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alexis to

@alexis.to_

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PA | University of South Carolina

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let’s catch up!

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Gamecock for the weekend

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Always a good time in CHS!☀️🌊🦀

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can’t stop having fun!!😆🤸🏻‍♂️

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in need of a nap 😴✌️🤸‍♀️

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Me my friends and I 🍸🍸

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Best time🇺🇸⭐️

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Weekending 🫐🇺🇸🌟

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Thank you chris

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Coastin

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Little catch up

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Finally reunited with my people!!! The house has been full 24-7 & my heart is even fuller. I am not good by any means but we are in communication with Dr Henderson.

I have been having episodes of trouble breathing which then makes talking difficult which we think is due to MCAS reactions (because of EDS). We hope that with meds that will be under control soon. On top of it the severe severe headaches are present & crippling still with the vision changes. My neck seems to be improving thank god. My arms are on fire which we think is due to my loose shoulders pulling on nerves & possibly TOS. We have a lot to figure out, but I have an incredible team.

Dr H has ideas, is talking to multiple doctors, & will be in touch. We will talk to him soon to come up with a plan. In addition, my team has my back & some ideas to make me feel better. We’ll keep you guys posted. 💌💌

My people sit here holding my hands. Run grabbing ice for my head. They do anything and everything. They have a front row seat at how much of a nightmare this is, but never leave. We cherish every moment together because we know how it feels to be apart and have all the meaningful conversations about this journey, life, and purpose. I’m learning not to fight against gods timeline because his is different & greater then mine.

A wise mentor of mine & I determined to look at steps backwards just as important as steps forward because they both lead us to where we’re meant to be. Those steps backwards will actually just make the victory that much greater.💜It’s not just me against EDS, it’s an army of us!!!!

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