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Tali / טלי Travel • Wheelchair-accessible destinations

@rollwithasmileblog

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✈︎ Accessible travel tips & real experiences
♿︎ Travel & life with Muscular Dystrophy (FSHD)
✧ 26 countries • 13 in a wheelchair
↓ My blog

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We help you win no matter the circumstances
📞813.775.8988
~Da’Accident Fairy 🧚🏽‍♀️

#igreels #reelsinstagram #explorepage #accidentinjury

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I just love to travel. I have found many countries to be ADA accessible. Japan is very aware with people with disability. They are so gracious and kind. #Travel #Life #Love #Japan #Kyoto #BulletTrain #mssociety #ADA.

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קהילה שהלכה וגדלה לעמותה משמעותית 👇🏼
מחלת FSHD היא מחלה הפוגעת בכל שרירי השלד. טלי מרון וסיגלית בן חמו חיפשו תשובות. מפגש אחד הפך לקבוצת וואטסאפ ומשם לקהילה של כ-150 חברים: "העמותה גרמה לי להרגיש פחות לבד. רוצות לוודא שחולי FSHD לא נשארים מאחור"

סיפורן המלא - עכשיו בסטורי 📲
📷: באדיבות טלי מרון ותומר בן חמו
@rollwithasmileblog
@fshd.israel
@sigalit.ben.hamo

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⁨ אם תחזירו אותי לגיל 16
בחיים לא הייתי חושבת או חולמת
שאכיר עוד אנשים *כמוני*
שיש להם ניוון שרירים מסוג FSHD
לא הייתי מדמיינת שיהיה לי נושא שיחה משותף
בחלומות הכי גדולים שלי הייתי מדמיינת
שיש עמותה, קהילה, שיחות עם אנשים
שאשכרה מבינים אותי באמת 🥹
ואז זה קרה הקמנו עמותה.
הגשמנו חלום.
הפכנו להיות קהילה שהיא בית.
הפכנו להיות משפחה מבלי לבחור.
ועל זה אני מודה כל יום
כי הדבר הכי קשה זה הבדידות
והדבר הכי מעודד זה הביחד.
תודה על כל אחד ואחת מכם
על האירוע הראשון ולא האחרון בעזרת השם
על משפחה לא מבחירה אבל משפחה מופלאה
שיש לה כוחות על הרבה יותר חזקים
מגיבורי העל שבטלוויזיה .
גיבורים של החיים❤️

כוח הוא לא רק במה שאנו יכולים לעשות עם הגוף שלנו,
אלא במה שאנו עושים עם הלב, המחשבות והסיפור שלנו.
וביחד – עם כנפיים, עם חלום, עם קהילה.
אפשר לעוף הרבה יותר גבוה.

תודה למארגנות המושלמות שלנו
‪@sigalit.ben.hamo‪@amitiluz‪@rollwithasmileblog‬blog
והבעלים האלופים שלכן אין עליכם!!!✨❤️⁩

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Trenord needed the fire brigade to get me off their bus.
They thought the situation might get worse.
This is what accessibility failure can look like.
Huge thanks to the Vigili del Fuoco in Tirano for stepping in with professionalism and kindness when I needed it most.

#Trenord #VigilidelFuoco
#AccessibleTravel #DisabilityRights #AccessibilityFail #WheelchairLife
#TravelWhileDisabled
#BarrierFree #MobilityRights #AccessibilityMatters #InclusiveTravel #EqualAccess #InclusionMatters

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Facioscapulohumeral dystrophy
(FSHD, Landouzy Dejerine disease)
is a hereditary muscle disease that initially mainly manifests itself in the muscles of the face (Facio), the shoulder blade (Scapulo) and the upper arm (Humerus).
Landouzy and Dejerine where two french doctors who discovered FSHD.

The order in which the symptoms occur varies per person. The disease usually starts in the facial muscles: the eyes do not close properly and the muscles around the mouth slacken. Later, the muscle strength in the shoulders and upper arms usually decreases.

But not with everybody, in my case my lower body has more muscle weakness then the upper and, contrary to what the medical sources say, it started with me with muscle weakness in the lower body.

The disease often then slowly increases in severity,
but this also varies per person.

The consequences of FSHD vary from very mild (barely noticeable) to quite serious, which may eventually require a wheelchair.

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Terry flying again today on Delta ✈️ August 9, 2024, flight number 898 from Atlanta to Los Angeles. This is my second flight in six weeks, and we’ve had some mechanical delays.

Got halfway off the plane only to realize my wheelchair was nowhere to be found. The pilot was amazing—he went downstairs multiple times to locate it. Turns out, it was on a cart near the airplane, and no one was notified. The pilot decided to keep me on the aircraft since it was easier than retrieving my wheelchair and getting me back on board. The flight crew has been phenomenal. We should be landing at LAX sometime this afternoon.

I can’t wait to see my California family today, and then my northern family in a few days!

Has this ever happened to you? Tamara and I would love to hear your experiences. Comment below! 💬👇

Terry flying again today on Delta ✈️ August 9, 2024, flight number 898 from Atlanta to Los Angeles. This is my second flight in six weeks, and we’ve had some mechanical delays.

Got halfway off the plane only to realize my wheelchair was nowhere to be found. The pilot was amazing—he went downstairs multiple times to locate it. Turns out, it was on a cart near the airplane, and no one was notified. The pilot decided to keep me on the aircraft since it was easier than retrieving my wheelchair and getting me back on board. The flight crew has been phenomenal. We should be landing at LAX sometime this afternoon.

I can’t wait to see my California family today, and then my northern family in a few days!

Has this ever happened to you? Tamara and I would love to hear your experiences. Comment below! 💬👇

Hashtags:

#TravelAdventures #DeltaAirlines #FlyingWithDisabilities #AmazingCrew #TravelChallenges #WheelchairTravel #CaliforniaBound #AirlineExperience #StrongTogether #SupportSystem #thisisms #curems

#TravelAdventures #DeltaAirlines #FlyingWithDisabilities #AmazingCrew #TravelChallenges #WheelchairTravel #CaliforniaBound #AirlineExperience #StrongTogether #supportsystem

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Life is a blessing from God, and every child deserves the opportunity to learn and grow. We invite anyone with a kind heart to join us in building classrooms for children with disabilities. Together, we can make a difference and ensure these children receive the education they deserve. Saturday Jul 2024

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#viral #parapowerlifin #video #reels #instagram #pesas #deportista #superación #viralreels

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Playing with ranges of motion can be very useful when addressing capabilities or to add a different challenge. We start here with Big sit ups, controlling downward then move to Med, small. #mitchandbill #musculardystrophyawareness #FSHD #fsh #fshdfitness #ABS #eccentric #lordosis

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