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Working together throughout BC to educate, support, and enhance the lives of children, youth, and families living with congenital heart disease. #CHN
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This week we’ll get another look at Charlie’s heart. ❤️‍🩹

On Thursday, he has his first echocardiogram since June 2025.

When people meet Charlie now, they almost always say the same thing:

“He looks so good.” or, “You’d never know.”

And they’re right. He does look good. He’s beautiful.

He’s healthy. He’s growing. He’s getting stronger.

But there is a strange reality that comes with raising a child with congenital heart disease:

The outside doesn’t always tell the whole story.

While it’s an incredible blessing that Charlie looks so healthy, we only get to see his heart once a year.

Thursday is that day. 

As grateful as I am, I’d be lying if I said I wasn’t nervous. Some parts of this journey never quite leave you.

If you’re the praying type, we’d be so grateful for prayers for a healthy heart, that things remain stable and a reassuring appointment this week. 🙏🏻

I also shared a more personal reflection on what this annual echo means to our family over on Substack. The link is in my bio if you’d like to read the full story. 🥹🫶🏻🤍
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