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Spina bifida Awareness Hub

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🧩 Spina Bifida Awareness Hub
💬 Real talk • facts • everyday life
📚 Learn • Ask • Understand
💙 Making Spina Bifida easier to talk about

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Meningocele Explained 🧩 | The 2nd Type of Spina Bifida #SpinaBifida

🧩 Did you know that spina bifida can cause a fluid-filled sac to form on the back?

Meet **Meningocele**,one of the three main types of spina bifida!

In meningocele,the protective membranes around the spinal cord push through an opening in the backbone,forming a sac. The spinal cord usually stays inside the spinal canal.

Every person's experience can be different,and understanding the condition helps spread awareness. 💙

📚 Follow **Spina Bifida Awareness Hub (SBA Hub)** for simple explanations of spina bifida,one episode at a time!

💬 Had you heard of meningocele before watching this Reel?

#spinabifida #meningocel #spinabifidatalk #birthdefectsawareness by @spinabifidatalk

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3 days ago

Spina Bifida Occulta: The Hidden Type 🧩 | Did You Know?

It’s called spina bifida occulta — and “occulta” means hidden.

Unlike open forms of spina bifida, there’s no external fluid-filled sac on the back. Instead, there’s a small difference in the formation of the bones of the spine, while the skin remains intact.

And here’s the surprising part: many people with spina bifida occulta have no symptoms at all and may only discover it during an imaging test for another reason.

Sometimes, there can also be skin clues over the lower back, such as a small dimple or patch of hair.

🧩 Hidden doesn’t mean everyone experiences it the same way.

Follow Spina Bifida Talk for more simple, friendly facts about spina bifida and spinal health.

#spinabifidatalk #spinabifida #spinabifidaawareness #spinabifidaocculta by @spinabifidatalk

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a month ago

3 Types of Spina Bifida Explained 🧩

There isn't just one type of Spina bifida. 🧩

The major forms include Spina bifida occulta, meningocele, and myelomeningocele — and they can affect people very differently.

In this episode, we're breaking down the basic differences so you can understand what makes each type different.

And here's the important part: the type, location, and nerves involved can all influence how Spina bifida affects someone.

So don't assume that everyone's experience is the same. 💙

🎬 Season 1 • Episode 3
🧩 Spina Bifida Awareness Hub
💬 Spina Bifida Talk

Which type would you like us to explain in more detail? 👇

#spinabifidatalk #spinabifidatypes #myelomeningocele #meningocele #spinabifidaocculta by @spinabifidatalk

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2 months ago

How does Spina bifida happen?

Okay, we know WHAT Spina bifida is… but HOW does it actually happen? 🤔🧩

It starts incredibly early in development, when the neural tube is forming.

But here's the interesting part: there isn't one single cause. Research points to a combination of genetic, nutritional, and environmental factors.

And yes, folic acid is an important piece of the puzzle — but Spina bifida is much more complicated than simply saying “it happens because of a lack of folic acid.”

So… now you know a little more about how it happens. 👀

But what are the different types of Spina bifida?

That's next. 🧩💙

🎬 Season 1 • Episode 2
Spina Bifida Talk

#spinabifidaawareness #SpinaBifidaTalk #disabilityawareness #neuraltubedefects by @spinabifidatalk

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2 months ago

Did you know Spina bifida can develop really early in pregnancy? 😳🧩

Before many people even know they're pregnant, the neural tube is already developing and that tiny structure eventually becomes the brain and spinal cord.

But what happens when the neural tube doesn't completely close?

That's where Spina bifida comes in.

And trust me… this is just the beginning. 👀

**Season 1 • Episode 1**
Welcome to Spina Bifida Talk. 💙

Follow @SpinaBifidaTalk for more simple, casual Spina bifida awareness.

#spinabifida #spinabifidaawarenes #SpinaBifidaTalk #disabilityawarenes #neuraltubedefects by @spinabifidatalk

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2 months ago

🧩 Welcome to the conversation.

Spina Bifida is a part of life for many people, but it doesn't have to be something we only talk about in medical terms.

This page is about awareness, real-life experiences, simple explanations, questions, facts, and everyday conversations around Spina Bifida.

No pity. No complicated jargon. Just real talk, awareness, and a place to learn together. 💙

If you're curious, you're welcome here.

#spinabifida #spinabifidaawarenes #disabilityawarenes #disabilitycommunity #awareness by @spinabifidatalk

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2 months ago