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It was so special to finally meet @omarnovelomedina in person, someone who has played such an important part in Lily’s journey and in the progress we’ve seen since her MUSE cell treatment.

What strikes me most about Omar isn’t just his knowledge and passion for MUSE cells, it’s how genuinely he cares about the people and families he works with. He gets to know you, listens, tailors the approach to the individual and continues to check in long after treatment. I’m also fairly convinced this man never sleeps 😂

The way he speaks about his work tells you everything. He genuinely wants to help people and give families more possibilities. And I’m so excited that he and @neorgana are now bringing MUSE cells to @hope_amc here in Dubai, giving more families the opportunity to access this treatment closer to home.

Omar, thank you for everything you’ve done for our Lily, for answering my endless questions and for being such a genuinely good human. We are so grateful to have you in her corner. 💛

#musecells #stemcell #braininjury #regenerativemedicine #healingjourney
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Look at her go! 🥹💛

Lily is getting stronger and stronger,  initiating her own steps and WALKING in the spider cage at @hope_amc. 👏🏼

Watching those little legs work, one step after another, is just amazing. Every step takes so much coordination, strength and determination for Lily, and she just keeps showing us what she can do.

So, so proud of our Lilybug. Keep going, baby girl! ✨

#braininjury #healingjourney #neurorehab #musecells #tracheostomy pediatricrehab stemcells
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We are officially on the road towards decannulation and hopefully one day saying goodbye to Lily’s trach.💛

Lily has started capping her trach, which means putting a small cap over the trach so she has to breathe normally through her nose and mouth. 

We started with just a few minutes at a time and she has now worked her way up to 30 minutes, three times a day, with no drops in her oxygen.

From here, we’ll slowly increase the time each week until hopefully she can manage being capped for all of her waking hours.

The next big step will be her sleep study in December, where they’ll see how she manages capped while she sleeps overnight. If all goes well, it brings us another step closer to having her trach removed completely. 🥹✨ 

A huge thank you to @hope_amc, Ms Mansi and @jalilachildrens for helping get our Lily to this point. We are so grateful. 💛

#braininjury #trachbaby #tracheostomy
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So many little wins adding up to something pretty incredible. 💛

Keep going, Lily. Little by little, stronger every day. ✨

@hope_amc @neurosolutiondxb @neorgana @yourbrainphysio 

#healingjourney #braininjury #neurorehab #musecells #stemcells
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Trying something new with Lily 🤍

This week at @hope_amc, we’ve been introducing CME - Cuevas Medek Exercises - a therapy that challenges Lily’s body in lots of different positions, often with less support than she’s used to.

The idea is to encourage her to find her own responses to gravity, activate her muscles and work on balance, head and trunk control and standing.

Some of these exercises look so simple, but for Lily they require SO much work. And I love seeing just how much she keeps trying through every single one. 🥹💪

Another little piece of the puzzle as we keep giving her brain and body opportunities to learn. ✨

#CME #CMEDubai #pediatrictherapy #healingjourney #braininjury
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It may take 100 trials, different strategies, and a lot of teamwork — but she doesn’t mind trying again and again. 💪

One goal is to give her every possible opportunity to move, explore, and participate more independently. 🤍

A huge thank you to the amazing team working together toward the same goal. 🙌 @mov_exp @mostaphahafez 

#mobility #pediatricrehabilitation #pediatricphysiotherapy #physiotherapydubai #cerebralpalsy
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