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Running for Rare @nycmarathon 🧡 Honored to walk in the Opening Ceremony: Parade of Nations representing National Organization for Rare Disorders 🦓 This incredible team of runners for @nord_rare are the definition of inspiration, from veteran runners like Ben + Samantha Kany to the first timers (🙋🏻‍♀️).

National Organization for Rare Disorders is a lifeline for countless warriors and families. Patient advocacy, policy, research, resources, care… the list goes on. Your donations help patient and caregiver support continue!

Thank you to the NORD team and special 🫂 for Jaime for your guidance 🧡

Cheers to this team: Abby Maderia, Amanda Pahl, Amanda Bernstein, Austin Dodd, Benjamin Kany, Bridget Joyce, Brittney Thompson, Elaina Tiller, Janaiah McClure, Jason Riddell, Jax Gardner, Joe Schmidt, Julia Maderia, Kaitlyn Smolich, Kellie Jones-Bowles, Kerry Comiskey, Maeve Brin, Megan Keller, Mimi Sue Novak, Natalia Portyko, Sam Klingenberg, Samantha Kany, Shannon Jones, Sophie Manning, Steve Koppell, Teigen Christiansen, Victoria Ferdinandi, Lauren Parnell, Sharon Cotman 🧡

#nycmarathon #behcetsdisease #rarediseaseawareness #behcets #spooniecommunity

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A couple of off days and I'm back 👊

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Blessed for the 3 miles today. 1/2 on the sand.

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Last day of Suicide Provention month. Don't let it fade away tomorrow.

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