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DePauw Aphi Alum / Indy
Nager Syndrome
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Thank you DePauw for showing me what true friendship looks like & for making me grow into the person I am today ❤️ taken in DePauw University by @roxyygcooper
89
5 months ago
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HAPPY Craniofacial Awareness Month!!
This month is about celebrating everyone who has overcame the challenges & obstacles that come along with having a craniofacial difference. As you grow up, having this kind of difference in your life may make you more insecure than someone who doesn’t have that challenge, and care what others say about you. I’ve always been the kind of person who doesn’t let that bother me, because I know who I am, but of course sometimes it can get to me.

I recently learned it is Craniofacial Awareness Month and I thought I’d take this opportunity to share with everyone that even with these kind of differences, you can still adapt and grow like any person next to me. 

I’d like to share a bit about my story-
I was born 11 weeks early with a syndrome called Nager Syndrome. This affects my jaw & makes my jaw joint non-functioning (limited opening), my arms/hands (contracted elbows), hearing (bone conducted hearing aids), talking, the way I can eat & breathing. 

When I was born this did not allow me to breathe so I had to have a trach immediately. I’ve had a total of 34 surgeries all relating to Nager Syndrome. I have overcome it all by my determination by adapting to literally everything. I don’t think the doctors I had when I was younger saw me going to college and living independently an hour away from my parents. This just proves that all the hard work & perseverance pays off in the end and my journey still has a long ways to go 🩷 #nagersyndromewarrior #dontjudgeabookbyitscover by @roxyygcooper
98
2 years ago
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Weekending 🪩 by @roxyygcooper
13
16 days ago
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 by @roxyygcooper
0
a month ago
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What more can a girl ask for than her bffs💋💋 by @roxyygcooper
9
a month ago
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Spent 4 days in Lallaland 🍭

Charli Xcx

<<the fit

Queen Oliva Dean

Audrey Hobert 🤸‍♀️

Last day fit

🫶

Cityy

Bring me back to Charli’s performance alr

Party4u

Shawty baes

John Summit felt like a fever dream

😘

Zaraa icon

Can’t rein us in before Oliva Dean 😛 taken in Grant Park Chicago by @roxyygcooper
20
2 months ago
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 by @roxyygcooper
0
2 months ago
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💖👙👛 taken in Bobby Cooper Salon by @roxyygcooper
3
3 months ago
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🪩💃 taken in MUSIC ON THE ROCKS by @roxyygcooper
0
3 months ago
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taken in Positano, Amalfi Coast, Italy by @roxyygcooper
0
2 months ago
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Little sista 👯‍♀️ by @roxyygcooper
0
2 months ago
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Such an euro summer. Wow. taken in Taormina, Sicily by @roxyygcooper
40
3 months ago
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