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Solve ME/CFS Initiative

@solve_cfs

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Our Mission: Make ME/CFS, Long Covid and other post-infection diseases widely understood, diagnosable, and treatable.

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Solve is pleased to announce that Emily Taylor, Vice President of Advocacy and Engagement, has been appointed as President and CEO. Emily has been a key member of Solve’s leadership team for more than eight years and played a critical role in securing $1.25 billion RECOVER NIH funding for Long Covid research.

Solve Board Chair John Nicols states, “We congratulate Emily and look forward to her leadership.”

Emily succeeds Kristin Jacobson, who resigned after recently returning from a medical leave of absence. Kristin will continue to support Solve in the role of Advisor. “We want to thank Kristin for her valuable contributions, and we look forward to continuing to tap into Kristin’s strategic insights,” adds John Nicols. “It has been an honor to serve as Solve’s CEO, leading one of the most skilled and dedicated teams I have worked with in my career, Kristin says. “I will remain engaged in the field to help address what I believe is the most pressing public health emergency of our time.”

Emily serves as a policy and advocacy advisor, fostering critical partnerships with members of Congress and federal agencies to amplify the voice of those with ME/CFS, Long Covid, and infection-associated chronic conditions on Capitol Hill.

Emily says, “I came to Solve looking for answers when my mother got ME/CFS, and now I am honored to lead Solve’s impact on improving the lives of patients.”

Please join us in congratulating Emily on her appointment. We look forward to our exciting journey ahead under Emily’s dynamic leadership!

Read the full announcement at the link in our bio.

https://ow.ly/1pkQ50RaKNT by @solve_cfs

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2 years ago

We are excited to launch our new patient-centered data platform, Solve Together!

This platform brings extensive advantages to both the #MECFS and #LongCovid patient communities and researchers. Fully accessible by smartphone, participants can track symptoms, connect wearables, download reports for doctor visits, link electronic health records, and expend less time and energy on participation through short, infrequent surveys and passive data collection.

Join at the link in bio today! by @solve_cfs

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3 years ago

Solve M.E. continues to make significant strides toward finding treatments and cures for post-infection diseases — all thanks to your continued support. We're leveraging our legacy and successes in the #MECFS space to help the ever-growing #LongCovid community.

Please help us find relief for the millions who struggle daily by making a donation to Solve today. Visit solveme.org/donate by @solve_cfs

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3 years ago

Our IVO-21 webinar with Dr. Jay H. Chung was recently featured in Health Rising!
Read the full article to learn more about the research supported through Solve's Catalyst Award: https://ow.ly/232n50ZSnHR
Watch the webinar: https://ow.ly/5vTt50ZSnHY
#MECFS #ChronicFatigueSyndrome #IVO21 Dr. Jay H. Chung from NIH featured in Solve M.E. webinar on IVO-21 as a mitochondrial drug for ME/CFS, with 11K+ YouTube views and coverage in Health Rising. by @solve_cfs

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21 hours ago

On October 20th, Solve M.E. is bringing our community together for the 2026 Community Address: Shaping What Comes Next, a live conversation about how we are thinking about science and advocacy as we approach the midterms, and your role in what comes next.

For two years, this community has been playing defense, protecting federal programs and holding the line while research funding and the agencies we depend on were pulled apart. But holding the line was never the goal. With a new Congress ahead, we are planning to make the most of the opportunity to rebuild the research infrastructure this field runs on; and to make sure ME/CFS and associated conditions are part of that rebuild instead of left out again.

Join President & CEO, Emily Taylor, VP of Scientific Programs, Jessica Maya, PhD, Chief Scientific Officer, Sadie Whittaker, PhD, and Director of Advocacy, Monique Wike, as we lay out the plan for the year ahead and talk about your role in it.

🗓 Monday, October 20 · 1 PM PT / 4 PM ET
Live on Zoom · Recorded & live-captioned

Register at the link in our bio. Webinar announcement for Solve M.E. 2026 Community Address on Oct 20, featuring four members of Solve's leadership team discussing research and advocacy. by @solve_cfs

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4 days ago

Remember that Office of Management and Budget Guidance for Federal Financial Assistance that we are all still pushing back on (we’ve gotten it delayed through December 11th)? There’s a follow-up action that we need to draw your attention to. The administration is trying to do a lot of the same things to the NIH grant process, utilizing a different mechanism.
For our community, NIH-funded research is the bridge between indefinite suffering and progress on treatments.
Reports indicate the administration is drafting an executive order that would let an outside committee review NIH grants on political grounds rather than scientific merit. For the millions living with ME/CFS, Long COVID, and other complex chronic diseases, that’s a real concern.
Giving political appointees the power to override expert scientific review risks shifting funding decisions away from science. It adds new barriers and delays when patients can least afford them.
Patients have already waited long enough.
Full statement at the link in our bio.

Want to get involved? Use the toolkit at the link in our bio to contact your Members of Congress and tell them to protect merit-based science at the NIH.
#MECFS #LongCOVID #MedicalResearch #NIH #ChronicIllness PatientAdvocacy by @solve_cfs

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8 days ago

Today is the last day to comment on a proposed reorganization by the National Institute of Allergy & Infectious Diseases (NIAID) that would eliminate its Div. of Clinical Research--the infrastructure behind clinical trials.

Learn how to share your own comments at the link in our bio. Urgent alert about NIAID's plan to break up its Clinical Research Division, with a public comment deadline today, Sept 18. by @solve_cfs

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11 days ago

Living with ME/CFS, Long Covid, and related complex chronic conditions can make it difficult to explain how you're feeling or to know whether a treatment is truly helping. Symptoms like pain, fatigue, brain fog, behavior changes, and post-exertional malaise (PEM) can fluctuate, making it especially challenging to remember and communicate what has changed between medical visits.

That's where tracking your health over time can help.

The unhide® real-world data platform uses validated health surveys to collect detailed information about your health over time, and makes it easy to visualize a large amount of information at a glance. Using the data from unhide®, patients can better recognize patterns and trends to support conversations with healthcare providers.

Join us on Tuesday, Sept. 22 at 3 pm PT/ 6 pm ET for a free webinar with host Solve CSO Dr. Sadie Whittaker and panelists from @BrainInflCollab and the unhide® research team. They’ll discuss how unhide® helps patients, caregivers, and healthcare providers consistently capture, share, and learn from health data and lived experiences.

Register at the link in our bio.

#MECFS #LongCovid #ResearchMatters #unhide Flyer for a Brain Inflammation Collaborative event on Sept 22 about using Unhide to visualize health trends with expert speakers. by @solve_cfs

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11 days ago

Deadline tomorrow!

NIAID has proposed eliminating its Division of Clinical Research — the behind-the-scenes infrastructure (clinical trial design, biostatistics, safety monitoring) that carries a discovery from the lab into treatments people can actually access. It’s also the home of RECOVER-TLC, the current round of NIH’s Long COVID treatment trials.

The public comment window is only five days, and the full details went up only as it opened. A change this consequential deserves real time to review — and our community has too much riding on these trials to let it move in the dark.

You can help in about two minutes:
1. Go to niaid.nih.gov/about/niaid-organization-dcr
2. Scroll down and click “Leave a comment”
3. Write a sentence or two, then Submit

**Deadline: Friday, Sept. 18**

Suggested wording + Solve’s full public comment at the link in our bio.

#MECFS #LongCOVID #MECFSResearch #LongCovidResearch #NIH Solve M.E. action alert on a deep teal background. Headline: Take action by Friday. Text: NIAID has proposed eliminating its Division of Clinical Research, the infrastructure behind clinical trials, on a five-day comment window. Comment by Sept 18. by @solve_cfs

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12 days ago

Take action by Friday, September 18.

NIAID has proposed eliminating its Division of Clinical Research — the behind-the-scenes infrastructure (clinical trial design, biostatistics, safety monitoring) that carries a discovery from the lab into treatments people can actually access. It’s also the home of RECOVER-TLC, the current round of NIH’s Long COVID treatment trials.

The public comment window is only five days, and the full details went up only as it opened. A change this consequential deserves real time to review — and our community has too much riding on these trials to let it move in the dark.

You can help in about two minutes:
1. Go to niaid.nih.gov/about/niaid-organization-dcr
2. Scroll down and click “Leave a comment”
3. Write a sentence or two, then Submit

Deadline: Friday, Sept. 18.

Suggested wording + Solve’s full public comment at the link in our bio.

#MECFS #LongCOVID #MECFSResearch #LongCovidResearch #NIH Solve M.E. action alert on a deep teal background. Headline: Take action by Friday. Text: NIAID has proposed eliminating its Division of Clinical Research, the infrastructure behind clinical trials, on a five-day comment window. Comment by Sept 18. by @solve_cfs

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14 days ago

Researchers at Family Health Centers of San Diego (FHCSD) are looking for patients who have been diagnosed with or have signs and symptoms of Long COVID to participate in a treatment study titled LC-Revitalize. Participation spans 6 months and includes 8 visits (6 in-person at a San Diego based clinic). If you are interested in participating or want to learn more, contact the FHCSD study team at longcovid@fhcsd.org or at (619) 324-8677. Informational flyer for a Long COVID clinical research study by Family Health Centers of San Diego seeking adults aged 18-65 with Long COVID symptoms for a 6-month study. by @solve_cfs

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18 days ago

ICYMI: Watch the recording of our webinar with Dr. Jay H. Chung re: his Catalyst Award-winning study of the mitochondrial stabilizer IVO-21 as a therapy for #MECFS.

Watch at the link in our bio.

#MEAwarenessHour #MECFSResearch #MEResearch Portrait of Dr. Jay H. Chung from NIH and Jessica Maya, PhD, VP at Solve M.E., promoting the recording of the Solve webinar re: IVO-21 study on ME/CFS treatment. by @solve_cfs

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20 days ago