TicTastic!

Please take a moment to read this in full if you can!!

This week I received a very exciting parcel which I’ve been looking forward to for what feels like forever!

If you’ve seen the film “I Swear” (@johndavidsonmbe ) then you might recognise the device featured in these photos.

This is my new @neupulse device!!! To start with I just want to say that I’m aware that it’s such a privilege to be able to own this device as I know it isn’t financially possible for many. This is a wearable device which has been found to help reduce tics in those with Tourette’s Syndrome by using median nerve stimulation.

This is a very exciting new chapter and a first of its kind which I’m looking forward to exploring and experimenting with. I feel it’s going to be a lot of trial and error of how the device can be used to benefit my day to day life overall. The possibility that this may give me back a tiny bit of control over my own life, body and brain is something that I’ve never had and never thought I’d get either. I’m going into this with a very open mind to not put pressure or expectations on the effects it may have on my tics as it’s all still so unknown.

A huge disclaimer about this is that I want to make sure it’s VERY CLEAR that just because this device is being released, it doesn’t mean that all members of the tic community will want to try it or use it. Living with tics isn’t always a negative and there should in no way be any pressure for people to stop ticcing whether that be through suppression, taking medication, or now by using this device. It’s such a personal thing and each individual will have different feelings about it. I know I wouldn’t want my tics to be entirely taken away as it is a fundamental part of who I am.

However, I’m excited to try and experiment using it in different contexts of my life as a potential tool in the toolkit.

I’m going to try and document my experiences and journey while I start using Neupulse and the honest truths about the big questions, thoughts and emotions that arise with it.

💙💙💙 #neupulse #tourettes #tourettessyndrome #tic