Instagram story viewer> @ooscf2024> Posts

Obi Ogbonnia Sickle Cell Foundation

@ooscf2024

178

followers

449

following

Advocacy l Education l Support

POSTS STORIES REELS TAGGED

JOIN US FOR A LIFE-CHANGING DISCUSSION: How To Live With Sickle Cell Disease.

We are thrilled to invite you to a special Zoom meeting on March 15th, 2024, at 6:00 pm WAT. Our topic of discussion is "How To Live With Sickle Cell Disease."

Living with sickle cell disease presents unique challenges, and our aim is to provide valuable insights, tips, and strategies to empower individuals and families affected by this condition. Whether you are a warrior yourself, a caregiver, or simply interested in learning more, this meeting is for you.

Our speakers, including medical professionals, advocates, and individuals living with sickle cell disease, will share their experiences, expertise, and practical advice on managing the condition, improving quality of life, and finding hope and support in the journey.

Please join us for an enlightening and inspiring discussion that promises to leave you with a deeper understanding and a renewed sense of community. Together, we can make a difference in the lives of those living with sickle cell disease.

Date: March 15th, 2024
Time: 6:00 pm WAT
Zoom Link: https://us05web.zoom.us/j/83145727074?pwd=tW7vNu7cPKOfKadSWSIi9Cs2T3FgI9.1 taken in Abuja, Nigeria by @ooscf2024

7

1

3 years ago

APPEAL FOR SUPPORT

Dear Esteemed Members of the Obi Ogbonnia Sickle Cell Foundation,

I hope this message finds you well. As we prepare for the official launch of the Obi Ogbonnia Sickle Cell Foundation on Sunday, 24th March 2024, I am reaching out to humbly appeal for your support and contribution towards our noble cause.

The foundation's mission is to improve the quality of life for individuals living with sickle cell disorder, particularly in Nigeria. We aim to achieve this through various initiatives, including providing free health insurance coverage to 50 less privileged Nigerians living with sickle cell disorder in the FCT.

To make this launch and initiative a success, we rely on the generosity and support of individuals like you. Your contributions will not only help us reach our goal but also make a significant impact on the lives of those in need.

For your convenience, our foundation's bank account details are as follows:

Account Name: Obi Ogbonnia Sickle Cell Foundation
- Naira Account: 0892775306
- USD Account: 0894625821

Bank: Guaranty Trust Bank Plc
Bank Address: Lagos, Nigeria
Swift Code: GTBIGB2L

Your support, whether big or small, will be highly appreciated and will go a long way in helping us achieve our mission. Together, we can make a difference and bring hope to those affected by sickle cell disorder.

Thank you for considering our appeal. We look forward to your support and to celebrating this milestone with you at the launch event.

Warm regards,

Obi Light Ogbonnia
Founder, Obi Ogbonnia Sickle Cell Foundation

#ooscf2024 #ooscf #supportsicklecellcommunity #SupportWarriors #SickleCellAwareness #sicklecellwarrior #FreeHealthInsurance #SickleCellDiseaseAwareness #freehealthcare taken in Abuja, Nigeria by @ooscf2024

7

0

3 years ago

LET THE COUNTDOWN BEGIN! taken in Abuja, Nigeria by @ooscf2024

4

0

3 years ago

𝐒𝐭𝐨𝐩 𝐏𝐚𝐭𝐫𝐨𝐧𝐢𝐬𝐢𝐧𝐠 𝐌𝐞 𝐰𝐢𝐭𝐡 𝐀𝐰𝐚𝐫𝐝 𝐍𝐨𝐦𝐢𝐧𝐚𝐭𝐢𝐨𝐧𝐬. 𝐌𝐲 𝐋𝐢𝐟𝐞𝐭𝐢𝐦𝐞 𝐀𝐜𝐡𝐢𝐞𝐯𝐞𝐦𝐞𝐧𝐭 𝐀𝐰𝐚𝐫𝐝 𝐈𝐬 𝐌𝐲 𝐒𝐞𝐫𝐯𝐢𝐜𝐞 𝐭𝐨 𝐇𝐮𝐦𝐚𝐧𝐢𝐭𝐲.

I have come to a point in my life where award nominations no longer define my worth. Please, stop patronising me with nominations. I have already won something far more valuable through my service to humanity.

Let me share The Greatman Okoko Experience.

At the last Beulah SCD Warriors Welfare Clinic, I met a little boy named Greatman Okoko and his mother. What touched me most was the mother's heartfelt appreciation for the free health insurance the Obi Ogbonnia Sickle Cell Foundation (OOSCF) enrolled her son in back in 2024.

Her gratitude was not rehearsed. It was genuine. It came from a mother who understood what access to healthcare means for a child living with sickle cell disease.

Over the years, I have encountered several other parents and caregivers at different gatherings who have not stopped to appreciate me for the Foundation's intervention in their children's lives.

Every time this happens, I am reminded that the true reward for service is not always a plaque, a certificate, a title, or a standing ovation in a beautifully decorated hall.

Sometimes, it is the smile of a child whose healthcare needs are covered.

Sometimes, it is the relief in a mother's voice when she remembers that someone cared enough to help.

Sometimes, it is a simple, heartfelt "Thank you" from a family whose burden has been made a little lighter.

Living with sickle cell disease myself has given me a personal understanding of the pain, uncertainty, and financial burden that families affected by this condition endure. Through the Obi Ogbonnia Sickle Cell Foundation (OOSCF), I have chosen to turn my lived experience into a mission of service, advocacy, and hope.

Greatman and his mother may never know how deeply their appreciation touched me. But that encounter reaffirmed something I have always believed: the impact we make in people's lives is a more enduring measure of success than the recognition we receive.

I am grateful for every honour, but I will never allow the absence of an award to.. taken in Abuja, Nigeria by @ooscf2024

1

0

2 days ago

During my six-month ordeal with pyomyositis, which involved three surgeries to drain infections in my hands, the physical pain was only one part of my suffering. The emotional and psychological toll was enormous. Living with persistent pain, undergoing repeated surgeries, and facing the uncertainty of recovery took a serious toll on my mental health. Sadly, there was little or no mental health support to help me navigate this difficult period.

One of the biggest gaps in sickle cell care is the neglect of patients' mental and emotional well-being. We focus so much on treating the physical symptoms that we often forget the person behind the pain. Warriors need more than medication and surgery; we need psychological support, empathy, and someone who understands what we are going through. Mental health support must become an integral part of sickle cell care, not an afterthought. taken in Abuja, Nigeria by @ooscf2024

3

0

7 days ago

🎄❤️ 𝐎𝐎𝐒𝐂𝐅 𝐒𝐄𝐂𝐑𝐄𝐓 𝐒𝐀𝐍𝐓𝐀 𝟐𝟎𝟐𝟔

𝗪𝗘 𝗡𝗘𝗘𝗗 𝗬𝗢𝗨𝗥 𝗛𝗘𝗟𝗣 𝗧𝗢 𝗥𝗘𝗔𝗖𝗛 𝗢𝗨𝗥 𝗪𝗔𝗥𝗥𝗜𝗢𝗥𝗦 𝗧𝗛𝗜𝗦 𝗖𝗛𝗥𝗜𝗦𝗧𝗠𝗔𝗦

Christmas is fast approaching, and there are Sickle Cell Warriors and Caregivers who need our support now.

For families already carrying the daily burden of sickle cell disorder, the additional pressure of the festive season can be overwhelming. We cannot reach them without your help.

OOSCF is calling on compassionate individuals, organisations, foundations and friends of the sickle cell community across Nigeria and around the world to support our 2026 Secret Santa Outreach.

We urgently need:

💰 Cash donations
💊 Essential medications
🎁 Gifts & care packages
👕 Clothing & shoes
💻 Computers & laptops

Your support can help provide essential medication, ease a caregiver’s burden, support a Warrior’s education, and bring much-needed joy this Christmas.

Please don’t wait. Give today!

Whether it is a financial contribution, a gift item, medication, or simply helping us share this appeal with others, your support can make a real difference.

🎄 HELP US REACH MORE WARRIORS.
HELP US SUPPORT MORE CAREGIVERS.
HELP US MAKE THIS CHRISTMAS COUNT.

🌐 Donate to OOSCF Secret Santa 2026:

https://ooscf.com/secret-santa-2026/
📞 +234 805 715 7133
📧 info@ooscf.com

Every day brings us closer to Christmas. Every donation brings us closer to a Warrior who needs us.

Obi Ogbonnia Sickle Cell Foundation (OOSCF)
Supporting Warriors. Empowering Caregivers. Restoring Hope. taken in Abuja, Nigeria by @ooscf2024

3

0

11 days ago

🇳🇬 Happy 66th Independence Anniversary, Nigeria!

Today, we celebrate our nation’s resilience, diversity and limitless potential.

May Nigeria continue to grow in unity, peace, good health and prosperity, and may we build a country where every citizen has the opportunity to thrive.

On behalf of the Obi Ogbonnia Sickle Cell Foundation (OOSCF), I wish every Nigerian a happy Independence Day.

A healthier Nigeria. A brighter future. 🇳🇬 taken in Abuja, Nigeria by @ooscf2024

8

0

17 days ago

BEFORE YOU SAY "I DO," KNOW YOUR GENOTYPE! ❤️🩺
Love is beautiful. Faith is powerful. But knowledge? That protects both.

Join us for THE GENOTYPE CONVERSATION:

Where Love, Faith & Genotype Meet, a safe space to know your genotype, ask the questions you've been afraid to ask, and talk honestly about relationship choices.

✅ FREE Genotype Testing
✅ Cash Prizes & Giveaways
✅ Honest, judgment-free conversation

🗓 Saturday, 3rd October 2026
⏰ 10 AM prompt
_📍 New Lecture Theatre (NLT), Department of Chemistry, University of Ibadan_

📞 Enquiries & Registration: 09045985538 | 09044892505

Come with your partner. Come with your friends. Come with your questions. 💬

Your genotype is one test away. Don't guess it, know it! 🧬

📲 Share with someone who needs to see this!

#TheGenotypeConversation #KnowYourGenotype #SickleCellAwareness by @ooscf2024

5

0

20 days ago

You're irreplaceable Mom ❤️
Continue to rest 🙏 taken in Abuja, Nigeria by @ooscf2024

7

3

23 days ago

Karibu Kenya! 🇰🇪

I’m honoured to announce that I will be attending the 3rd Global Sickle Cell Disease Conference, taking place September 1–3, 2026, in Nairobi, Kenya.

I’m especially grateful to Biba Tinga and GASCDO for the invitation to participate in the Warriors Focus Group and Panel Discussion, where I’ll share my lived experience and advocate for the voices of sickle cell warriors.

Our voices matter. Our stories matter. And together, we can transform sickle cell care.

See you in Nairobi! ❤️ taken in Abuja, Nigeria by @ooscf2024

10

0

2 months ago

𝐂𝐞𝐥𝐞𝐛𝐫𝐚𝐭𝐢𝐧𝐠 𝐚 𝐂𝐡𝐚𝐦𝐩𝐢𝐨𝐧 𝐨𝐟 𝐂𝐨𝐦𝐩𝐚𝐬𝐬𝐢𝐨𝐧 𝐚𝐧𝐝 𝐒𝐞𝐫𝐯𝐢𝐜𝐞

Today, the Obi Ogbonnia Sickle Cell Foundation (OOSCF) proudly celebrates and appreciates ACP Dr. Ifayase Olabanji for his unwavering support and commitment to our mission since our launch on March 24, 2024.

In a world where many recognize challenges but few step forward to make a difference, Dr. Olabanji has consistently demonstrated exceptional leadership, compassion, and dedication to improving the lives of individuals living with sickle cell disorder.

His encouragement, partnership, and belief in our vision have strengthened our advocacy efforts and inspired hope among countless sickle cell warriors and their families. We are deeply grateful for his steadfast support and invaluable contributions to our journey.

Thank you, Dr. Olabanji, for standing with us, believing in our cause, and helping us build a future where every sickle cell warrior can thrive.

𝗬𝗼𝘂𝗿 𝘀𝘂𝗽𝗽𝗼𝗿𝘁 𝗰𝗿𝗲𝗮𝘁𝗲𝘀 𝗵𝗼𝗽𝗲. 𝗬𝗼𝘂𝗿 𝘀𝗲𝗿𝘃𝗶𝗰𝗲 𝗶𝗻𝘀𝗽𝗶𝗿𝗲𝘀 𝗰𝗵𝗮𝗻𝗴𝗲. 𝗬𝗼𝘂𝗿 𝗶𝗺𝗽𝗮𝗰𝘁 𝘄𝗶𝗹𝗹 𝗯𝗲 𝗿𝗲𝗺𝗲𝗺𝗯𝗲𝗿𝗲𝗱.

#Appreciation #Leadership #SickleCellAwareness #OOSCF #HealthcareAdvocacy CommunityImpact ServiceToHumanity SickleCellWarriors Abuja Nigeria taken in Abuja, Nigeria by @ooscf2024

6

0

3 months ago

This isn't just an outreach; it's a movement for health equity, awareness, and unwavering support for every warrior fighting the battle. No long talk—just real impact and proper execution on the ground.

let's end the pain together. Every voice matters, ❤️

#BeulahSickleCellFoundation #SickleCellAwareness #RedUmbrellaWalk #HealthEquity" by @ooscf2024

267

17

4 months ago