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Eclipse with my neighbours!

I love homemade pinhole cameras, I love sharing eclipse glasses, I love waving colanders around, I love the birds going quiet, I love being human together, I love thinking about how our ancestors saw this same sight, I love shared wonder

#eclipse

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Last year, 5 weeks after chemotherapy, about 20 years since my last festival and still on active cancer treatment, I relearnt how to do a festival, this time with stage 4 cancer.

I came up with some tips* that helped:
🥳 having a bunch of caring souls as crew 🥳;
🎟️ arranging an accessibility pass (for camping, parking, loos, viewing platform, medicine fridge etc) 🎟️ ;
👸🏽 heading to bed before midnight 👸🏽;
🧘🏽‍♀️ finding alone time in the morning to meditate 🧘‍♀️;
💦 consuming more water and electrolytes than seemed reasonable 💧;
🍒 eating well - avoiding fried foods, and keeping sweet treats to maximum one per day🍦;
🌱 finding the medical fridge for meds and supplements 🌱
🔑 purchasing a radar disability toilet key 🔑;
⛔️ stepping back from aggy crowds ❌ ;
⏰ setting a vibrating alarm for medication 💊

And mainly
💖 trusting that my body could do it 💖!

*this is my list and so not definitive but here to help think about your own needs.

Please do add you’re own below 👇🏽

#lungcancer #younglungs #osimertinib #tagrisso #stage4cancer

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There is another type of cancer treatment! Dancing, movement, community!

Since diagnosis last year, I have barely danced. I’ve struggled to trust my body, to let go, to lose control, to be carefree - all the things that dancing is! Recently, I’ve been saying to Robin how much I have wanted to dance. But not be in an enclosed space where claustrophobia quickly sets in. Step forward We Out Here festival! Safe, inclusive, outdoors and full of great musical energy.

With the help of my dear friend Almass, a minibus of very magical humans headed down to Dorset to camp and dance in sunshine fields. And surrounded by this supportive community I gradually stepped into the energy of the festival. And WOW did it feel good. To think I was treating this cancer with chemotherapy into my veins 5 weeks ago, this certainly felt like another powerful kind of treatment; joy pumped into my soul!

#lungcancer #younglungs #egfr #livingwithlungcancer #livingwithstage4 #livethefuckoutoflife #weouthere

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With Stage IV Lung Cancer I am doing my first ultramarathon! In one month and one day I’ll attempting to walk 53km around the Isle of Wight alongside a bunch of incredible humans who have signed up to walk with me.

Since my diagnosis in January I have been on a magic pill called that has given me back my energy. Advancements in cancer treatment have meant that targeted therapies like my miracle Osimertinib pill have only come about through research. One day, this pill will stop working. And so we are raising funds for the TRACERx study. This study, supported by UCLH Cancer Charity, specifically looks into drug resistance in Stage IV Lung Cancer.

We will be taking on this challenge on 3rd May, 5 days before my 42nd birthday. As a marathon runner, non-smoker, vegan too (!) I never expected a lung cancer diagnosis but it is important to me to take this on; to show up for myself, my friends and family who have been so supportive. And, of course, to prove to my amazing medical team that all their hard work is giving me a fabulous life worth living.

Read more about my story and please donate all you can at the link in my bio.

With love and gratitude,
Sarah

#lungcancer #livingwithstageiv #stage4cancer #Young lungs #TRACERx #egfr #NSCLC #ultramarathon

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Bank hols fun ✌️

Love, Laugh, Live ☀️

#bankholidayweekend #coronation #besties #goodvibesonly #laughter #joy #lifecoach #movementandmindset

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#CelineDion #MyLove #Birmingham 2008

🎥 Tom Evans

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I can't believe it already is one year ago we got to see the amazing @celinedion at @bsthydepark in London!! It was such a wonderful, sunny day! 😎 So happy we got this special Celine concert last year! ❤ Especially with the #courageworldtour being rescheduled to 2021! And it was awesome to experience it all with my Celine friends🥰 And so wonderful to hear Ashes and FOMO live🎶 💃🕺celinebrating in style with my #fomo shirt!! 🧡💛💚💙💜🖤

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Cousin time 🥰 (competition for the craziest!)

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I can't believe this happened one week ago already!! What an amazing time we had 🥰🥰 Can't wait too see Céline andher amazing band on the #courage tour! @celinedion @kavengirouard #FOMO #flyingonmyown #hydepark #london

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What a trip! London, please never leave me💙
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#london #londres #van5 #sumaysigue #hydepark #britishsummertime #britishsummertimefestival #celinedion #pride #music #londoner #thebestisyettocome

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6 months ago! My! My! Time flies!
Exactly on this day, six months ago, a long time dream of mine was about to come true. What a day! Let’s do it again soon❤️ .
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#tbwednesday #tbh #celinedion #celinedionfans #london #londres #londres2017 #theo2 #o2 #liveshow #concert #music #musica #musicismydrug #thebestisyettocome #thepowerofmusic #thepoweroflove #thepowerofthedream #dreamcometrue #dreaming #2017 #bestmoments #thankful @celinedion @pepemunozillustrations @johnmanley @daveyh1984 @_t0mevans

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