Brandy Nelson Jones

What is Joubert syndrome?

Joubert syndrome is a rare genetic condition that affects brain development and can impact vision, movement, muscle tone, speech, and sometimes organ function.
@sierra_dawn_ ’s son was diagnosed after a long search for answers. Through the uncertainty and medical complexity, Sierra has met the journey with fierce advocacy, patience, and love—always celebrating the joyful, determined little boy he is.
He is so much more than a diagnosis. #journey #survivor#joubertsyndrome #joubertawarenessmonth#podcast #strongmom