Instagram story viewer> @onlinedanielle> Tagged

♡ danielle ♡

@onlinedanielle

10.6K

followers

1468

following

𝚌𝙴𝙳𝚂 • 𝚑𝙿𝙾𝚃𝚂 • 𝙼𝙲𝙰𝚂 • 𝙲𝙲𝙸 • 𝚂𝙵𝙽 • 𝚂𝙼𝙰𝚂 • 𝙼𝚃𝚂 • 𝙶𝙿 + 𝚌𝚘 𝚍𝚘𝚌𝚞𝚖𝚎𝚗𝚝𝚒𝚗𝚐 𝚖𝚢 𝚛𝚎𝚊𝚕𝚒𝚝𝚢 𝚒𝚗 𝚑𝚘𝚙𝚎𝚜 𝚘𝚏 𝚑𝚎𝚕𝚙𝚒𝚗𝚐 𝚜𝚘𝚖𝚎𝚘𝚗𝚎 ♡

POSTS STORIES REELS TAGGED

Grief is so painful. My heart goes out to everyone who is grieving someone right now. ❤️‍🩹
#nationalgriefawarenessday

I love you Danielle Frick ❤️‍🩹😞🦓
#nationalgriefawarenessday
#ehlersdanlosawareness

3

2

It’s been a month and it still feels like yesterday. Your memory, message and fight will not be lost on me. I will never forget you. 🦓💕

2

0

life lately ⛱️⛵️⛺️

3

12

I’ll carry you everywhere.

3

1

Dani ❤️‍🩹🪽
The ribbon wrapped around us two
Was cut in half the day I lost you
They say everything happens for a reason
Well tell me why you were taken so soon.
They’ll say it was your time.
But I think they’re lying.
It wasn’t time, now I’m crying and I want to go back and freeze the memories down to every witty line.
The only peace for me is knowing that you’re not still suffering.
But losing you, has ripped my heart in two. Wherever you are I wanna be there with you.
You have always been an angel and maybe that’s why you’re no longer here with me, god wanted you back in heaven floating and dancing and at peace.
I don’t know what I believe in but today I’m gonna get down on my knees and pray. That you’re okay and that one day I’ll get to see your face again oh I’ll pray, pray that you’re with the others we lost too soon, maybe you’re all together now watching us from the clouds laughing when we laugh too.
I’ll keep my half of the ribbon and tie it in my hair, I’ll wear it everywhere until one day I’m up there and we’re tied together again forever.

102

5

How is this real? Until we meet again, my sweet angel.

Forever 27 💔🦓🪽🌼

#grief #eds #fuckeds #myangel #survivor

71

16

My sweet angel.
You will live on forever in my heart and my head.
You were a ray of light and color in my and so many others lives.
Nothing could’ve prepared me for this, losing you. We always said we’d go out together. But I will stay alive to keep alive the memory of you.
I’ll miss the sound of your voice and hearing it over the phone in the middle of the night. The laughter, the tears, the anger, the fears. I knew I could come to you with anything and you came to me with everything too. We always said we were twin flames, two bodies one soul. I know that’s true because half of my heart left with you.
I’ll remember our jokes about funny medication names.
And I’ll remember the way you made me laugh, the way you made me feel so seen and heard. I never felt alone because I knew everything I felt you felt too.
Our illnesses brought us together and now they’ve torn us apart.
We were just talking about planning a trip to finally be together in person. And now I’ll never know what it’s like to hug you.
The closest thing I’ll ever get to a picture with you is these AI generated photos - which is about all AI is good for imo but in this moment I’m grateful for it.
I love you to the moon and to Saturn.
I’ll never forget you.
Good bye my love…❤️‍🩹🪽

173

15

if you know anything about me and my mission for this page, you’d know I’m passionate about raising awareness for complex and often invisible disabilities and illnesses, as well as working to find common ground to build upon between patients and providers.

My goal is to make both sides feel more seen and empathized with so there is more understanding and support instead of blame, which I hope will lead to better quality of life for all involved.

This is my dream… and I believe it can happen, but BOYYY do we have a long way to go!! we can’t expect patients to continuously keep empathizing with the difficulties providers face within the system while they’re barely surviving themselves, let alone being actively belittled and ignored by the people meant to help them most.

BELIEVE YOUR PATIENTS🤍 Maybe then it wouldn’t have taken me 15 years of progressive deterioration to get the brain and spine surgery I always needed, and maybe others who fell through the cracks would still be alive today.

#chronicillnessawareness #improvingpatientcare #medicalgaslighting #invisibledisability #connectivetissuedisorder

3

22

Disability pride month can be confusing to some people. “Why would anyone be proud to be disabled?”

I am proud of many things; my resilience, my strength, my passion for advocating for disability rights. I am proud of who I am both in spite of my disabilities and because of them. It’s a fine line to walk, I am who I am because of everything that I’ve endured because of my disabilities, but at the same time I am so much more than my disabilities. I’ve recently been learning that both can coexist, I can acknowledge that my disabilities helped shape me into who I am today, and still know that I am who I am because of me, not just my disabilities.

I’ve struggled with disability from age 12. I have a connective tissue disorder called Ehlers-Danlos Syndrome that has lead to an onslaught of symptoms and comorbid disabilities. I’ve seen so many doctors and specialists, done so many tests, tried so many medications and mobility aids, had so many surgeries, and cried so many tears.

It gets confusing and frustrating wanting to accept my disabilities as part of who I am and at the same time separate myself and my accomplishments from them. Recently I’ve been focusing on accepting that I am disabled, nothing is going to change that, but I am also more. Disability is a part of me and i am proud of who I am with it and despite it at the same time.

137

11

Hello everyone,

My name is Jesus and I am currently living with a broken freaking neck as the @therealkurtangle would say ahaha.

I am currently living in the @dannyway method
“Using my body as an experiment” seeing what this beautiful advance machine created by God can do in the extreme. ✝️

As @yoelromeromma would say “anything is possible if you believe!” So here I am fuck it! What do I have to loose! Perseverance and faith ✝️

These last 3 years and 1 month have been very humbling as I go through my journey trying to figure out the way, the road map, and the truth.

Dec 4th 2021 at 23 years old I was assaulted which led to damaged alar ligaments and Feb 3 taking my 3 Pfizer vaccine possibly being floxed by it. Aka “fluoroquinolone toxicity”

I was not educated to know what I know now at 26 years old. Yes I lost years of my best years of my life.. but I grew in wisdom and understanding how this world works. From friends,family, docs, holistic docs, insurance, overall medical system.

My goal here is to bring the wisdom from all sides “the pieces to create the GRAND PUZZLE”

We thank Steve Jobs for the iPhone and the whole infrastructure he created.. one day we will thank a man or woman for creating a system that brings certainty clarity a path way a guide to heal.

As @drwilliamprevite says “moving from a system of degeneration to regeneration”

These next 3 years is going to be an experiment 🔬 🧪 “HOW EXCITING” ✝️

~ If you were tagged thank you for teaching me something 📚

#cranialcervicalinstability #atlantoaxialinstability #spinal #functionalpatterns #prp #prolotherapy #stemcells #spine #cervicalfusion #cervicalneck

51

32

So I hear it’s National Daughters Day! I am not a fan of these “holidays” BUT I am a fan of Danielle Frick! No words can express my love and respect for you! You have the strength I have never witnessed in my life ♥️

56

10

Thank you for giving me Hope🍀 I don’t have any income or family here, I have to work hard to qualify for surgery but I choose Faith no matter the odds 🕊️
🤍
💚
•
Gracias por darme esperanza 🍀 No tengo ningún ingreso ni familia aquí, tengo que trabajar duro para calificar para las cirugías pero elijo la Fe sin importar las probabilidades 🕊️

•
•
•

-
-
#DisabilityPride #DISABILITYrights #SevereME #chronicpain
#mecfs
#myalgicencephalomyelitis #MastCellActivationSyndrome #hEDS #MillionsMissing
#chronicillness #tetheredcordsyndrome #vascularcompressionsyndromes #help #maryland #ehlersdanlossyndrome #meawareness #faith #hope #riseup #love #dysautonomia #pots #zebrastrong #CCI #spinalcordinjury #faith #motivation #love #life #faith #spinabifida #Chiari

128

17