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@chiefchuck1

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Big time activity guys!!! 🚁⛳️⚽️🤿 🎳

Happy early Father’s Day, Chief. Until next time.

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What a decade it was, cheers to the next being even better. #30

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Hell of a time this weekend celebrating Chief and Americas birthdays together. 🇺🇸⛳️

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Today is TSC Global Awareness Day💙
I thought it was fitting to get our picture by the beach because the symbol for TSC is a wave.
It symbolizes:
🌊how each TSC warrior is uniquely affected by the disease, yet strong and resilient in their own way.
🌊the endless waves of EEG, EKG and vitals.
🌊the waves of grief, sadness and anger.
🌊the constant highs and lows of this disease.
🌊how some waves (stressors) are small and manageable… while others have you begging for release under the constant pressure.
🌊when you think all is calm; TSC has a way of shaking things back up.
🌊there is always the promise that there will be calm after the storm.
🌊the wave is a tribal symbol- representing the tribe of moms fighting alongside their warriors.
Thank you to everyone that donated to #Cure4Cole through the TSC Alliance. Every single dollar makes a difference and gets us one step closer to finding a cure.
#tsc #tuberoussclerosiscomplex #tscalliance #tscglobalawarenessday #stepforwardtocuretsc #raredisease #epilepsy #tuberoussclerosis #advocatelikeamother

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So much to be thankful for today, and everyday 🤍

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Cheers to everyone that made my 28th a damn good time.

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First West coast round in the books. Glad you could make it out pops. Safe travels back home ✌🏼

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62 years later, Chief got to see the Grand Canyon in person. So of course i had to drag him off the trail onto this cliff to capture the moment. He was a trooper.

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🎶 All my bags are packed I’m ready to go, I’ll see y’all out, in San Diego 🎶

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Happy Father’s Day to the man, the myth, the legend, Chief Chuck. Not going to lie, There are very few things I’m going to miss leaving Baltimore in the next few weeks, but you are definitely at the top of the list. Love you padre.

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