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Michael Brooks

@brooksmeatswift

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It’s not just a Norris thing… it’s a whippet thing…

#Norris #landonorris #whippetsofwindsor #whippetsofinstagram🐾❤️🐾 #whippet

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Winter is coming… you know nothin…

#Norris #whippet #snow #whippetsofinsta #macbrooks

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Bespoke cups for @brooksmeatswift 's gorgeous girls 💚💖

Your sign that anything and everything can be personalised to your vision 😍

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A surprise visit to spend time with my girls for hugs, piggy backs, a walk to The Secret Garden & of course star jumps!

Lindsay & Michael thank you for such a wonderful afternoon. It was so lovely to see you all 🥰

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𝗦𝗽𝗼𝗼𝗻𝘀𝗲𝗿𝘃𝗲
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I’m not sure if this word exists in the MEpedia or MEverse or Spoonie community but I’m coining it and claiming it in the name of Gibraltar 🇬🇮
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#spoonserve #spoonserves #spoonserving #spoonserved #taylorswifterastour #taylorswiftwembley #ME #CFS #spoonie #invisibledisability #chatwithmepodcast #LearnFromME #countMEin #blog #parentingwithME #millionsmissing #chronicillness #warrior #invisibleillness #spoontheory #decodeme #decodemestudy #butyoudontlooksick #myalgicencephalomyelitis #myalgicencephalomyelitisawareness #pwME #longcovid

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Thank you to all who helped to raise awareness at Aurora’s school, by allowing the ‘Go Blue For ME’ day to happen - to all who dared to ask what M.E. is - to Aurora who tried to say Myalgic Encephalomyelitis (almost had it too) - to all the parents and carers for sending their littlies in in blue and to those who sent in the pics
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And of course Aurora, who loves standing up in front of the school and telling them what it’s like to have to live through this on a daily basis 🩵🩵🩵

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𝐖𝐡𝐚𝐭 𝐢𝐬 𝐌.𝐄.?
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This is an intriguing question as it’s quite a complicated answer when you dissect the condition
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To simplify it: it’s a complex chronic and neurological disorder that effects multiple body systems
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Often triggered after a viral or bacterial infection in which the people seem to never fully recover
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It has a vast array of symptoms (which will be covered this week) which can be triggered or worsened by any form of effort or activity - especially if you push yourself
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ME is a fluctuating disease in that the symptoms can be ever present, they can ease, then worsen again. Relapses happen that make you worse. Some patients don’t even get the relief of fluctuations; they are constantly sick and quite often bed or house bound
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ME disrupts the lives of those with it, and the family watching on or often caring for the patient. Even if you have mild ME, you may be able to hold down a job or manage education - it unfortunately leaves you incapacitated afterwards and requiring a full weekend of sleep or rest to go again
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Each case is different also, so although the symptoms can mirror each other - each person suffers in their unique way making it really hard to treat or manage
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No cure or diagnostic test as of yet (though with research such as DecodeME, it could be closer) but the NICE guidelines now have clearly determined a clear diagnostic requirement to be diagnosed with ME
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Also to note, Long Covid patients are now falling into the diagnostic requirements for ME/CFS

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💪What does 'strength' mean to you in the context of ME/CFS? Has your relationship with the idea of strength changed through time?

Using your smartphone, or any device you choose, capture a photo for our photography challenge #MEInFocus to showcase the incredible strength of the ME/CFS community. Here's how to take part:

1. 📷 Capture a photo which represents *strength* to you

2. ✍ Write a caption

3. 📧 DM us the photo and caption, or email to nuracommunity@gmail.com

4. 📤 Share this post to your stories, and use the hashtag #MEInFocus to raise awareness

#longcovid #longcovidawareness #mecfs #myalgicencephalomyelitis #postexertionalmalaise #postviralfatigue #fatigue #pandemic #covid #community #patientvoicesmatter #invisibledisability #invisibleillness #spoonie #coronavirus #millionsmissing #mecfs #mecfsawareness #chronicfatiguesyndrome #myalgicencephalomyelitis #pots #chronicpain #chronicallyill #mecfsawareness

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Join our growing community of people with Long COVID, ME/CFS and related conditions like POTS, MCAS and fibromyalgia.

Connect with others who get it, learn more about your illness and find camaraderie with like-minded people. Chronic illness is hard. Finding support shouldn't be.

Link in bio. Join for free today.

#longcovid #longcovidawareness #mecfs #myalgicencephalomyelitis #postexertionalmalaise #postviralfatigue #fatigue #pandemic #covid #community #patientvoicesmatter #invisibledisability #invisibleillness #spoonie #coronavirus #millionsmissing #mecfs #mecfsawareness #chronicfatiguesyndrome #myalgicencephalomyelitis #pots #chronicpain #chronicallyill #mecfsawareness #POTS #mcas #fibromyalgia

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ɴᴇxᴛ ᴇᴘɪꜱᴏᴅᴇ ʟᴏᴀᴅɪɴɢ…
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Alice from @smileforme invited me to write my story for their site; I was honoured to be asked and could f say no
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I had 3 months to pen it and it will be ready for your eyes on Tuesday (links provided on the day)
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As an extra, for those that can’t read with cognitive difficulties that come with M.E. I have recorded an episode audiobook style, so if you can manage to listen or find it easier - you have two mediums to choose
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Podcast will follow on Thursday
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#chatwithme #chatwithmepodcast #smileforME #mystory #episode9 #season2 #LearnFromME #countMEin #blog #parentingwithME #millionsmissing #ME #CFS #Relapse #PostExertionalMalaise #PEM #spoonieandparenting #chronicillness #invisibleillness #spoontheory #decodemestudy #butyoudontlooksick #aches #pains #dizzy #sensitivity #brainfog #myalgicencephalomyelitis #myalgicencephalomyelitisawareness #pwME

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