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Poppy 🌀

@small.figs

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Sharing my whimsical life with me/cfs
Fleabags mum 🐕
🌀🐞🕯️🔮💌
📧 [email protected]

POSTS STORIES REELS TAGGED

My experience with Severe ME 💙♿️🩵
CW: A PERIOD OF BETTERING HEALTH - this can be particularly triggering to pwME as seeing other people's improvements can be difficult to watch when you're struggling. This is particularly poignant here as we are discussing Severe ME, a condition with very low quality life outcomes. Please be aware of this CW when reading this post.
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As I am currently mod/sev & so don't currently represent the full 'Severe' status all the time, I wanted to provide a list of creators who do have Severe ME who you should follow:
@franhaddock_
@thejournalingrat
@thatgalwithlongcovid
@bloomanddot
@crip.with.me
@small.figs
@izblooms
Please give them all a follow and check out their content ❤️‍🩹 Thank you x
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If you're interested more in what Severe ME is or Safer hospital for Severe ME patients I have written two seperate posts on those prior to now so feel free to check them out and help spread awareness by sharing those too 🥄
#pwME #SevereME #MEAwareness #MEcfs #millionsmissing

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A little love letter to our Mama Mane community. 🌸

It truly is a special feeling knowing we’re not just clothes — we become part of your story.

The birthdays, the holidays, the celebrations, the everyday moments. The photos you’ll look back on and remember what you were wearing, where you were, and how you felt.

Knowing our pieces have been part of those memories is something we’ll never take for granted.

Every tag, every photo and every memory you share is such a gift to us.

Thank you for sharing your stories with us. It truly is one of the greatest gifts of what we do. ✨

#smallbusiness #community #customerlove

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i made a #katoomba #reel #lol i love my friends so much !! ^W^ 🪽💖

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me n fleabag,, pops n me n yochi and markets in Katoomba,, me + aaron + fleabag,,, aaron in bookstores in the blue mountains,, pops + aaron + fleabag,,, more pops!!!!! more markets!!!!!! thank U friends for the photos n memories. i will miss U and i will miss NSW !!!!!!!!

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double post because i love my Pops and i love my Aaron : - ) thank you for hosting my time in the blue mountains ! i will be your penpal and your best pal from Radelaide in EVERY lifetime.

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friends makes the world go round ! so does Katoomba :~~)

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Comment “VIP” to access Mint! 💚

A BIG congratulations to our 3 winners! 🥳👏🏼

@meljane5296 - Biscoff
@small.figs - Pistachio
@jessicalawrenc.e - Kinder Bueno

DM’s have been sent, so please check your messages for more info!

I am BEYOND excited to be launching these flavours soon!

You’re gonna be obsessed! 😍

The launch date for our stuffed brownie balls is still yet to be announced, so if you want to find out first, comment “waitlist”! 🤎

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today is myalgic encephalomyelitis (ME) awareness day - a day to uplift our experiences, listen to us, advocate for us, and campaign for change.

but this should be happening every day, because ME is continuing to ruin millions of people's lives. yet it remains one of the most underfunded & understudied diseases despite 1 in 4 people with ME being severe - completely bedbound and reliant on 24/7 care.

💭 in this post, i talk about what ME is and what you can do to support us. if this is your first time hearing about this disease, or you want to know more, please learn from the charities & research centres on slide 14 and creators that i have tagged on slide 15!

sending so much love to everyone with ME today or to people with a loved one with ME. living with this disease is so difficult & we deserve to be heard. 💙

(all info in this post is from the mentioned organisations & the NHS!)

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#MECFS #MyalgicEncephalomyelitis #MillionsMissing #MEAwareness #ChronicIllness me/cfs, ME, chronic fatigue syndrome, chronic condition, ME awareness day

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💙 May is ME/CFS Awareness Month 💙
(And today, May 12th, is MECFS Awareness Day!)

ME/CFS:
ME/CFS is short for myalgic encephalomyelitis / chronic fatigue syndrome. Some common symptoms of ME/CFS are overwhelming fatigue, worsening symptoms after physical or mental activities, and problems with thinking, sleep, pain, and dizziness.

People with ME/CFS cannot function the way they used to before getting sick and often struggle with daily tasks, attending work or school, and having a social life.

Post-Exertional Malaise (PEM):
Post-exertional malaise (PEM) is the hallmark symptom of MECFS and is a flare-up of symptoms or the appearance of new symptoms after exertion. Physical activity, mental overexertion, and sensory overload can all trigger PEM.

Exertion is anything that can stress or strain the system, not simply exercise. Some triggers include standing or positional changes, long conversations, scholarly work, loud noises, bright lights, emotional interactions, and environmental changes.

Pacing:
Pacing is a strategy for managing symptoms, especially fatigue, by balancing rest and daily activities. People living with various health conditions, including ME/CFS, fibromyalgia, and chronic pain, utilize pacing to help with symptom management.

With ME/CFS, pacing can improve quality of life and prevent disease progression for many, but ME/CFS can still progress in some cases, especially if someone is caught in the boom/bust cycle (i.e., where people keep going past their limits and crash.

Energy envelope:
When an individual stays within their “energy envelope,” they have determined their energy limits for mental, emotional, and physical activities and stay within them. This is difficult to do as energy limits can change frequently and without warning.

According to a recent study on ME/CFS, energy envelope theory asserts that “patients who maintain their expended energy at a level consistent with their available energy will have better health outcomes and quality of life than those who over-expend their energy levels.”

#ThisIsME #MECFSAwareness #UnitedForME #MillionsMissing

TBC and IDs in comments. All tags in comments.

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some snaps from Pops, 2023 sometime - i miss my besties and nsw, and i can’t wait to explore and reunite soon 🦷👀 !

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This hat is up for grabs!! Check out @small.figs’s raffle to support someone with severe ME.

This is the Blomstra hat pattern (with my own colourwork chart). And I knitted it with my own hand spun yarn - it’s Otago merino.

ID: A Pākeha (NZ European) hand holding a rust-red, all-over colourwork beanie that has a beige leafy pattern. It’s held against a green hedge. A rust red beanie with a beige leafy colourwork motif

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Hey Aussie friends I need your help!
Can you donate $5 and possibly win some art?!
The amazing ME/CFS community supports Nevra, a woman in Pakistan by fundraising for her housing, food and medical care.
Nevra has severe ME and has escaped DV.
Friends and I have donated prizes but have sold less than a handful of tickets - only 3 in Australia so far which makes your odds of winning some art excellent!

You will go into the worldwide raffle as well as the Australian one.
The link is in the post (and in my story!) but if you DM me RAFFLE I’ll send you the link.

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