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Elle

@endoaide

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🎗️stage 4 endo diva
🦋 a safe space for awareness and discussion of all things endometriosis + chronic illness 🌈🫶🏻
💌 [email protected]

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The October slide is so real, along with stress, bereavement and general grumpiness, it’s been a bit tough. But on the plus side it’s starting to get cold enough to start having baths!

Trying to be kind to myself, my body and my brain 🧚

🌷 @theclaycure Epsom salts
🌷 @star_child_glastonbury bath oils

Let me know what your bath essentials are!

#bathtime #relaxation #octoberslide #selflove

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I think sometimes with dynamic disabilities, there’s a misconception about what we can and can’t do. Sometimes I make plans, and I’m able to do them, sometimes I can’t. I can also plan and pace and do everything in my power to make sure I can attend said plans, but that doesn’t guarantee I’ll be well enough to do them.

And of course there are days where I’m well enough to do things, or I’ve planned accessible alternatives. But I really don’t know until it’s happening. Because I may get to something and then have a flare up!

But being chronically unwell doesn’t just stop because there’s something important happening. When there’s a birthday, event, wedding, or another important moment in my life or friends or families life, I feel consistently anxious about it until it happens and is over.

I want to be able to say, yes 100% I’ll be there, or I’ll be there and give it all my energy. But I can’t, I can say it but I don’t know for sure that I’ll be able to. And that sucks for me and it sucks for them because it’s like I’m letting them down.

This affects every aspect of our lives as people with chronic illness/pain. Work, friendships, family, hobbies, social life, the list goes on.

Nothing inspirational to add here. It sucks, and I’m grumpy about it as my Endo is getting worse, and my chronic fatigue is getting worse. I’m also due on so I’m EXTRA moody about it.

🌷 Oura Ring 4 @ouraring

#ouraring #chronicillness #dynamicdisability

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☀️Sunny Saint Marys in Penrith, Sydney’s West … I spent a few hours around Queen Street having a long awaited coffee catch up with my fellow Romanian bestie today AND promoting next Saturday’s WESTERN SYDNEY ENDO CIRCLE 🎗️

🌼Join us on the 5th September for a family-friendly spring day:

🌿🌷🌿THE SPRING FESTIVAL 10:00 AM - 3:00

There will be food trucks and entertainment for the partners and young ones, whilst you can join me and other endo patients down the street for a two hour educational support group.

🎗️🌻📚ENDO CIRCLE:

📍William Garner Room, Saint Marys Library

⏰2:00 - 4:00 PM

🎟️FREE TICKETS

🔗LINK IN BIO TO REGISTER

🙏🏻Thanks to the lovely businesses who took flyers to help promote the WESTERN SYDNEY ENDO CIRCLE:

🌻The A-Z of Endo SYMPTOMS

🗓️Saturday 5th September

NEXT

📣Self-Advocacy: How to talk to your doctor without being gaslit

🗓️ Saturday 12th September

#endo #endometriosis #penrith

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Remember that surviving each day and managing chronic pain / chronic illness, takes every ounce of energy that I have.

Next time you feel tempted to ask someone why they aren't working, consider that they might be fighting a battle just to make it through their day. 💛

#endometriosisawareness #endometriosis #chronicillness #spoonielife #adenomyosis

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From the inside of a hospital room looking out.
I’ve lost count of the admissions, surgeries, procedures.
The tidal waves of Endometriosis rippling out and in again.
I’ve learned I just have to move with it.
One breath, one step, one admission, one day at a time.
I’ve never shared on this page about my illness.
It seems the time for my creative and human side to collide.
To capture what it feels like to watch the world go by 🌏
Time after time, after time.

But from this room, I also want to speak about something bigger than my own experience.
There is a quiet yet critical crisis unfolding in women’s health.

For too long, women with Endometriosis and other gynaecological conditions have faced delayed diagnosis, dismissal and inadequate care. Women can present to emergency departments in severe pain, wait for hours, and still leave without answers or appropriate follow-up.

Endometriosis is not simply discomfort or “bad period pain”. Delayed diagnosis can mean years of untreated disease, chronic pain, fertility issues, repeated hospital admissions and profound physical and psychological suffering.

When women’s concerns are repeatedly downplayed, it erodes trust and leaves them questioning their own bodies — wondering whether their pain is “normal” or worthy of medical attention.
We need a fundamental shift in how women’s health is recognised, triaged and managed.

Frontline services need better understanding of conditions like Endometriosis, alongside timely access to appropriate gynaecological care.

The women experiencing this are not statistics. They are our mothers, sisters, daughters and friends.
Women’s health cannot remain an afterthought.
We need a healthcare system that listens, investigates and acts.

Without delay. Without dismissal. Without compromise.
@nzgreenparty @nzlabour @nznationalparty @actnewzealand @newshubnz @radio_new_zealand @nzstuff @nzherald @today @dylansprouse @dollyparton @emmaroberts @mistergarf @whoopigoldberg @cyndilauper @tarans_travels_to_thailand @ausendofoundation @endometriosisaustralia @endometriosisnewzealand @endowarriorsaotearoa @hervoiceproject

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It is possible, but the grieving & hoping is so achingly hard🤍

#endometriosis #chronicillness #adenomyosis #fertility #womenshealth

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My periods have been getting increasingly worse, each month worse than the last. And today shows that isn’t changing. My period was over a week late, and it’s arrived with a vengeance. Only up side is it didn’t arrive until we were driving back from a camping trip so could have been worse.

My prescribed pain relief isn’t even touching the sides, but I’m doing everything I can to try to make this bearable.

I know I’ll be looking at another surgery, though I’m sure that won’t be for another year or so. I’m due to have an MRI scan soon but I haven’t had the letter through yet. I will probably chase that in the next week or so.

Things I’m using to help atm:
🌷 @getsomedays Cramp Cream (been using for about 4 weeks now and I do really like it)
🌷 @periodharmony patches (life savours, I particularly like them on my lower back)
🌷 @myobiofficial Artemis 2.0 (though I accidentally broke the strap so have just been tucking in my trousers)
🌷 @purespectrumhemp CBD salve (best CBD I’ve tried, expensive but worth it)

#periodpain #cramps #endobelly #bedtime #endowarrior

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You shouldn’t have to choose between feeling comfortable and feeling confident.

Whether you’re wearing activewear, jeans, a work outfit or your favourite dress… your pain doesn’t magically disappear.

That’s exactly why we created our Portable Heating Belt.

Discrete enough to wear under almost any outfit, powerful enough to provide comforting heat and vibration wherever your day takes you.

Because no matter what you’re wearing…

We’ve got your back. Literally. 🤎

Tell us below: Where would you wear yours first? 👇

#HeatTherapyRelief #EndoSupportAustralia #ChronicPainTools #heatrelief #invisibleillnesses

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I know how dreadful I feel on the inside - so I want to show differently on the outside.👚⚡

Swipe to the last slide for the best outift options in my opinion 💛👛

#endometriosis #chronicpain #spoonie #chronicillness #fashion

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I know that locking yourself away is not the best thing for your mental health, I do know that. I also know it’s something I struggle with a lot when I’m feeling low. It’s something I’ve done a lot of. But sometimes I just want to be alone because I feel alone.

I know I’m not alone, not only am I not alone in feeling such grief and resentment for my body, but I’m not alone in my life a support system. I have the most supportive family and partner, and a group of great friends. I have made so many connections on here, online, which genuinely has got me through so much.

But despite all this, when I’ve got bad news about my health, or I’m just feeling angry that my body won’t cooperate, I just want to be alone. I think that’s okay, for a little bit. But I also recognise my mental health impacted by it.

There’s kind of no winning really. But I’m doing my best to not hide away too much.

#mentalhealth #chronicillness #grief #inflammation #endo

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I haven’t done a lot of trying to act normal recently, my body just isn’t allowing it. So I’m a bit out of practice.

I’ve managed a few things in the last month that require more than the usual amount of energy, however they have cost me more than my body could handle. Although I don’t regret any fun activities or events I’ve gone to, I also didn’t love having to recover for several days afterwards.

But that is life when chronically ill, you sometimes have to sacrifice a period of time before and after something so that you can enjoy life.

Chronic fatigue has really taken the front seat recently and I think I now need to start looking into how I can treat this. All on my own of course because professional support is minimal or far too expensive for me right now privately. I will update as I trial new things.

And yes this video clip was before the heatwave, I’m not mad. I wouldn’t wear trackies and a jacket in a heatwave, I’m literally sitting here in my pants.

#cfsme #fatigue #endo #energy #chronicillness

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I often get asked why I’m so passionate about women’s health. The truth is, I don’t think anyone grows up dreaming of becoming an advocate. I certainly didn’t.

I was just a little girl who grew up into a teenager and then a woman who spent years being told her pain was normal, her exhaustion was something everyone experienced, and that she just needed to get on with it.

Years later, after diagnoses, surgeries, fertility treatment, hospital appointments, and more waiting rooms than I can count, I realised thaT so many of us have stories like this. And that’s why I talk about women’s health.

Not because I enjoy sharing the difficult parts, but because I know how much it would have meant to hear someone else talking about them when I was younger.

If sharing my story helps even one person feel less alone, trust their instincts, or seek support a little sooner, then it’s worth it.

#advocate #womenshealthmatters #endo #pmdd #childhood

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