionga
•
MARK YOUR CALENDARS!!! For Millions Missing 2023, #MEAction GA is proud to host a special event featuring Ryan Prior and Elizabeth Weaver. For this panel discussion, Ryan and Liz will talk about their newly launched book, “THE LONG HAUL: Solving the Puzzle of the Pandemic’s Long Haulers and How They Are Changing Healthcare Forever.”

Join us! This Zoom event is entirely virtual.

Date and time:  Thursday, May 11th at 1:00 pm ET.

To join the Zoom Meeting, go to:

https://us02web.zoom.us/j/89439673891?pwd=NEtra0hjVll3Uit3U1VoWmtGVE1rQT09

Meeting ID: 894 3967 3891

Passcode: mm2023 by @minadjenkins
1
3 years ago
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Remember, Atlanta friends! Place your order by May 1!

Repost from @babydeerbakery
•
This year, Blue Sunday falls on Mothers Day and what better way to celebrate Mom and do good than with Blue Rose Cupcakes? 

Fun fact: Baby Deer's mom hates pink and loves blue so at least one batch of these will have her name on it. 

Other fun fact: We're offering these cupcakes in vanilla or chocolate with vegan and/or gluten free options so there is something for as many moms as possible. 

Order by Sunday, May 1st!

100% profits donated to @MEAction

#bluesunday2023 #teapartyforME #meaction #chronicillness #longcovid #atlantabakery #cookiesforacause #pwME #pwLC #atlantaspoonies #chronicillnessatlanta #meactionGA  #teapartyforME2023 #glutenfreeAtlanta #veganAtlanta #mothersdayAtlanta by @minadjenkins
3
3 years ago
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