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Ana E. Lara

@ananapz

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🌟 These #narcolepsy awareness-raising superstars are shining bright in this year's #WorldNarcolepsyDay gear!

📸 We love seeing your photos! Snap pics in your new gear or in this year's virtual photobooth, then post to social media using #WorldNarcolepsyDay and tag Project Sleep!

💕 Thank you for all of your incredible support and advocacy as we approach #worldnarcolepsyday2023 on September 22.

🔗 in bio to learn more about World Narcolepsy Day, get involved, use the virtual photobooth, and purchase tshirts!

#narcolepsyawareness #invisibleillness #endstigma #stigmafighter #chronicillness #neuroscience #neurology #neurologia #narcolepsia

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✨ONE MONTH✨ til #WorldNarcolepsyDay!!
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📢 Ready to STEP UP your #narcolepsy awareness efforts? Eager to SHOUT IT OUT from rooftops?!
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💯 Become a ✨World Narcolepsy Day Ambassador✨ with Project Sleep to join a group of amazing advocates dedicated to raising awareness and funds to build a brighter future!
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Ambassadors receive their own awareness toolkit & get invited to an exclusive online WND Rally Party!!
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💕Sign up & learn more via 🔗 in our bio.
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P.s.- Our Ambassadors ROCK!! 💫

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🎧 Listen now! Ep. 3 - Becoming a Narcolepsy Advocate with special guests, Ana Lara & Matt Horsnell, is available wherever you listen. Swipe for snippets of what Ana and Matt have both respectively learned on their advocacy journeys!
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📣 In this episode, we are joined by two incredible narcolepsy advocates, Ana Lara (@ananapz) and Matt Horsnell (@mhorsnell). Together, we discuss the power of YOUR story and break down #narcolepsy #advocacy into three categories: self-advocacy, raising your voice publicly, and legislative advocacy.
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🎙️ The Project Sleep Podcast, hosted by Julie Flygare (@remrunner), aims to improve public health by educating individuals about the importance of sleep health, sleep equity, and sleep disorders.
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🔗 in bio to listen to Ep. 3 - Becoming a Narcolepsy Advocate
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🗣️ Please remember to like, share, subscribe, and review our podcast wherever you listen. We can't wait to hear what you think and your engagement will help us reach more listeners and raise more awareness.
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#ProjectSleep #SleepHealth #SleepEducation #SleepAwareness #SleepDisorder #Narcolepsy #SleepPodcast #NewPodcastAlert #HealthPodcast #JulieFlygare #Sleep

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Me on this week’s podcast episode talking about wanting to get involved with @project_sleep

I’m talking about Project Sleep’s President and CEO, Julie Flygare @remrunner

I interviewed Julie on episode 22 of my Sleep Apnea Stories podcast 👆link in bio👆

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From the moment Julie and Project Sleep announced the podcast I was looking forward to this episode’s release.
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Sharing the gospel of narcolepsy advocacy alongside these two was an awareness highlight!
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Reminder: YOUR voice has the power to transform lives and reduce time to diagnosis!
The only requirement is to speak/write/share your story.
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Advocacy comes in all varieties: public, private, legislative, familial, etc. The common thread is your voice.
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I’ve been featured on @ProjectSleep’s podcast! Listen now to Episode 3 - Becoming a Narcolepsy Advocate where Julie Flygare (@remrunner), Ana Lara (ananapz), and I discuss the power of YOUR story and break down #narcolepsy #advocacy into three categories: self-advocacy, raising your voice publicly, and legislative advocacy.
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Link in Project Sleep's bio to listen to Episode 3 - Becoming a Narcolepsy Advocate.
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#ProjectSleep #SleepHealth #SleepEducation #SleepAwareness #SleepDisorder #Narcolepsy #SleepPodcast #NewPodcastAlert #HealthPodcast #JulieFlygare #Sleep
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#worldsstrongestpersonhavingnarcolepsywithcataplexy #narcolepsyawareness #narcolepsynotalone #cataplexy #narcolepsywarrior #yourvoicematters

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Congratulations ❤
cosmosofwriters featured poet/writer
✨ @ananapz
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For a feature on our page and story follow and tag #cosmosofwriters
Engage with the team members.
Appreciate the writers featured by liking and commenting.
Participating enthusiastically in prompts organised.
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#poets #poetsofinstagram #writersofinstagram #poetry #writers #poetrycommunity #poetscommunity #words #igwriters #writersofig #writerscommunity #poem #poems #poetryofinstagram #writing #communityofpoetry #communityofpoets #poetryofig
#poetryisnotdead #poetssociety
#poetryisalive #wordporn #wordsofwisdom #poetryislove #poemsofinstagram #poetsoftheworld #quotes

Curated by @arcane.verses ✿

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Give us a 💗 if this resonates... and follow @ananapz for more amazing poetry!
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😻 We're crushin' on our own toolkit! Loving Ana’s powerful #brainfog poem highlighted on pg. 19.
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➡️ Link in our bio to read, download or print the full toolkit. Watch the broadcast video on IGTV, YouTube or Facebook.
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🤓 #NarcolepsyNerdAlert series invites fellow #NarcolepsyNerds to explore aspects of the #narcolepsy experience, contemplate bold questions, and learn from each other.
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⭐️ Next Live Broadcast on FRIENDS + FAMILY + NARCOLEPSY this Wed. 4/28 at 1pm ET. You won't want to miss this discussion!
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[Caption: text reads:

BRAIN FOG

Open the door, like I did once
before.

Nothing's new or has changed,
just the thoughts in my brain.

I'm confused, let's rewind, lost my
moment in time.

Will I finish my tasks, while my mind
feels detached?

- Ana E. Lara @ananapz]

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Check out some of the poetry from @ananapz and don’t forget to check out the link in bio
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#hispanicfood #hispaniclife #hispanicheritage #hispanicheritagemonth #hispanicwomen #hispanicbaby #hispanicmodel #hispanicpride #hispanicbelike #hispanic #prehispanic #hispanicmemes #hispanics #hispanicmomsbelike #latinooutdoors #latinoart #latinoamericanart #idlatino #fotografos_latinoamericanos #latinosentoronto #latinoartist #artelatinoamericano #latinosencanada #hiphoplatino #latinosenorlando #millonariolatino

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Showcasing writer and poet Ana E Lara and some of her work @ananapz 🙌 check out our link in bio for her full interview!
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#hispanicfood #hispaniclife #hispanicheritage #hispanicheritagemonth #hispanicwomen #hispanicbaby #hispanicmodel #hispanicpride #hispanicbelike #hispanic #prehispanic #hispanicmemes #hispanics #hispanicmomsbelike #latinooutdoors #latinoart #latinoamericanart #idlatino #fotografos_latinoamericanos #latinosentoronto #latinoartist #artelatinoamericano #latinosencanada #hiphoplatino #latinosenorlando #millonariolatino

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Please read and share today's #nationalpoetrymonth spotlight on poetry by Christopher @strayd0gsart @straydogsrecovery!
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Meet the poet:
“My name is Christopher and I was diagnosed with type 2 #narcolepsy a year into my university degree. I was depressed, and so tired all the time I knew it wasn’t normal, but all my doctors just said it was depression. No one ever thought to give me a sleep study, until I asked for one. I thought I had sleep apnea, but found out I had narcolepsy. It was a surprise to everyone, including me. All those years growing up, where I had just thought I was lazy, made sense. I was given stimulants for the next couple of years, but they only half-worked or I built a tolerance to them. I was still severely disabled because of my narcolepsy, and couldn’t keep up with school. Last year I finally asked to be referred to a doctor who could prescribe me a nighttime medication, and I did another sleep study to confirm my narcolepsy. This time they said I had type 1, as cataplexy was not explained correctly to me the first time, and things started to make more sense again. Right now I am still going to school, but I am waiting for coverage to take the nighttime medication, and hopefully that will improve my quality of life.“
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Cansado
Estoy muy cansado
Yo veo otros estudiantes
Estudian para sus clases
Son trabajadores
Mientras yo duermo en la cama
Tengo miedo
De vivir
Yo no quiero ser así
Pero
Este es cómo es
Estoy muy cansado:
…Cansado de estudiar
…Cansado de despertar cada día
…Cansado de vivir
…Cansado de hablar de esto
Quisiera:
…Estudiar
…Trabajar
…Vivir
…Hablar como si nada estuviera mal
Pero estoy cansado
Nunca termina
Yo nunca descanso
Porque yo no aprendo
Cómo vivir.
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About the Poem:
My Spanish is limited, but I created this poem when I was feeling very down about my narcolepsy and school.
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Curated by @ananapz

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🥁 Drumroll please...
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🎶 THANK YOU ALL for submitting your favorite wakeful and peaceful songs over this past week!
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💗 @chronicallypersevering has been hard at work creative two official #SleepIn2021 Spotify playlists compiling your suggestions!
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Link to☀️wakeful songs☀️ and 🌜peaceful songs🌛 playlists via the links in our stories and linktree in our bio.
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🎼 🏆 We couldn’t tag everyone who contributed in post, so listing below: @dettibecz @nappingkati @ananapz @trackie_chica @ktmarieoc @hayleymatheson @lmbrack @zralev @sabrina_meinkleinalaska @mhorsnell @lissl_ho @thenapcave @beautifultomboii @maggie_monreal @camerongates48 @lmt826 @michellezagardo @bimpse @hetrick002 @fimail70 @emilydav.is @falling_asleep_elle @southern_dreamer4 @dreamergee07 @missjaimesue @eilis_arch @karmacloud9 @ericahilaryh @zralev @alexacuevase @life_with_becca @sleepdocshelby @ms.elenaann @cpapbabes @herlastrecord @linda.ferguson.96387 @jennho888 @chronicallypersevering @remrunner @alicialaurenbishop @allio10 @madamnit @dettibecz @emilydav.is

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