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paulatedder

@paulatedder

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Today is Myalgic Encephalomyelitis (ME) Awareness Day. On this day, the millions of people with ME are protesting from their beds, homes, and in Washington D.C. in hopes of saving our science.

Here is a script & link to find your congressional representatives:

https://docs.google.com/document/d/1pTwIjrfLKngFUQXfQFerkw8vwmZKaT9JDAl6DVUOiSE/mobilebasic?

Thank you for standing with the MILLIONS MISSING! 🙏

#millionsmissingvoice
#millionsmissing #meaction
#mecfsawareness #mecfsrecovery #pwme #mecfs by @paulatedder

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a year ago

In 9 days my last baby boy will graduate high school! I couldn’t be more proud of & excited for him.

The only unfortunate part is only 4 people get to attend his actual ceremony. The school will provide a livestream link for everyone who cannot attend.
DM me & I will provide the link so anyone wanting to see him walk can do so from the comfort of their home. Graduation starts at 7:30pm. by @paulatedder

31

3

a year ago

One thing chronic illness has taught me is finding joy regardless of the pain.

Tonight, Keith Tedder & I went to see the Christmas lights along The Woodlands Waterway. It was absolutely beautiful!

Magical in fact, they even had Christmas music playing, too! We had so much fun & laughter. So very thankful for my sweet husband taking it one moment by moment with me. Love you, Babe!💋💕 #findingthejoyineveryday #mswarrior #mecfs #mecfsawareness #pwme #multiplesclerosis by @paulatedder

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2 years ago

To everyone in my IG world! Thanks for the love, the laughs, & entertainment! Since getting ill, I am thankful to have social media as a way to connect.

Wishing you all a very Happy New Year, blessings, joy, & love in 2025! by @paulatedder

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1

2 years ago

I am absolutely honored & grateful for this stunning artwork that was gifted to me & @reddet last night.

“Concord” in acrylic by @Zozzzart!

Location: Molas Lake, Silverton, Colorado

This painting was a rendition of one of the best vacations we’ve ever had. If you look closely, you see in the lake:

R to L: Zoe, Will, Keith, Me, Cooper, & Paola.

@zoe__powell is the amazingly talented girlfriend of our son Will, @professional__weak_guy.

Thank you @zoe__powell for the beautiful reminder of our trip & including some of my favorite people! It will be cherished for a lifetime! 🥰 by @paulatedder

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2 years ago

May is #MECFS awareness month! So here I am spreading the reality of what this illness does to me and MILLIONS like me.

#millionsmissingvoice
#millionsmissing #meaction
#mecfsawareness #mecfsrecovery #pwME by @paulatedder

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2 years ago

#millionsmissingvoice
#millionsmissing #meaction
#mecfsawareness #mecfs #mecfsrecovery #fibromyalgia
#pwme #multiplesclerosis #multiplesclerosisawareness by @paulatedder

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3 years ago

At some point, the focus has to shift from
“What is wrong with this body?”
to
“What can I do with the life I still have?”

Even small wins are progress!

#millionsmissingvoice
#millionsmissing #meaction
#mecfsawareness #mecfs #mecfsrecovery #fibromyalgia
#pwme #multiplesclerosis #multiplesclerosisawareness by @paulatedder

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3 years ago

In the face of chronic illness…

#millionsmissingvoice
#millionsmissing #meaction
#mecfsawareness #mecfs #mecfsrecovery #fibromyalgia
#pwme #multiplesclerosis #multiplesclerosisawareness by @paulatedder

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1

3 years ago

There is a large portion of the ME/CFS, Long Covid and chronically ill patient population that is housing insecure or homeless.

I applied for social security disability nearly two years ago and recently hired an attorney in hopes for approval.

We have been struggling without my paycheck and I can’t even imagine being a single parent or person.

I am truly blessed but ME/CFS, Long COVID, and chronically ill patients shouldn’t have to wait years to get financial assistance.

#millionsmissingvoice
#millionsmissing #meaction
#mecfsawareness #mecfs #mecfsrecovery #fibromyalgia @mecfswarrior #mecfswarrior
#pwme #multiplesclerosis #multiplesclerosisawareness by @paulatedder

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2

3 years ago

Confirming that all ME/CFS patients know, but few healthcare professionals understand.

#millionsmissingvoice
#millionsmissing #meaction
#mecfsawareness #mecfs #mecfsrecovery
#pwme by @paulatedder

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3 years ago

Thankful & grateful! 🤩#multiplesclerosisawareness
#mecfs #multiplesclerosis #multiplesclerosistreatment #kesimpta #epsteinbarrvirus #ebv
#mecfsawareness #mecfsrecovery #fibromyalgia #kesimpta by @paulatedder

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3 years ago