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Project Lyme

@projectlyme

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Our mission is advancing solutions for Lyme and tick-borne diseases through education, research, advocacy, and patient support.

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spooky szn. 👻

#spookyszn #foodsystems #supportlocalfarms #publichealth #seattle

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Momentum is building for the Lyme and tickborne disease community—but momentum alone isn’t enough. We need to turn it into meaningful change.

When patients and caregivers share their lived experiences, advocates organize, organizations unite, and we bring our collective voice to policymakers, we become impossible to ignore.

Join Center for Lyme Action for our 2027 Virtual Advocacy Day on Wednesday, February 17! Together, we’ll build on our recent policy victories, push for stronger federal action, and make it clear that our community cannot wait any longer for answers, treatments, and care.

You shouldn’t have to fight this hard for the care you deserve. But until the system changes, we need YOUR voice to help change it.

We’re not going to stop at momentum. We’re going to keep pushing until that momentum becomes meaningful change for the people who need it most.

📅 Save the date: Wednesday, February 17, 2027

📣 Join us. Help shape what comes next.

🔗Registration and additional event details will be shared soon. Subscribe to the CLA newsletter at centerforlymeaction.org to stay updated.

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A huge step forward for the Lyme and tick-borne disease community! The Kay Hagan Tick Reauthorization Act has officially been signed into law, extending federal support through 2030 for critical research, improved diagnostics, disease surveillance, prevention, and public education. A special thank you to Senator Susan Collins for championing this legislation, and a huge shout-out to @centerforlymeaction, @projectlyme, and @globallymealliance for their tireless dedication, advocacy, and commitment to this community. While this is an important victory, we still have a long way to go in raising awareness, improving early detection, advancing treatment options, and ensuring that patients suffering from Lyme and other tick-borne diseases are heard, believed, and supported. Progress is happening, but we cannot stop pushing for more!

For the full article: https://www.globallymealliance.org/news/the-kay-hagan-tick-reauthorization-act-is-signed-into-law-what-this-means

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Finding the words for this is difficult but here it goes🍋‍🟩🚨

Ive always believed that it takes just a drop in the ocean to cause a ripple to begin and that’s the same way advocacy works<3 I do not come from the non profit, advocacy, public speaking world.. I was thrown into it as a way of survival. As a way of understanding the new body and mind that came along with having chronic Lyme. I come from adversity, homelessness, $1.00 and a dream & Lyme disease if you may. But it taught me perspective & resilience!

It’s wild looking back and thinking of all the times ive shared my story just hoping someone who resonated would hear it and know they were not alone. Advocacy also takes the heavy pain and bad moments of this disease and flips it into something positive 💪🏽

I’ve been advocating alongside many other warriors and organizations for better diagnostics, treatment, and an accessible cure for all stages of Lyme and tick borne disease since 2018, when I first was diagnosed with stage 3 neurological Lyme. I’ve learned how to articulate my story in a way that feels authentic and healing to MY HEART & aligned with the path God has set ahead for me 💚

Thank you @centerforlymeaction @projectlyme @theleafprogram @embracinghealing2 @jillianvarn @globallymealliance @attyclew @fieldhousepictures @sypher.studio @ryanmbell_ @kimkatz25 @mariaj_424 @chronically.lindsey @thelymearmy @tickdontkillmyvibe @tedx_official @oxjec @lymewarriorus

just to name some of the MANY individuals and organizations who took time to pour into me when i was literally laying on the floor at my worst. When the world looked at me for inspiration & positivity but all I needed was a damn hug and some ivermection lol. *lyme humor*

What I’m saying is this:
Every individual voice matters. Representation matters. Equity over equality matters. Speak your truth warriors, you never know whose listening🫶🏽

&& SHOUTOUT CLA for leading the Calvary vehicle in getting The Kay Hagan Tick Reauthorization Act signed into Law ✅💚 I look forward to many more years of progress as a community!

If you made it this far, new music is around the corner👀🖤🎧

#lymewarrior #lymediseaseawareness

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A huge round of applause!!! 👏🏼 @vitalplan (Dr. Rawls has done numerous Lyme Time Podcast interviews covering all the precious herbs (Restore 180)that get us headed in the right direction and @practicehealthwellness out of Thomason, CT will soon join the Podcast so watch out for that one featuring Dr. Cipriano! @nutra.medix @projectlyme round out our stellar lineup who make it possible to educate our community about supportive therapies and community-centered groups and resources. Give them some love and a follow! I’ll see everyone Thursday at the Summit! Link in my bio to register for free. 💚

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#centerforlymeaction #hoshindo #taosnewmexico #borninthemountains

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SIGNED INTO LAW! Today, September 30, 2026, the President signed S. 2398, the Kay Hagan Tick Reauthorization Act, into law - a major victory for the Lyme and tickborne disease community!

"Today marks an extraordinary moment for the Lyme and tickborne disease community and a powerful demonstration of what bipartisan advocacy can accomplish,” said Meghan Bradshaw, MPH, Executive Director of Center for Lyme Action. “The signing of the Kay Hagan Tick Reauthorization Act is the result of years of work by patients, families, researchers, public health professionals, advocates, and bipartisan champions in Congress who refused to let tickborne diseases fall off the national agenda. We are incredibly proud of the thousands of advocates across the country who raised their voices and made this victory possible.”

To our advocates: thank you for your tireless support, persistence, and dedication. Every meeting, email, phone call, and personal story helped bring us to this moment. We are deeply grateful to the patients, families, researchers, public health professionals, and bipartisan congressional champions who made this victory possible.

"Today we celebrate, but tomorrow we get back to work,” Bradshaw said. "Reauthorization gives us an important foundation. Now we must make sure the federal government follows through with the resources, implementation, and continued innovation necessary to change the trajectory of these diseases. This is a landmark victory—and it is just the beginning.”

Together, we’ll keep working to strengthen federal investments in research, prevention, diagnostics, treatments, and public health so patients and families have a stronger path toward answers and better outcomes.

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It’s been one week since an incredible night of music, community, and Lyme awareness in Central Park! 💚🎶

LymeLight team member Katie Tessier joined the thousands of people who came together to enjoy the music while also learning more about Lyme and tick-borne diseases, tick prevention, and how to stay safe outdoors.

We were proud to support Music for Action at @summerstage, featuring @youngthegiant and @stlucia and to collaborate with other Lyme organizations, advocates, patients, and supporters to help spread awareness and reach people who may not otherwise be familiar with Lyme disease.

A huge thank you to @lymelnk, @evaascar, @summerstage, and everyone who helped make this special night possible.

With fellow support from: @cohengive @globallymealliance @projectlyme @thequietepidemic @bayarealymefoundation

#summerstage #lymelightfoundation #lyme #lymedisease #lymeawareness #lymediseaseawareness #lymewarrior #lymewarriors #lymestrong #lymelife #childreninneed #grants #grantapplication #grant #lymegrant #lymelight #summerstage40

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10 years of turning isolation into community, frustration into research, and unanswered questions into hope. 💚

Earlier this month, we had the honor of joining Project Lyme in celebrating its 10th anniversary, where Jess Kane was recognized as an honoree and shared her personal journey with Lyme disease.

For Jess, this mission is deeply personal. After decades of disconnected symptoms, diagnoses, and unanswered questions, her experience taught her the importance of looking deeper, asking better questions, and advocating for your own health.

Her experience is a powerful reminder of why we do what we do at BodyBio. We believe that understanding health at its most foundational level matters, that asking deeper questions matters, and that no one should have to navigate their health journey alone.

We’re incredibly proud to support organizations like Project Lyme that are advancing research and creating a community for those whose symptoms and experiences have too often gone unheard.

“A Lyme diagnosis is not the end of anyone’s story.”

Here’s to 10 years of Project Lyme, the people driving this mission forward, and continuing to build a future where more people have access to the answers, resources, and support they deserve.

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GLA turned up the volume on tick-borne diseases during #climateweeknyc !

On September 22, Global Lyme Alliance staff, ambassadors, and supporters gathered in New York City’s backyard to see @youngthegiant @stlucia and @dreeemy —all while raising awareness about climate change and the subsequent increase in tick-borne diseases in city parks and urban areas.

As a community sponsor and partner for Music for Action, A Climate Week Concert, hosted by @capitalone @cpfnyc and @summerstage and presented in partnership with @lymelnk , GLA was proud to help educate New Yorkers on how to stay safe while enjoying the outdoors.

From the music to the mission, go behind the scenes of GLA’s night in Central Park with reflections from our CEO, Jennifer Katritos, and the people that made it possible.

Read the full recap at the link in our bio.

#SummerStage #globallymealliance #lymediseaseawareness #Lymedisease

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More than 250,000 people learned about Music for Action through the Tick Boot Camp platform alone before the doors even opened — then thousands gathered in Central Park for a night of Lyme awareness, education, and music. 💚

On September 22, @summerstage hosted Music for Action, where Lyme and tick-borne disease education was woven throughout the entire event.

Lyme organizations and advocates shared tick prevention information, resources, and education with concertgoers throughout the venue.

During the show, LymeLnk founder @evaascar delivered a beautiful Lyme awareness message from the stage, bringing the patient experience, prevention, and the need for greater recognition directly to thousands of people.

That’s what made the night so powerful: Lyme education reached people who may never have attended a Lyme event or searched for Lyme information on their own — while they were enjoying @youngthegiant, @stlucia, friends, and one of New York City’s most iconic venues.

Lyme organizations, partners, advocates, and community members worked together to bring the Lyme conversation far beyond the traditional advocacy community.

The Lyme community showed up in force, including @lymelnk, @globallymealliance, @projectlyme, @thequietepidemic, @bayarealymefoundation, @lymelightfoundation, @lymelesshealth, @tick.mitt, Katie Tessier, @lindsaykeys, @boots919, @jenk68, Kat Silver, Lindsey Smith, @thedanaparish, @olivia_bleiweiss, @bruzzesemedical, @juliabruzz, @carter.bradsky, @monicaaene, @jasminthepoeta, @carolann.marie.love, @rikakeck, @botanicalbunny, and many more.

Patients. Researchers. Doctors. Filmmakers. Nonprofits. Innovators. Advocates.

All together, helping more people understand ticks, Lyme disease, prevention, and the reality patients face.

Music for Action showed what Lyme awareness can look like when education, community, advocacy, and fun all come together.

Full recap + photos at TickBootCamp.com/concert 💚

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