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💜 Porphyria Advocate
✨ Compartiendo las alegrías de mi vida
📍 Venezolana en Barcelona
📖 Mi historia en un libro 👇
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Croacia con mis muchachas ✊🏼🇭🇷💘
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Finding someone else with porphyria feels a little like finding a long-lost friend 🫂

None of us ever wanted to be part of the rare disease club… but if we have to be here, there’s something incredibly comforting about knowing we’re not alone. Having a community that truly understands the highs, the lows, and everything in between makes all the difference.

Tell us in the comments: What type of porphyria do you have? 👀 We’d love to see just how many different stories make up our incredible Porphamily 💜

#Porphyria #RareDisease #PorphyriaCommunity #InvisibleIllness #chronicillness
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