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storyteller | life chats, navigating MS 🧡 & living the quiet parts out loud ✨|📍Hoboken
💌: [email protected]
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Two years ago on September 4th, I was diagnosed with multiple sclerosis. This is my diagnosis story. For the sake of time, I didn’t go into every detail. I had to edit this down a lot because it was really long 🙃 but I do want to mention my earliest known symptoms date back to 2017. I hope my story can help someone else. Thanks for watching! 🧡 #lifechats #msawareness #diagnosisstory #lifewithms taken in Hoboken, New Jersey by @natymichele
41
a month ago
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From November 2024 to now 🥹 I am incredibly proud of the progress I’ve made over the past year and a half. The first few months after my MS diagnosis were some of the most difficult for me, both physically and mentally. I had no idea how long I’d need to use a cane or if I’d even be able to walk without one. And now here I am, improving more every single day. ☺️⁣
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Not all days are good days for me when it comes to my mobility. Sometimes one block can wipe me out or a trip to the store can force me to lie down for hours. What I’m constantly learning is to give myself grace, to have patience, and to take each day as it comes. The good days feel amazing and they give me hope. The bad ones can sometimes be debilitating. But the one thing that remains constant is my determination to keep moving forward. Baby steps, but we’re getting there little by little. 🚶🏽‍♀️⁣
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#msawareness #livingwithms #mobility #multiplesclerosis #thenandnow taken in Hoboken, New Jersey by @natymichele
128
8 months ago
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Dinner with my girls 🤗 One of the best parts of living in Hoboken is being so close to them. I remember how resistant I was to move back to Jersey, but ultimately it became the best thing for me, for so many different reasons. Super grateful that it’s been my home for the last three years. 🫶🏼 #lovethem taken in Hoboken, New Jersey by @natymichele
2
2 days ago
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A month from now I’ll be celebrating my birthday alone in Boston. This will be my first solo trip since 2019 and my first time traveling since my MS diagnosis. I’m a little anxious, but also really excited. This is a big step for me. If I can do it, you can do it! Here’s your reminder to take yourself out and celebrate you. 🫶🏼🎉 #solodates #solotrip #solitude #dateyourself taken in Hoboken, New Jersey by @natymichele
24
13 days ago
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September with a little bit of August mixed in 🫶🏼✨ #lifelately #cameraroll #byeseptember taken in Hoboken, New Jersey by @natymichele
12
14 days ago
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Today is my dad’s birthday. He would have been 79. I always try to find ways to honor and celebrate him. I took myself out and asked for a dessert with a candle. I told the waitress about my dad and that it was his birthday. She said she lost hers too and then she gave me the dessert complimentary. So sweet. 🥹 Happy Birthday dad! I miss you so much. 🕊️ #myangel #missyou #happybirthdaydad taken in Hoboken, New Jersey by @natymichele
26
a month ago
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Infusion number 5 is behind me and all I can say is you better work bitch! 🤭 It’s still so wild to me that two years have already gone by since I got diagnosed with MS. There have been many ebbs and flows. Yesterday’s infusion was such a different experience for me than my very first one. I weirdly felt calm and at ease, maybe because I’m finally getting used to it all. So happy my mama was able to come and hang with me. We had too much fun making that reel!⁣ 😄
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#ocrevus #infusionday #lifewithms #multiplesclerosis #youbetterwork by @natymichele
15
a month ago
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My mom did so good 🤣 Ocrevus round 5 let’s go! ⁣
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My first few infusions always made me feel so anxious, so I tried to let go and lean into it a little bit today. As my nurse said, “It’s all part of the journey. You have to find ways to enjoy yourself in the process.” 🧡⁣
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#ocrevus #infusionday #msawareness #lifewithms #multiplesclerosis by @natymichele
21
a month ago
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The things we do at dinner 🤣 Love my sassy girl. #99problems #lipsync #auntieandniece taken in Hoboken, New Jersey by @natymichele
9
a month ago
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16 years without you is more than I can comprehend. I’ve lived so many different lives in your absence since then. 🕊️ ⁣
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Honoring my dad today and always. Grief has taught me so much. It’s changed me. I’m not who I was before he passed, but it’s helped me grow in ways I never could have imagined. I’m so proud of the woman I’ve become, and I know he’s proud too.⁣
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I miss you, dad. Every single day. 🤍⁣
#grief #myangel #griefjourney #missyou #anniversary by @natymichele
38
2 months ago
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Had the BEST time last night at the @oliviadeano concert at MSG!! ✨ I’ve been such a fan for a few years now so this was truly a dream. This is the most spontaneous thing I’ve done since getting diagnosed. My sister and I decided to get last minute tickets. And when I say last minute I mean just a couple of hours before the show. ⁣
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I had so much anxiety about being at a big venue. I get nervous about having to walk too much. What if my legs get tired too quickly? What if there’s no place to sit and rest? Or waiting on long lines for the bathroom. What if I can’t get there fast enough? What if there’s too many people to move through? These are things I didn’t have to think about before my diagnosis. But I’m so tired of letting the “what ifs” hold me back from these types of experiences. ⁣
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So I said F it. I went and I made it through until the end. I’m beyond proud of myself! This was a big win. I did have to use my cane when we were leaving, but that’s ok. That’s what I have it for. It felt amazing to still be able to do something like this and to be out of my head and in the moment. I needed it! ⁣
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And Olivia Dean was flawless as always. 10/10 no notes. 💕⁣
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#oliviadean #aboutlastnight #lifewithms #theartofloving taken in Madison Square Garden by @natymichele
19
2 months ago
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My 16 year old bunny! Just when I thought he was slowing down he said Nope! Look at me go! 🥹 This made me so happy yesterday I cried. #thisis16 taken in Hoboken, New Jersey by @natymichele
11
2 months ago
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