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SHE Awareness Dystonia

@she_awareness

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Living with Dystonia & Dysautonomia
➡️ education & understanding
Inspired by Life: 30 + years
Unravelling the complexity this incurable brain disease

POSTS STORIES REELS

Multifocal Dystonia presents … 🎥

#dmrf #dystonia #spasticity #pain #thatgirlwithdystonia by @she_awareness

Country Life

#thatgirlwithdystonia #countrylife #horses #oversixty #cowgirl life love by @she_awareness

Excerpt 3
Again, all of these spoke to me.
On the tightness in the stomach, face, and throat. Plus difficulty swallowing.

For those who have been following me, you will have seen the posts / videos me with these issues.

Seeing this kind of detailed footage all those years ago (over 20 years ago) was remarkable to me. I have had this for over 30 years.

#dystoniaawarenessmonth2026 #dystonia #face #tighten #brain by @she_awareness

Excerpt 2
Unravelling the complexity of Dystonia
These symptoms are just like mine

I’m sure there are others who have some similar symptoms if not all of these.

#dystoniaawarenessmonth2026 #dystonia #dmrf #pain #brain by @she_awareness

Excerpt 1
Over 20 years ago, very late one night, I saw this on Amazing Medical Stories. I recorded the whole show. The accuracy of what I was going through was incredible. This explains it well.

#dystoniaawarenessmonth2026 #pain #thatgirlwithdystonia #dystonia #spasticity by @she_awareness

#rom range of motion issues #dystoniaawarenessmonth2026 #multifocaldystonia #dystonia #serratusanterior by @she_awareness

The letters SHE are my initials

#dystoniaawarenessmonth2026 #spasticity #pain by @she_awareness

Referring to the video posted previously:

Here I show an example of how adjustments have been made in an exercise (Pilates) to compensate for the weakness and spasticity in my left arm.

Now I’m having to use the band
Previously I was strong enough to use the cable

#dystoniaawarenessmonth2026 #pilates #spasticity #thatgirlwithdystonia #serratusanterior by @she_awareness

Clearing up first impressions: Arms

When you can’t physically see any issues / illness / spasticity, there is usually something hidden. Some defect 🤪, some lack of ability lurking in this body 🙄 .

The captions are not exact 🥴 despite the fact I’m trying to talk so clearly

#dystoniaawarenessmonth2026 #neurology #spasticity #seratus #arm by @she_awareness

It’s September already 😲
It’s DYSTONIA AWARENESS MONTH

Watch out, I’ll be posting 🙌🏼 for education, understanding and helping to unravel the complexity of Dystonia.

There’ll be new posts, there may be repeats (incase you missed it 😅) Whatever it is, I hope my 30 years of living with it helps you learn a little more.

xo SHE

#dystonia #thatgirlwithdystonia #dystoniaawarenessmonth2026 #dystoniaaustralia by @she_awareness

In line with my part of my chat yesterday

#thatgirlwithdystonia #dystonia #dmrf #chronicfatiguesyndrome #spasticity by @she_awareness

Part 2 of 2

Random chat may help understand this condition

#thatgirlwithdystonia #pain #dmrf #dystonia #larynx by @she_awareness