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Lyfebulb

@lyfebulb

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We are advocates for patient-driven innovation; we are thinkers and innovators. We are patients and care partners ourselves.

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Our very first walk as KidneyKidz! Such a blast racing with our dog and Valerie through the beautiful New England fall weather. Go @nkfct and we will be back!! #kidneydiseaseawareness #kidneykidz

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Inspiring days at UCSD’s REIMAGINE symposium with transplant pioneers, advocates, and friends:

💚 Dr. Robert Montgomery — transplant surgeon, xenotransplant pioneer, and heart recipient.
💚 Dr. Lloyd Ratner — a pioneer in living kidney donation.
💚 Amy Purdy — three-time Paralympic medalist and kidney recipient.
💚 Alison Conklin — heart recipient and creator of Bonus Days magazine.
💚 Jen Benson — kidney/pancreas recipient and founder of The Transplant Journey.
💚 Jullie Hoggan — kidney recipient, educator, and patient advocate.
💚 Wilson Du — the Renal Warrior, inspiring others through his weight loss journey.
💚 Marc Coronel — kidney recipient, former amateur boxer, and advocate.
💚 Tim Fitzpatrick — creator of Signals, connecting people and ideas in kidney care.
💚 Kiku Boyance — my bestie, kidney recipient, and Executive Director of ReMend.

And so many others not pictured.

Since my first kidney transplant on January 3, 2006, I’ve had 7,588 bonus days.

Last year, those days almost ended. Highly sensitized and running out of time, I needed an incredibly difficult-to-find match. Then the unexpected call came. My deceased donor gave me another chance at life, nearly 20 years after my dad gave me my first.

My bonus days began with two extraordinary donors, and were made possible by decades of work from surgeons, researchers, nurses, and transplant pioneers. Meeting some of those people and hearing what comes next made this symposium even more beautiful.

I hope to use my bonus days to help others facing kidney disease and kidney failure find their own bonus days and have time to live the lives they envision. 💚

#sandiego #UCSD #KidneyTransplant #OrganDonation

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“BEFORE THE TRANSPLANT, I COULD FEEL MY BODY DYING” — A year ago, Lifesharing volunteer Jeanmarie Ferguson was in kidney failure, planning end-of-life care. Then a stranger called at 4 AM. At first, Jeanmarie thought she was getting punked… but instead, she was getting SAVED. On Saturday, she will celebrate the 1-year anniversary of her kidney transplant…. A gift from an anonymous hero 💙💚
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Jeanmarie received her transplant at @scrippshealth
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The majority of patients on the transplant waiting list need a kidney. At Lifesharing, we work every single day to get patients off the transplant waiting list.
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🎥: Lifesharing Public Relations Director Anne State, with additional footage provided by Artlist.
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#donatelife #kidneytransplant #anniversary #milestone

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Final few weeks of summer with a finish at the U.S. Open! Wonderful trips to Charlotte, NC, Quassy Water park, Sacred Heart Adventure park and much in between.. we love our family and friends — and tennis is the recurring phenomenon that keeps it all together. Thanks to cataract surgery I can now see the ball again … 🍾 #mytransplantlyfe #motherdaughter #tennis #kidneytransplant

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Look what came in just in time to occupy me as I rest my knee 🩼🏃‍♀️🤩

Wow, @bonusdaysmag. Just wow. What a wholesome edition this is 🩵 Thank you for including one of my special bonus days.

Going through all the emotions as I read these powerful stories. I highly recommend this to my fellow patients and without a doubt, make sure to check out the community resource page 😉 #transplantlyfe 💛💙

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What a full-circle day. 💚

I had the incredible experience of being onstage with my nephrologist of nearly 30 years, Dr. Mark Boiskin, and sharing the story of our 30-year journey together. He has been beside me since I was a teenager newly diagnosed with lupus nephritis: through kidney failure, two transplants, rejection episodes, countless treatments, difficult decisions, and nearly every major stage of my life. We have quite a legacy together. Haha.

I also had the honor of moderating Wilson Du and Amy Hewitt of the National Kidney Foundation as they shared their amazing living donor story. Wilson has an incredible journey of his own, from dialysis to transplant, and even started a gym for kidney patients while navigating his own health challenges. Amy’s decision to become his living donor forever connected their lives, and it was so special to help them share their story.

And a very special shoutout to the amazing Kiku for putting together such an incredible event and for trusting me to be onstage twice and behave Haha.

The day was also filled with so many people who have become part of my journey: Jamie from Lyfebulb and TransplantLyfe, Jean from Lifesharing, Tim from Signals, the incredible Balboa Nephrology staff, my fellow ReMend mentors, and so many others.

Looking through these photos, I’m reminded that this journey has never been mine alone. It has been shaped by the people who cared for me, believed in me, opened doors for me, and now stand beside me as we work to make the kidney community better for others.

An incredible day of learning, laughing and connecting! 💗

#kidneytransplant #lupus #love #happiness

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Continuing to use my voice with @nephcure to shine a light on rare kidney disease, treatment, dialysis, and the life-changing gift of kidney transplantation. 💚

One of the best parts? Meeting so many amazing people who share my rare disease, hearing their powerful stories, and being reminded that none of us are walking this journey alone. Every conversation left me feeling inspired, hopeful, and even more determined to advocate for our community.

I’m beyond grateful to be part of the NephCure family. Here’s to growing together, creating change, and turning our stories into hope for others. This is just the beginning!

Together, we’re proving that rare is powerful 💙💚✨

#rarebeauty❤️ #FSGS #kidneydiseaseawareness #kidneytransplant #kidneyhealth

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I’ve officially partnered with the National Kidney Foundation, debuting at their 75th anniversary by co-hosting Southern Santé!! This was a night of honoring multiple doctors and patients alike. I feel very honored that I get to use my voice and my story to help others with invisible disabilities and health challenges. This is just one more stepping to stone to helping patients with advocacy and raising awareness about pre and post transplant life. 🧡✨

www.briannaborello.com/mystory

#kidneystrong #NKF #FSGS #doublekidneytransplant #transplantlife

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Join us at 6pm UK time, the first Wednesday of every month.

Comment below and I will send the free sign up link.

#OrganTransplant #OrganDonation #Transplant #TransplantStrong #ComeOnEngland

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From Denver to Boston, last weekend was everything I had hoped for and more!!!! 🤩

At TGA I got to hear so many heartfelt stories and connect with more people in our transplant community💛💙 This was my first time ever attending transplant games so that made it all the more special!

At ATC, I had the opportunity to speak on a panel that focused on the burdens of side effects. I don’t usually choose to share my story but this time I am really glad I did. To see so many physicians, practitioners and industry professionals engage in the conversation made me hopeful for the future. Thank you to Eledon for sponsoring such an important symposium and for working towards a solution!

I am grateful to be part of the @lyfebulb and @patientcareamerica team where helping patients remains at the heart of everything we do thanks to great leadership.

I am also thankful to my fellow TransplantLyfe Community Managers who have been advocating for much longer than I have and for continuously staying dedicated to supporting our community. Witnessing what you all do in real time is an honor.

#transplantgames #atc2026boston #transplantlyfe

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On Father’s Day, I think about fathers in a different way.

Some fathers literally give a part of themselves to their children. My father gave me a kidney and, with it, more years of life, hope, and possibility. There is no greater expression of love than making a sacrifice for your child without expecting anything in return.

To all the fathers who show up, sacrifice, support, and stand beside their children through life’s challenges—thank you. Your presence matters more than you may ever know. #fathersday2026
#kidneytransplant #t1d #kidneyfailure #mytransplantlyfe

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Whether you are attending TGA as a competitor or just a spectator, Natasha wants to wish you a safe trip and remind you to stop by the TransplantLyfe Booth in the TGA Village 😎

👉 Friday 10-2p
👉 Saturday 12-2p

#transplantgamesofamerica #denver #transplantrecipient #transplantlyfe #kidneytransplantrecipient

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