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Global Lyme Alliance

@globallymealliance

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Dedicated to curing Lyme and other tick-borne diseases through leading innovative research and empowering the patient community #HopeStartsHere

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ROOT CAUSE MEDICINE IS NOT A FAD.

Alzheimer’s, ALS, certain cancers:

Different diagnoses, but in my clinical experience, chronic infection is part of the picture far more often than people realize.

When I say Lyme, I mean the pathobiome: Borrelia, co-infections, reactivated viruses, mold.

This is not a terrain vs. pathogen debate.

It’s both, and we should be paying attention and discussing.

As always, Not medical advice.

AND, once again - excuse the poor audio quality. I’ve been a busy bee. 🐝

#longevity #alzheimer #cancer #lyme #mold

References

1. Miklossy J. Alzheimer's disease, a neurospirochetosis. Analysis of the evidence following Koch's and Hill's criteria. J Neuroinflammation. 2011;8:90. doi:10.1186/1742-2094-8-90

2. Itzhaki RF, Lathe R, Balin BJ, et al. Microbes and Alzheimer's disease. J Alzheimers Dis. 2016;51(4):979-984. doi:10.3233/JAD-160152

3. Readhead B, Haure-Mirande JV, Funk CC, et al. Multiscale analysis of independent Alzheimer's cohorts finds disruption of molecular, genetic, and clinical networks by human herpesvirus. Neuron. 2018;99(1):64-82. doi:10.1016/j.neuron.2018.05.023

4. Halperin JJ, Kaplan GP, Brazinsky S, et al. Immunologic reactivity against Borrelia burgdorferi in patients with motor neuron disease. Arch Neurol. 1990;47(5):586-594. doi:10.1001/archneur.1990.00530050110021

5. Harvey WT, Martz D. Motor neuron disease recovery associated with IV ceftriaxone and anti-Babesia therapy. Acta Neurol Scand. 2007;115(2):129-131.

6. de Martel C, Georges D, Bray F, Ferlay J, Clifford GM. Global burden of cancer attributable to infections in 2018: a worldwide incidence analysis. Lancet Glob Health. 2020;8(2):e180-e190. doi:10.1016/S2214-109X(19)30488-7

7. IARC Working Group. Biological agents. Volume 100B: A review of human carcinogens. IARC Monogr Eval Carcinog Risks Hum. 2012;100(Pt B):1-441.

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My days of believing “we don’t have Lyme in ___ state” are over…

As always with tick borne diseases, prevention is #1.

Second to that, I recommend testing any tick you find on you.

Prevention tools showed in this video are Picaridin and Permethrin from @defendoutdoors 🦠

I still get out and enjoy the outdoors, I just think about things a little more these days!

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It’s all being exposed - left and right people telling their stories about mis diagnosis Lyme co infections mold etc. my daughter was a victim of abuse of power all because I wanted her properly diagnosed and questioned a doctor that has led to a 8 year court battle. Everything comes to light - I hope the courts are watching because I’m coming for you - I would make good before complete public exposure in the fullest fashion happens #- I was diagnosed with MS and treated for 12 yrs incorrectly…STRUGGLING with symptoms…FINALLY in 2010 was diagnosed correctly(had to keep fighting for answers) …ended up being LYME DISEASE WITH BOTH CO INFECTIONS BABESIA & BARTONELLA….now in remission for 4 yrs after struggling misdiagnosed for 12 years…KEEP ASKING FOR HELP IF IT FEELS OFF.

#lymediseaseawareness
#drstram
#stramcenter
lymewarrior
bodymindabund

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A little #DollyParton to remind us that we don’t have to be all the way through the darkness to begin to see the light. “Light of a Clear Blue Morning” felt like a perfect fit to sing for the Global Lyme Alliance Gala (@globallymealliance). It was made even better by the incomparable @billystritch on the piano!

#ChristinaMaxwell #Singer #lymedisease #lymediseaseawareness

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let me tell you how bad, karen 🤬

while it’s nearly impossible to put into words the physical, mental, emotional, and financial pain that comes with living in toxic soup, i figured these photos could help paint the picture.

what most people don’t understand is that mold/biotoxin illness is so much more than allergies. it’s a multi-system, multi-symptom condition driven by dysregulation of the immune system, that impacts virtually every system in the body…

neurological — brain fog, slowed thinking, mood swings, chronic fatigue, neuropathy, headaches & migraines, slurred speech, word recall problems, vertigo, ear ringing etc.

nervous system — light sensitivity, panic attacks, intrusive thoughts, anxiety, insomnia etc.

liver & kidneys — frequent urination, constant thirst, blood sugar dysregulation, eye blurring, chemical sensitivity etc.

digestive — nausea & vomiting, diarrhea, malabsorption, consitipation, chronic bloating, SIBO, undigested food in stool etc.

musculoskeletal — chronic pain, exercise intolerance, poor muscle stamina etc.

immune — chronic inflammation, autoimmunity, food sensitivities, lymph swelling, mast cell / histamine reactions, greater susceptibility to other viruses & infections etc.

endocrine — irregular periods, reproductive issues, insulin resistance, adrenal fatigue, low thyroid, weight issues etc.

cardiovascular — easy bruising, protruding veins on skin, palpitations, arrhythmias, POTS-type symptoms etc.

respiratory — coughing, wheezing, shortness of breath, chest tightness etc.

i could go on…

mold illness is something that can never be remotely understood, or even described, to those who haven’t experienced it. but without it, i wouldn’t be doing the work that i am today.

i NEVER would’ve imagined turning my pain into purpose by becoming an integrative health practitioner, but i’m incredibly grateful that i now get to use what i’ve learned, both personally & professionally, to help others feel less lost, overwhelmed & alone in their own healing journeys.

so if you’re currently going through it, i see you & deeeeeeply understand your pain. learn more about my work on my website �

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Last Monday night was a very meaningful one. I joined @globallymealliance for their annual gala to share my own story about my battle with Lyme disease, and to sing a favorite song.

Global Lyme Alliance is a leading force in Lyme disease research, resources and patient advocacy—giving new hope to patients whose hope is running low. It’s an honor to partner with them. 💚 🧪🦠

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Never mind, it was Lyme disease!!!
Years spent chasing the wrong answers, treated for symptoms while the true root cause stayed hidden. Known as “The Great Imitator,” Lyme disease can mimic over 350 conditions, often presenting under the guise of complex autoimmune and neurological diseases. Many of these conditions are progressive and incurable, with conventional treatments primarily focused on suppressing symptoms rather than addressing the root cause.
Could your chronic symptoms be an underlying infection? How long was your journey to the right diagnosis? Aa, meğer Lyme hastalığıymış! (Tabii yıllarca bir kez bile test etmedikleri için nereden bileceklerdi, değil mi?)
Yıllarca yanlış cevapların peşinden koşuldu; asıl kök neden gizli kalırken, sadece semptomlar tedavi edilmeye çalışıldı. Ben ise bilimsel kanıtlara dayalı gerçek kök nedeni bulana kadar semptomları geçici olarak baskılamayı amaçlayan hiçbir tedaviyi kabul etmedim.
‘Büyük Taklitçi’ olarak bilinen Lyme hastalığı, 350’den fazla hastalığın belirtilerini taklit edebilir ve genellikle karmaşık otoimmün ya da nörolojik rahatsızlıkların arkasına saklanır.
Bu hastalıkların birçoğu ilerleyicidir ve kesin bir tedavisi yoktur; geleneksel yaklaşımlar ise temel nedene odaklanmak yerine çoğunlukla yalnızca semptomları baskılamaya yöneliktir.
Peki ya sizin kronik semptomlarınızın arkasında da sessiz bir enfeksiyon yatıyorsa? Doğru tanıya ulaşma yolculuğunuz ne kadar sürdü?” #chronicillness #invisibleillness #lymediseaseawareness #thegreatimitator #kronikhastalıklar

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Momentum is building for the Lyme and tickborne disease community—but momentum alone isn’t enough. We need to turn it into meaningful change.

When patients and caregivers share their lived experiences, advocates organize, organizations unite, and we bring our collective voice to policymakers, we become impossible to ignore.

Join Center for Lyme Action for our 2027 Virtual Advocacy Day on Wednesday, February 17! Together, we’ll build on our recent policy victories, push for stronger federal action, and make it clear that our community cannot wait any longer for answers, treatments, and care.

You shouldn’t have to fight this hard for the care you deserve. But until the system changes, we need YOUR voice to help change it.

We’re not going to stop at momentum. We’re going to keep pushing until that momentum becomes meaningful change for the people who need it most.

📅 Save the date: Wednesday, February 17, 2027

📣 Join us. Help shape what comes next.

🔗Registration and additional event details will be shared soon. Subscribe to the CLA newsletter at centerforlymeaction.org to stay updated.

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1. @bellahadid celebrated her 30th birthday, October 9th
American Model/Actress
Of a Father @mohamedhadid Palestinian-American Real Estate Developer And a Mother @yolanda.hadid (born Van Den Herik) Dutch Former Model
2. And her Parents at the @globallymealliance 's 2016 United for a lyme-free world gala at Cipriani 42nd Street on October 13, 2016 in NYC.
2. And her Sisters @lanzybear Marielle and Gigi hadid attend @variety 's power of women presented by @lifetimetv at Cipriani Midtown on April 5, 2019 in NYC.
3. And her brother @anwarhadid in St. Tropez after Cannes Trip on May 2026.
4. And her Double @carlabruniofficial
5. And her friend Model @kendalljenner
6. And her then Boyfriend Singer @theweeknd (April 2013 - August 2019)
7. And her then Boyfriend Creative Director Marc Kalman (July 2020 - July 2023)
8. And her then Boyfriend @ab_performancehorses (October 2023 - January 2026)
9. And @faikhadra
10. And Model @iblamejordan for @vogueaustralia 's cover story on August 2017.
11. With Gigi and @champagnepapi
#bellahadidbirthday2026#bellahadidmodelling#bellahadidfamily#bellahadidfashionicon#bellahadidmovies

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The 2026 @globallymealliance Gala brought the Lyme disease community together in New York City for a powerful night focused on research, patient support, advocacy, awareness, and hope. 💚

@erichbergen hosted the Gala, @rosannascotto served as honorary chairwoman, @chris_meloni supported the mission on stage, @christinarmaxwell performed, and @lorigreinershark presented @bugbitething founder @kelleyhigneyceo with the Community Impact Award.

Beyond the formal program, the night was about connection — patients, advocates, researchers, healthcare professionals, nonprofit leaders, families, and supporters coming together around a shared mission.

It was also great connecting with so many others throughout the evening, including @holisticumbrella, @christina_kovs, @tickdontkillmyvibe, @hannahspires1, @strwberryshortkke, @monicaaene, @whitmanswarriors, @carasalzone_, @mcbradshaw, @centerforlymeaction, Dr. Ecaterina Komarnitsky of @morrisonhealth, @dylan_dinolfo, @powerangergreg, and many more helping move the Lyme community forward.

One message displayed throughout the evening captured the goal perfectly:

“A Lyme-Free World Within Reach.”

Getting there will take continued research, better diagnostics, improved treatments, stronger prevention, knowledgeable healthcare professionals, patient voices being heard, and organizations willing to work together.

It also takes community.

People living with Lyme and tick-borne disease deserve validation, better answers, support, and hope.

💚 Visit TickBootCamp.com to read our full photo story from the 2026 Global Lyme Alliance Gala.

What change would make the biggest difference for the Lyme community right now?

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This is living with Lyme! Not every day is about creation… sometimes it’s just about living! I don’t often post my struggles on here as much as I use to, but this is what life looks like a bit of the time!

This past week, I was walking around using a cane, and at some points I found it super difficult to stand. I was experiencing head pains that would’ve hospitalized someone if they’d never experienced them before (I was just having Herxheimer reactions to my illness). I know better days are around the corner!

This past week, I was really hoping I would be able to go to the Lyme Gala in NYC (@globallymealliance) so I could meet a few of the people in the Lyme Disease community that truly inspire me! My illness got the best of me though (again).

A few weeks back, I was asked how do I know which days are going to be good, and which are going to be bad - how do I prepare for the day? Truth be told, everyday is different - I don’t know if I’m waking up to a bad day or a good day, but if we just believe a little more good days are around the corner than the bad, that gives something to hold onto. So you smile and keep going! And that “hope” keeps powering me, the way it powered a galaxy a long, long time ago, far, far away. This hope empowers me to be the resilient person and artist that I am today…

#LymeDontKillMyVibe #MentalHealthWarrior #OvercomingObstacles #BetterDaysAhead
#KeepGoing

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