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Official #4ED - supporting those affected by MND
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This week I was invited to attend the Women of the Year Awards 2026, to receive an award for the @the4edfoundation  as a Campaigning Champion for MND, alongside the incredible Lindsey Burrow, Kathy Weir and Annie Moody. It was such an incredible honour to be able to receive an award in a room full of magical women, championing their own and others hard work and passions. 

Lindsey made the most incredible speech, after we were awarded by MNDA ambassador Charlotte Hawkins @charlottehawkins1 who sadly lost her father to MND and knows first hand how cruel the disease can be. 

To be honest, it was very overwhelming and completely out of my comfort zone being at such a prestigious event, as my day to day now is caring for Ed, making sure the kids get their snacks (essential) and ensuring my family feels safe and well loved. 

It takes a huge amount of organisation to leave Ed to make sure he is cared for with experienced help in the things I’ve had to learn on the job as a carer- whether it’s peg feeding, medication, his NIV machine or hoisting. 

When you’re so used to leading his care requirements, it’s anxiety inducing leaving him- as living with MND, the smallest of things that can happen in an instant can have the biggest repercussions and I want to make sure I’m there for anything- a choking episode, a fall, a communication issue. 

Caring is a huge change from life pre Ed’s diagnosis, but I consider it such a privilege that I am able to care for Ed and ensure his needs are met and can protect my kids and make sure their experience of living life with MND is as comfortable and positive as possible. 

I use the word privilege because living with MND can have so many factors that make it extremely difficult and volatile to be able to advocate for your loved one- with differing levels of support services based on location, financial hardship, limited support networks, and social isolation as well as many more. 

What I do day to day is out of love and adoration for Ed, his strength and what he believes in - a better quality of life and support for those living with MND. That is why we created the 4Ed Foundation.

I share this award with those amazing women that h
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