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@simplyjustchar0

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Living with chronic illness is like carrying an invisible backpack filled with bricks nobody else can see it.
To them, you’re just walking, but you feel the weight with every step. Some days you can carry it farther than others, some days you have to stop every few minutes, some days it’s so heavy that simply getting out of bed feels like climbing a mountain.People might wonder why you’re moving slower today than you did yesterday.What they don’t realize is that the backpack never comes off.Every shower, Every trip,
Every meal you help cook, Every smile you force when you’re hurting.
You’re carrying those bricks through all of it.People assume that because you’ve gotten good at carrying the weight, it must not be that heavy, but strength doesn’t make the load lighter.It just means you’ve learned how to keep going anyway.One of the hardest parts of living with a chronic illness is knowing that every normal moment comes with a price.
Go on a walk? You might spend the next two days in bed.Take a family outing? Expect the flare that follows.Clean the house, grocery shop, make dinner, attend the birthday party…To everyone else, it’s just another day. To you, it’s a sacrifice your body will make you pay for later.People see the moments you showed up.
They don’t see the pain waiting for you when you get home, They don’t see you peeling yourself out of bed the next morning, wondering if those few hours of feeling normal were worth the days you’ll spend recovering.So we make impossible choices every single day, do we live our lives and accept the pain that follows? Or do we protect our bodies and miss out on the memories? Sometimes we choose the pain because our hearts are desperate to live, not just survive.
You aren’t lazy, You aren’t dramatic.
You’re carrying a debt your body collects for every moment you try to live like everyone else.

#chronicpain #potssyndrome #invisibleillness #chronicillness by @simplyjustchar0

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5 days ago

This month has been crazy there's been ups and downs good days and bad days, from early mornings to the late night walks, the nature walks or simply going in garden and seeing beautiful butterflies and ladybirds, the beautiful sunset on my evenings walks, the high heart rate by doing simple things because my pots doesn't like me doing things, to the random drawing I decorate my hand In daily when I am bored, to the horses I saw when I was out walking In the early morning,celebrating my birthday, to the Amazing gifts I got from my friend for my birthday, to picking up reading again and loving reading again. And finally my new background for my phone. What a crazy amazing weird month😅 Looking back, this month wasn't perfect, but it reminded me that even on the hard days, there are still so many beautiful little moments worth holding onto🤍 I wonder what August will bring me👀 here's to another month of being proud I am still here💕

All pics📸:by me
All pics are unedited and the original version.

#me #naturelovers #sunsetphotography #birthday #naturephotography by @simplyjustchar0

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6 days ago

Chronic illness is strange.One day I can clean the house, play with my siblings, make plans, and almost feel like myself.The next day, brushing my hair feels impossible.That’s the part people don’t see.It’s not laziness, It’s not a lack of motivation,
It’s a body that doesn’t keep its promises.I never know what version of myself I’ll wake up to.So I cancel plans last minute, If I prioritise my health over everything, if I say we can make plans that are easier for me. It’s not because I don’t care,
It’s because I’m spending every ounce of energy I have just trying to make it through the day.
Chronic illness teaches you to celebrate things healthy people never have to think about.A shower, a trip to the shop, making it through an afternoon without needing to lie down.Some of the strongest people you’ll ever meet don’t look sick.They smile through the pain, They show up while running on empty, They celebrate the small victories no one else notices.Living with a chronic illness means fighting battles that aren’t visible. It means grieving the life you thought you’d have while learning to find joy in the one you do.To everyone living with a chronic illness:
I see your strength, I see your resilience.
And I hope you know you are never fighting alone.
Some days surviving is the victory. 🤍

#chronicpain #potssyndrome #invisibleillness #chronicillness by @simplyjustchar0

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11 days ago

And people always say "oh your faking it" etc but never see what we battle daily.Living with an invisible chronic illness like POTS means constantly fighting a battle that others cannot see. Because you look completely fine on the outside, people assume you are exaggerating or faking your symptoms. They do not see the invisible numbers on your screen or feel the sudden, exhausting rush of adrenaline that floods your system from a simple, basic movement. To the untrained eye, getting up to grab an item seems effortless, but cardiovascularly, it can mirror the physical toll of a sudden, heavy workout. A heart rate jumping into the 120s from a resting state brings an immediate wave of dizziness, profound fatigue, and intense heart palpitations. Having to continuously navigate these severe fluctuations every time you change positions makes simple daily functioning an exhausting, unpredictable uphill battle. #chronicillness #chronicpain #potssyndrome #invisibleillness by @simplyjustchar0

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12 days ago

I just love nature and the sunsets❤️‍🩹🫶🏻

Pics📸:by me💕

#naturelovers #naturephotography #sunsetphotography #sunsetlovers by @simplyjustchar0

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16 days ago

Recently✨🫶🏻

All the pictures are mine!!

Should I post more posts like this??

#me #naturelovers #sunsetphotography #lifelessons by @simplyjustchar0

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23 days ago

😖😔 #potssyndrome #chronicpain #invisibleillness by @simplyjustchar0

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a month ago

The sky recently has been so beautiful so I am going to share these pictures with you❤️🥰

Pics📸: by me💕

#sunsetphotography #sunsetlover #sky by @simplyjustchar0

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a month ago

Chronic illness can be so lonely not because your alone but because your carrying so much that no one sees and is invisible to others. The pain, symptoms, grief, constant battles that no one gets to see on a daily basis. Also, the cancelled plans, unanswered messages, distancing yourself, wishing your body was normal and healthy again. One day you can feel ok and then the next you can be stuck in bed or worser then the day before or in a flare up. No one sees what people with chronic illness goes through daily and I wouldn't wish this on anyone at all. #chronicillness #chronicpain #invisibleillness #potssyndrome by @simplyjustchar0

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a month ago

It's so draining😔 #potssyndrome #chronicpain #invisibleillness #chronicillness by @simplyjustchar0

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a month ago

The sunset over the past few days❤️‍🩹🫶

Pictures📸: by me❤️

#sunsetphotography #sunsetlover by @simplyjustchar0

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a month ago

No one really talks about how chronic illness or other disabilities etc can affect you mentally and physically. Also how unwelcome you feel due to this because people never understand you and wanna be your friend or in a relationship with you because you are seen as different and weak and always sick etc. Since I've been more open about my health and mental health and my anxiety, depression etc I have lost nearly every friend because I am seen as a problem and a issue. And I know I've done a similar post on this before but I feel like If I am more open about this am hoping more people can relate and be more open about it too. I've noticed changes in my body and the way I feel etc daily and how much my future is affected because of my health. People think having a chronic illness and other disabilities is just fun and games but they don't see the bad side of things on a daily basis, the days where we are in a bad flare up but still pulling through and acting like everything is ok. The days where we are so exhausted but keep pushing g through the best we can and so much more. This isn't easy but hopefully one day there is some positives and not always negatives💔 #potssyndrome #chronicpain #invisibleillness by @simplyjustchar0

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2 months ago