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PoTS UK - Charity 1159813

@potsuk

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Educates and supports patients, family, friends and medical professionals within the UK about Postural Tachycardia Syndrome (PoTS) #TakeAStandForPoTS

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What is PoTS?

#PosturalTachycardiaSyndrome #PoTSAwareness #PoTS #DsyautonomiaAwarenessMonth by @potsuk

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2 years ago

PoTS Awareness Day 💜

PoTS is so much more than just a fast heart rate upon standing - quality of life can be equivalent to COPD and congestive heart failure.

Many patients are told that their physical symptoms are ‘all in their head’ and instead are given psychiatric labels of anxiety & depression.

For more information on PoTS symptoms, please visit: https://potsuk.org/about-pots/symptoms/

For help with managing PoTS, visit: https://potsuk.org/managingpots/

Further information about PoTS is available on the PoTS UK website: http://potsuk.org

ℹ️ Illustration by @colour_vision_designs

#PoTSAwarenessDay #PoTS #PosturalTachycardiaSyndrome #PosturalOrthostaticTachycardiaSyndrome #TakeAStandForPoTS by @potsuk

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2 years ago

PoTS UK is proud to present our first-ever Stream-a-thon on Twitch!

Join us tomorrow with 11 streamers, a variety of content, all fundraising to support PoTS UK.

All have a connection to PoTS, whether it’s a personal diagnosis or supporting a loved one.

Join in the fun and support where you can!

https://www.justgiving.com/campaign/potsuk-twitch-stream-a-thon

⭐️ 13:00 - https://www.twitch.tv/spookysadlad
⭐️ 14:00 - https://www.twitch.tv/cooriedoon
⭐️ 15:00 - https://www.twitch.tv/themessymagpie
⭐️ 16:00 - https://www.twitch.tv/theuptownfrog
⭐️ 17:00 - https://www.twitch.tv/sophieonthetwitchh
⭐️ 18:00 - https://www.twitch.tv/amethystbabyy
⭐️ 19:00 - https://www.twitch.tv/miniaturesapothecaries
⭐️ 20:00 - https://www.twitch.tv/lisaffer
⭐️ 21:00 - https://www.twitch.tv/scarlettshoward
⭐️ 22:00 - https://www.twitch.tv/themessymagpie

💜

#31DaysOfPoTS #DysautonomiaAwarenessMonth #PosturalTachycardiaSyndrome #PoTSxTwitch #PoTSUKStreamAThon by @potsuk

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8 hours ago

DAY 16 OF 31 DAYS OF PoTS

What’s something about living with PoTS that you never expected?

Maybe it’s:
▪️A surprising symptom
▪️Something you’ve had to give up
▪️A new skill you’ve learned
▪️Something unexpected about your body
▪️A completely different way of seeing the world

What was your biggest PoTS plot twist?

#PoTSAwarenessMonth #31DaysOfPoTS #PlotTwist #LivingWithPoTS by @potsuk

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18 hours ago

DAY 15 - MYTH VS REALITY

Let’s bust some PoTS myths! 🕵️

PoTS is often misunderstood, and misconceptions can make life even harder for those living with it.

What’s a misconception about PoTS you’ve heard?

Today, we’re asking you to share:

❌ THE MYTH: What do people get wrong about PoTS?

💜 THE REALITY: What do you wish they understood instead?

Share a PoTS myth and the reality behind it.

Let’s challenge misconceptions, raise awareness and help others better understand life with PoTS.

#PoTSAwarenessMonth #PoTSMyths #PoTSReality #LivingWithPoTS #31DaysOfPoTS by @potsuk

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2 days ago

PoTS isn’t easy, but there can be positives too.

Four members of our PoTS community share some of the unexpected positives they’ve found through their experiences of living with PoTS.

From new perspectives and connections to discovering strengths they didn’t know they had, hear what they have to say.

#PoTSPositives #RaisingAwarenessOfPoTS #PoTSAwarenessMonth by @potsuk

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2 days ago

DAY 14 OF 31 DAYS OF PoTS

Today is about celebrating YOU!

Living with PoTS can bring challenges that others don’t always see. So today, we want to celebrate your wins - big, small and everything in between.

💜 Getting through a difficult day counts.
🌟 Trying something new counts.
🫶 Asking for help counts.
😴 Resting when you needed to counts.

You don’t have to achieve something huge to be proud of yourself.

What’s your PoTS win?

Share something you’re proud of in the comments, or create a photo, video, graphic or story to celebrate your achievement.

Let’s celebrate each other and remind our community that every win matters.

#PoTSAwarenessMonth #LivingWithPoTS #DysautonomiaAwarenessMonth #PoTSWins by @potsuk

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3 days ago

DAY 13 - SOMETHING I’VE HAD TO ADAPT

PoTS can change the way we do the things we love.
What have you had to adapt?

Maybe it’s:
💼 Work
⚽️ Sport
🎨 Hobbies
✈️ Travel
👯‍♀️ Socialising
📚 Studying
🛀 Everyday activities

Tell us how you’ve found a new way to do something that matters to you.

Tag @potsuk
#PoTSAwarenessMonth #31Days #PoTSAdaptations #LivingWithPoTS by @potsuk

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4 days ago

DAY 12 OF 31 DAYS OF PoTS

Ever been halfway through a conversation and suddenly forgotten what you were saying? Or struggled to find a word that’s usually right there?

Brain fog can affect memory, concentration and thinking, and it can be frustrating, confusing or even funny at times!

👇 What does brain fog feel like for you?

Make it:
▪️Funny
▪️Serious
▪️Creative
▪️Relatable

Share a meme, illustration, video, story or simply a few words. Anything goes!

#LivingWithPoTS #31DaysOfPoTS #PoTSAwarenessMonth #BrainFog #DysautonomiaAwarenessMonth by @potsuk

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5 days ago

Join our volunteer led PoTS webinars this week!

Living with PoTS can bring challenges in many areas of life. This Awareness Month, our wonderful volunteers are sharing their experiences, insights and advice to help others in the PoTS community feel less alone.

📅 Monday 12th October, 1pm - PoTS and Employment

How can PoTS affect working life? Join our volunteer-led webinar to explore the challenges of employment when living with PoTS and hear experiences from others who understand.

🔗 Register here: https://us02web.zoom.us/webinar/register/WN_uTrZB9BpTSKvnQck9bumVw

📅 Tuesday 13th October, 1pm - Newly Diagnosed: What I Wish I’d Known

Recently diagnosed with PoTS? Or still finding your feet? Our volunteers will share the things they wish they’d known earlier in their journey, offering understanding and support from people with lived experience.

This webinar is proudly sponsored by Saltd Hydration (sponsorship supports this educational event and does not constitute an endorsement or recommendation by PoTS UK of the company or its products).

🔗 Register here: https://us02web.zoom.us/webinar/register/WN_-58OXq6QRtaGeWVqVzvNHA

✨ Come along, listen, learn and connect with people who understand.

These sessions are an opportunity to hear lived experiences and share in a supportive space. They are for information and peer support, not medical advice.

(Clickable links are available on our Facebook page)

#PoTSAwarenessMonth #LivingWithPoTS #SALTDHydration #NewlyDiagnosedWithPoTS #EmploymentWithPoTS by @potsuk

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5 days ago

DAY 11 OF 31 DAYS OF PoTS

For many people with PoTS, heat can make symptoms worse.

☀️ What symptoms do you notice in the heat?
🧊 What are your favourite ways to stay cool?
👜 What are your summer essentials?
💡 Have you discovered any cooling tips that help you?

What’s your number one heat survival tip?

👇 Share your top tips - these could help someone else in the PoTS community!

#LivingWithPoTS #31DaysOfPoTS #PoTSAwarenessMonth #HeatAndPoTS #DysautonomiaAwarenessMonth by @potsuk

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6 days ago

DAY 10 OF 31 DAYS OF PoTS

Compression can be an important part of managing PoTS for some people.

Tell us about your compression!

Share:
- What you use
- What works for you
- How it helps
- Any tips you’ve learned along the way

Whether you’ve found something that works well for you, tried different options or are still figuring out what suits you, we’d love to hear about your experience.

👉 Tell us about your compression.

Remember: what works for one person with PoTS may not be right for everyone.

#LivingWithPoTS #31DaysOfPoTS #PoTSAwarenessMonth #PoTSCompression #DysautonomiaAwarenessMonth by @potsuk

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7 days ago