Instagram story viewer> @maggieday555> Post
6 months ago
“On this day” in my phone I am reminded of living

A loved life

Freedom is a body lets you leave the house

That doesn’t hesitate to move when you tell it to. 

4.3.2024 2 year anniversary of TIA

2 years in my apartment #cabinfever 

Still can’t enter a grocery store

New uncontrolled #epilepsy 

Can’t drive, wash 2 dishes, take out my own trash

My little sister @josieday444 is my life line & generosity of friends & strangers

Healing on a timeline that can be  so scary. I miss living. I miss working. I miss my friends.

#disability is so isolating. Memories like this can send me into the darkest places not knowing what  comes next

They can also lift me up. This did, beautiful day w/ my wonderful talented friend

I look forward to a life that may be new, but that frees me from the prison of my brain

#braintumorssuck

But memories like this give me hope that New Me can be functional… when it releases the lighting storm that is my brain

I love you @lesaamoore 

Thank you for being a & many beautiful moments on  my timeline 

1 that I live in, that I wake up in

“Dementia like symptoms” isn’t something one would want to spend a day in … but the a good thing -I spend most of my time living in this timeline 

I wake up 10 years ago. until I am oriented, I get to live in a place where it’s not just my 4 walls or adrenaline fueled appts

Heading to 2 years  since brain surgery which means heading towards my next 6 month MRI. Monitoring progression of the remainder

2026 still trying to hold myself back 2024 2025 4/5 days a week rushing at ways to fix vs resting

Way too early. Way too much

Still Trying to figure out what rest is … how to let go of fear

Fear of never being Me again

Fear of infinite isolation 

Fear of 1st rent due

Fear of cost to move, mobility massages being delayed, PT NEAR ME another 6 month battle w/ molina my hero 

Trying to survive hunger bc having AC > seizures

5 weeks w/out my best friend & seizure stopper

Star Baby I miss you. It’s so empty without you.  But I know you are not in pain.

If you can help in anyway, 2 years is a long time. Caregiving expenses unmanageable

1$ 5$ $100, a post - it all helps so much

Link in bio🙏🏼
2
Posted On: April 13th 2026, 07:36 am
Tagged Users:
“On this day” in my phone I am reminded of living

A loved life

Freedom is a body lets you leave the house

That doesn’t hesitate to move when you tell it to.

4.3.2024 2 year anniversary of TIA

2 years in my apartment #cabinfever

Still can’t enter a grocery store

New uncontrolled #epilepsy

Can’t drive, wash 2 dishes, take out my own trash

My little sister @josieday444 is my life line & generosity of friends & strangers

Healing on a timeline that can be so scary. I miss living. I miss working. I miss my friends.

#disability is so isolating. Memories like this can send me into the darkest places not knowing what comes next

They can also lift me up. This did, beautiful day w/ my wonderful talented friend

I look forward to a life that may be new, but that frees me from the prison of my brain

#braintumorssuck

But memories like this give me hope that New Me can be functional… when it releases the lighting storm that is my brain

I love you @lesaamoore

Thank you for being a & many beautiful moments on my timeline

1 that I live in, that I wake up in

“Dementia like symptoms” isn’t something one would want to spend a day in … but the a good thing -I spend most of my time living in this timeline

I wake up 10 years ago. until I am oriented, I get to live in a place where it’s not just my 4 walls or adrenaline fueled appts

Heading to 2 years since brain surgery which means heading towards my next 6 month MRI. Monitoring progression of the remainder

2026 still trying to hold myself back 2024 2025 4/5 days a week rushing at ways to fix vs resting

Way too early. Way too much

Still Trying to figure out what rest is … how to let go of fear

Fear of never being Me again

Fear of infinite isolation

Fear of 1st rent due

Fear of cost to move, mobility massages being delayed, PT NEAR ME another 6 month battle w/ molina my hero

Trying to survive hunger bc having AC > seizures

5 weeks w/out my best friend & seizure stopper

Star Baby I miss you. It’s so empty without you. But I know you are not in pain.

If you can help in anyway, 2 years is a long time. Caregiving expenses unmanageable

1$ 5$ $100, a post - it all helps so much

Link in bio🙏🏼
Comments (2)
lesaamoore 6 months ago

lesaamoore

Dear Maggie 👼! Oh want a fun day this was! Great memory! ❤️ You have shown such strength during this unbelievably torturous decade for you. I am so sorry to learn about your seizures. 😢 Hoping the tides will turn and you will see improvement with the right meds. I send you and Josie my love. Many fond memories together! ❤️

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