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The TTTS Foundation

@tttsfoundation

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#TTTS #FIGHTTTTS #twintotwintransfusionsyndrome including #TAPS #twinanemiapolycythemiasequence #SIUGR #TRAPsequence #TAPSisSILENT
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I’m the only sibling in my family with a disability. Here’s my experience. 🫶

Are you the only sibling in your family with a disability?
I am. In fact, I’m an identical twin with a disability, Cerebral Palsy. 💚

I’m sure siblings with disabilities can relate to the struggles of being the only person in your family with a disability and if you do, please feel free to share in the comments. 🫶

Please follow me for more of my experience as the only sibling in my family with a disability and for more Cerebral Palsy, disability, and mental health awareness! 💚🦋

Please share and repost this reel to help me spread Cerebral Palsy and disability awareness and/or if you find this reel relatable! Thank you! 💚🦋🫶

I’m a teen with mild Cerebral Palsy and anxiety. I share reels and posts to raise Cerebral Palsy, disability, and mental health awareness! 💚🦋 Let’s support each other! 🫶

#siblings
#twins
#cerebralpalsy
#cerebralpalsyawareness
#disabilityawareness

Key words: Siblings • Sibling with disability • Twins • Identical twin • Twin with disability • Sibling with Cerebral Palsy • Cerebral Palsy • Cerebral Palsy teen • Cerebral Palsy Warrior • Cerebral Palsy Strong • Cerebral Palsy awareness • Mild Cerebral Palsy awareness • Life with mild Cerebral Palsy • Life with Cerebral Palsy • Share your Cerebral Palsy story • Share your disability story • Mental health • Mental health awareness • Mental health matters • Determination • Inclusion • Own who you are • Disability advocate • Cerebral Palsy advocate • Mental health advocate • Share your story • Accomplishments • Storyteller • Teen content creator • Content creator • For you • For you page • Awareness reel • Education reel • Reels

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Representing… 🫶
People with disabilities!
People with mental health struggles!
Disability advocates!
Cerebral Palsy advocates!
Mental health advocates!
Twin to Twin Transfusion Syndrome survivors!
Inclusion!
Kindness!
Determination!
Following your dreams!
Storytelling!
Following your own path!

Please follow me for more Cerebral Palsy, disability, and mental health awareness!! 💚🦋

Please share and repost this reel to help me spread Cerebral Palsy, disability, and mental health awareness and/or if you find this reel relatable! Thank you! 💚🦋🫶

I’m a teen with mild Cerebral Palsy and anxiety. I share reels and posts to raise Cerebral Palsy, disability, and mental health awareness! 💚🦋 Let’s support each other! 🫶

@tttsfoundation
@yourcpf
@cerebralpalsystrong
@cerebralpalsygrowsup

#cerebralpalsy
#cerebralpalsyawareness
#disabilityawareness
#disabilityadvocate
#shareyourstory

Key words: Cerebral Palsy • Cerebral Palsy teen • Cerebral Palsy Warrior • Cerebral Palsy Strong • Cerebral Palsy awareness • Mild Cerebral Palsy awareness • Life with mild Cerebral Palsy • Life with Cerebral Palsy • Share your Cerebral Palsy story • Share your disability story • Mental health • Mental health awareness • Mental health matters • Determination • Inclusion • Own who you are • Twin to Twin Transfusion Syndrome • Twin • Twin to Twin Transfusion Syndrome Survivor • Disability • Disability advocate • Cerebral Palsy advocate • Mental health advocate • Share your story • Accomplishments • Storyteller • Storytelling • Teen content creator • Content creator • For you • For you page • Awareness reel • Education reel • Story reel • Reels

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My message for my twin sister who is going off to college today!! 🫶💗💕🩷💖❤️🥰🎉🎉

Grace, this message is for you!! 🫶💗💕🥰

Love,
Sophia 🫶💗💕❤️

#college
#twins
#memories
#newchapter
#nextchapter
@tttsfoundation

Key words: College • Twins • Memories • New chapter

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TTTS becomes more apparent with each passing year.

These boys are twins, but their paths continue to look so different. From the very beginning, nothing about their twin journey has been typical. Yet through it all, I’ve had the privilege of watching an incredible bond grow between them despite their differences.

When we’re out in public, we hear the questions all the time.

“Are they twins?”

“They look just alike!”

“One is so much bigger than the other.”

Those questions have never really bothered me. They’re simply reminders that people only see a small part of our story.

As they get older, we’re having more intentional conversations with each of our children about why their journeys look different. We’re teaching them compassion, understanding, empathy, and that sometimes life isn’t equal, but that doesn’t mean it isn’t good. We’re learning together to accept the things we cannot change while continuing to celebrate the unique gifts and milestones each child has.

TTTS Facts: For those who may not know, Twin-to-Twin Transfusion Syndrome (TTTS) is a rare pregnancy complication that affects identical twins who share one placenta (monochorionic twins). Uneven blood flow between the babies can lead to very different medical challenges before birth, and for many families, the effects can continue long after pregnancy. TTTS affects approximately 10–15% of identical twin pregnancies that share one placenta. Early diagnosis and specialized fetal care have greatly improved outcomes, but many families continue to navigate the long-term effects long after birth. #tttssurvivors #tttsfoundation #nicusurvivor

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from finding out about twins at 12 weeks, to having a laser surgery on my placenta at 18 weeks to resolve TTTS + TAPS, and now almost 32 weeks with no reverse signs. we have been through so much mentally, physically, and emotionally. these boys have taught me so much already , with the biggest lesson being to fully surrender and depend on Jesus.
I cannot believe we are getting closer and closer to meeting our wonder boys.

#twinpregnancy #twinmom #pregnancyjourney #ttts #identicaltwins

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Tremendous Hope for Families Diagnosed with TTTS

Led by Imperial College London and Imperial College Healthcare NHS Trust, this world-first study found that high-intensity focused ultrasound (HIFU) can safely stop blood flow in the abnormal placental vessels that cause the condition, without adverse side effects, thereby satisfying the Phase 1 study.

The second phase of the study will aim to determine whether HIFU can stabilize or reverse TTTS. The team is now planning a larger clinical trial with 50-100 women to assess this. If successful, this treatment could be offered to patients with the condition outside the trial in the future.

Led by Professor Christoph Lees, head of fetal medicine at Imperial College Healthcare NHS Trust and professor of obstetrics at Imperial College London, and published in the American Journal of Obstetrics and Gynecology, this is the first-in-human study of its type in early-onset TTTS (12-17 weeks) on anterior placentas and involved 10 women from the UK and Europe.

This new study found that the procedure successfully blocked blood flow in 90 percent of treated placental blood vessels. Those women who took part and their unborn twins experienced no adverse effects. The treatment was well received by the women who took part.

Brioney Garrett's twins survived after her anterior placenta was treated with HIFU. Brioney says, "I feel that any woman offered the opportunity to participate should jump at the chance."

All of the mothers in this study are heroes, fighting for their babies in the midst of being diagnosed with a horrible condition out of everyone's control. We honor them and their precious children.

The TTTS Foundation is proud to partner with Dr. Lees and his team to fight for the lives of all babies diagnosed and to help all parents have the chance to try to save their babies. We will continue to do all we can to help families participate in the study.

For more information and direct help, go to tttsfoundation.org

#ttts #twintotwintransfusionsyndrome #HIFUforTTTS #tttssurvivors #tttsawareness #formatthewandsteven #daisybabies

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Vote for our little Jordan so we have the opportunity to donate money to the @tttsfoundation. We want to spread awareness about TTTS so others dont need to go through what we did. Miss you every day Alex. 💙🤍
https://toddleroftheyear.org/2026/jordan-a4e3

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Tiny toes, big journey ✨👣

Before birth, this little fighter underwent fetoscopic laser ablation for Twin-to-Twin Transfusion Syndrome (TTTS) - a delicate fetal procedure performed to help give both babies the best possible chance at life.

#fetalsurgery #fetalmedicine #ttts #tttssurvivors #pediatricsurgery

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TW medical trauma ⚠️

Quick recap: twin to twin transfusion syndrome is when mono/di twins that share a placenta (like my girls did) experience uneven blood sharing. The twins TTTS was quite severe (as you know if you followed me then). I was monitored very closely with a high risk doctor from 16ish weeks onward. I had hour long ultrasounds to check on each girl. I was then put on bedrest for 3 months at the end of my pregnancy in order to conserve my energy and not stress the girls.

Today we are so so so so grateful to have two healthy baby girls. It could have been much much worse. We prepared for the worst. We had a hurdles in the beginning but since then things have been mostly typical (aside from being pre-term and hitting milestones whilst remembering adjusted age..). However in one of the girls we’re seeing the effects of TTTS. This is showing up as nuerodevelopmental issues in one of the girls. Why? Even at Stage 1 TTTS the sharing of an unbalanced placenta means the donor twin is often suffering from reduced blood flow.

However we are on the right path. We’re doing physical therapy and will continue to to help our girl with her walking. At this time no further interventions are needed. 🫶🏽

Why am I sharing this? To help raise awareness. And as another reminder to please be kind to twin families and say positive things to them (you never know the risks they’ve experienced). And to please not ask women when they’re going to have another baby because you don’t know how scary their most recent pregnancy was.

I’m still traumatized from the girls pregnancy. Nobody wants to spend most of their pregnancy hearing their babies are unlikely to survive. ❤️‍🩹 were the lucky ones but it comes at a huge cost.

#twins #twinmom #monoditwins

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Cerebral Palsy Awareness Facts Series: 5 of 5 💚

💚 Cerebral Palsy the most common lifelong physical disability in the world.
💚 40% of people with Cerebral Palsy are born prematurely.
💚 Approximately 10% of all Cerebral Palsy cases occur in twins.
💚 The energy used to move by a person with Cerebral Palsy is three (3) to five (5) times more than that of a person without Cerebral Palsy.

Sources: Cerebral Palsy Alliance Research Foundation (@cpalliance) & Cerebral Palsy Research Network (@cerebral_palsy_network)

Please share and repost this post to help me spread Cerebral Palsy awareness! 💚

Follow me @skye_fullofstories for the rest of my Cerebral Palsy Awareness Facts Series across 5 days and help me spread Cerebral Palsy and disability awareness! 💚🦋🫶 l would appreciate your support, so please follow me on my Cerebral Palsy and mental health journey! 💚🦋💙🧿 We can support each other! ❤️ I’m a teen living with mild Cerebral Palsy and anxiety. 💚🦋🫶

#cerebralpalsyawareness 💚🦋
#cerebralpalsywarrior 💚🦋
#cerebralpalsystrong 💚🦋
#cerebralpalsy 💚🦋
#disabilityadvocate 🦋🫶

Key words: Cerebral Palsy • Cerebral Palsy teen • Cerebral Palsy Warrior • Cerebral Palsy Strong • Cerebral Palsy awareness • Mild Cerebral Palsy awareness • Wear green for Cerebral Palsy • Twin to Twin Transfusion Syndrome • Twin with Cerebral Palsy • Mental health • Teen mental health • Teen mental health awareness • Mental health awareness • Mental health matters • Anxiety and depression • Determination • Inclusion • Inspiration • Facts • Cerebral Palsy facts • Own who you are • Teen content creator • Content creator • For you • For you page • Relatable

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#gogreen4cp over the years 💚🦋

Happy National Cerebral Palsy Awareness Day!! 💚💚

Please share and repost this post to help me spread Cerebral Palsy awareness! 💚💚🦋

Join me in wearing green TODAY to celebrate National Cerebral Palsy Awareness Day!! 💚💚🦋🦋

Follow me @skye_fullofstories to help me spread Cerebral Palsy and disability awareness! 💚🦋🫶 l would appreciate your support, so please follow me on my Cerebral Palsy journey! 💚🦋💙🧿 We can support each other! ❤️ I’m a teen living with mild spastic Cerebral Palsy right hemiplegia. 💚🦋🫶

#cerebralpalsyawareness 💚🦋
#cerebralpalsywarrior 💚🦋
#cerebralpalsystrong 💚🦋
#cerebralpalsy 💚🦋

Key words: Cerebral Palsy • Spastic Cerebral Palsy right hemiplegia • Cerebral Palsy teen • Cerebral Palsy Warrior • Cerebral Palsy Strong • Cerebral Palsy awareness • Cerebral Palsy journey • Mild Cerebral Palsy awareness • Wear green for Cerebral Palsy awareness • Twin with Cerebral Palsy • Twin to Twin Transfusion Syndrome • Determination • Inclusion • Inspiration • Own who you are • Disability advocate • Teen content creator • Content creator • For you • For you page • Relatable

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We are so happy to see these cute 6 months old twins doing so well after fetal surgery for twin-to-twin transfusion syndrome (TTTS) by Dr. Monson @mmonson3 🌟🌟🌟

#fetalsurgery #fetalmedicine #tttssurvivors #ttts #slcmoms

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