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This is Parkinson’s

@thisisparkinsonsofficial

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ꕤ Real stories. Real lives. Shared humanity.
ꕤ Building community past the diagnosis.

⬇ Watch • Learn • Connect ⬇

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This is Parkinson’s on Good Morning America! Lisa Volenec Shares Her Story with Michael Strahan

What an absolute milestone moment! Watching Michael Strahan share this story on Good Morning America was nothing short of incredible, and we could not be more proud or more grateful for this platform to highlight what This is Parkinson’s is truly about.

We are overflowing with gratitude! Watch as our very own Lisa Volenec joins Michael Strahan on Good Morning America to share her deeply personal journey and shine a massive spotlight on the mission behind the This is Parkinson’s foundation.

A huge, heartfelt thank you to Michael Strahan and the entire GMA team for telling this story with such care, authenticity, and heart.

We are so incredibly proud of this segment and the opportunity to show the world what living with Parkinson’s really looks like—the challenges, the resilience, and the community we are building together.

This is a beautiful milestone for our foundation, and we are so thankful to everyone who has supported us along the way.

We’re just getting started!

This is Parkinson’s is dedicated to honest conversations and real stories from people living with Parkinson’s, caregivers and experts and this podcast shines a light on the realities of the disease while building a community of support, education and hope.

If Parkinson’s has touched you life in any way, this is the space for you.

Watch and listen now on YouTube, Apple Podcasts, Spotify or wherever you get your podcasts.

Visit our website and send us a message if you’d like to share your story living with or experiencing Parkinson’s

The Mission is simple: To make sure no one feels invisible.

Learn more: thisisparkinsons.org

💙 Please support the This is Parkinson’s mission.

💙💙Click the donate link in our bio

💙💙💙 Visit: thisisparkinsons.org/donate

#ThisIsParkinsons #GoodMorningAmerica #MichaelStrahan #GMA #ParkinsonsAwareness by @thisisparkinsonsofficial

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4 months ago

Meet Lisa Volenec.

ꕤ A journalist. A storyteller.
ꕤ And someone living with Parkinson’s.

After more than a decade of silence, she’s choosing to speak — and to create space for others to do the same.

This Is Parkinson’s exists to share real stories and lived experience.

🩵 This is where it begins.

-
#thisisparkinsons #parkinsons #mystory #livingwithparkinsons #sharedexperiences by @thisisparkinsonsofficial

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9 months ago

Ahman Green ( @ahmangreen30 ) told me, in the latest episode of This is Parkinson’s, that men need to be more open about their health, mental health, and their life in general. He was inspired to be more open after hearing one of his idols talk about being more open and honest. Watch the full interview on the This is Parkinson’s YouTube channel.

@michaeljfoxorg

#ahmangreen #huskers #greenbaypackers #parkinsons #thisisparkinsons by @thisisparkinsonsofficial

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2 hours ago

On this powerful episode of This Is Parkinson’s, host Lisa Volenec is joined by Nebraska Cornhuskers and Green Bay Packers football legend Ahman Green ( @ahmangreen30 ) .

From breaking records on the football field to breaking the silence on Parkinson’s. 🏈💙

Ahman shares his journey with early-onset Parkinson’s disease, offering a profound look at vulnerability, mindset, and what it truly means to face life’s unexpected playbook with courage and grace.

We are deeply grateful to Ahman for sharing his truth and helping light the path for others in the community. Head to the link in our bio to listen to the full episode! 🎧✨ . . .

#AhmanGreen #ThisIsParkinsons #ParkinsonsAwareness #GreenBayPackers #NebraskaCornhuskers

This is Parkinson’s is dedicated to honest conversations and real stories from people living with Parkinson’s, caregivers and experts and this podcast shines a light on the realities of the disease while building a community of support, education and hope.

If Parkinson’s has touched your life in any way, this is the space for you.

Watch and listen now on YouTube, Apple Podcasts, Spotify or wherever you get your podcasts.

Visit our website and send us a message if you’d like to share your story of living with or experiencing Parkinson’s.

The Mission is simple: To make sure no one feels invisible.

Learn more: thisisparkinsons.org

💙 Please support the This is Parkinson’s mission.

💙💙Click the donate link in our bio

💙💙💙 Visit: thisisparkinsons.org/donate by @thisisparkinsonsofficial

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3 days ago

“Every day I wake up, I appreciate that day and that I get to be with my family.” 🌿✨

On this episode of This Is Parkinson’s, Lisa Volenec sits down with artist, advocate, and light-filled human Hadley Ferguson ( @Summit_for_parkinsons ).

After being diagnosed with Young Onset Parkinson’s and later Multiple System Atrophy (MSA)—a rare, atypical form of Parkinsonism—Hadley transformed her journey into art, action, and community.
From her international work The Tree of Resilience (now residing at the @michaeljfoxorg) to creating Montana’s first dedicated Parkinson’s resource center (Summit for Parkinson’s), Hadley’s story is a masterclass in adapting, staying present, and finding joy.

@summit_for_parkinsons

This is Parkinson’s is dedicated to honest conversations and real stories from people living with Parkinson’s, caregivers and experts and this podcast shines a light on the realities of the disease while building a community of support, education and hope.

If Parkinson’s has touched your life in any way, this is the space for you.

Watch and listen now on YouTube, Apple Podcasts, Spotify or wherever you get your podcasts.

Visit our website and send us a message if you’d like to share your story of living with or experiencing Parkinson’s.

The Mission is simple: To make sure no one feels invisible.

Learn more: thisisparkinsons.org

💙 Please support the This is Parkinson’s mission.

💙💙Click the donate link in our bio

💙💙💙 Visit: thisisparkinsons.org/donate by @thisisparkinsonsofficial

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17 days ago

What happens when you look below the surface of a Parkinson’s diagnosis? 🤔 This episode of This Is Parkinson’s, Lisa Volenec talks with Dr. Erin Smith, a Movement Disorder Specialist from the University of Nebraska Medical Center. ( @unmcmovementdis )

We’re talking about the realities of the disease that go far beyond a tremor—from navigating the emotional toll and hidden symptoms like apathy and compulsions, to the absolute necessity of building a multidisciplinary care team.

🎙️ Whether you are a patient, a care partner, or just want to understand the fastest-growing neurodegenerative disease, this episode is packed with essential guidance and real hope for the future.

@iamunmc

This is Parkinson’s is dedicated to honest conversations and real stories from people living with Parkinson’s, caregivers and experts and this podcast shines a light on the realities of the disease while building a community of support, education and hope.

If Parkinson’s has touched your life in any way, this is the space for you.

Watch and listen now on YouTube, Apple Podcasts, Spotify or wherever you get your podcasts.

Visit our website and send us a message if you’d like to share your story of living with or experiencing Parkinson’s.

The Mission is simple: To make sure no one feels invisible.

Learn more: thisisparkinsons.org

💙 Please support the This is Parkinson’s mission.

💙💙Click the donate link in our bio

💙💙💙 Visit: thisisparkinsons.org/donate

#ParkinsonsAwareness #universityofnebraska #huskers #universityofnebraskamedicalcenter #drerincameronsmith by @thisisparkinsonsofficial

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19 days ago

Twelve years.
Today marks 12 years since my Parkinson’s diagnosis. Looking back, I am filled with overwhelming gratitude.

Navigating this journey would be impossible without the incredible, resilient community that surrounds me. To my friends, family, and everyone who has walked alongside me—thank you for your unwavering support, love, and understanding.
I also want to express my deepest appreciation to The Michael J. Fox Foundation @michaeljfoxorg for their relentless drive toward a cure and for being an enduring source of hope for millions.

Building This Is Parkinson’s has been one of the most fulfilling chapters of this journey, allowing us to connect, advocate, and lift each other up. Thank you to everyone who lends their voice, shares their story, and helps us build a stronger community every single day.

Here’s to strength, community, and moving forward together. 💙
#ParkinsonsAwareness #ThisIsParkinsons #MJFF #ParkinsonsCommunity #Gratitude LivingWellWithParkinsons by @thisisparkinsonsofficial

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a month ago

Where do we find hope when navigating life with Parkinson’s?

On this episode of This Is Parkinson’s, Lisa Volenec is thrilled to welcome Dr. Erin Cameron-Smith, a Movement Disorder Specialist from the University of Nebraska Medical Center. ( @unmcmovementdis )

Dr. Cameron-Smith talks about the incredible power of community, support networks, and the future of research.

* The Power of Community: Strong local networks—like Heartland Neurological in Waterloo and support groups in Lincoln and Omaha—provide built-in systems where people can lean on one another and share a shoulder when it’s needed most.

* A Spectrum, Not Just a Disease: Parkinson’s often behaves more like a syndrome or a continuum rather than a single uniform disease, with unique genetic types and dominant symptoms varying by individual.

* Promising Research: Emerging advancements like gene-modifying therapies and evolving stem cell techniques are driving clinical trials forward and sparking optimism for the future of treatment.

What gives you the most hope on your journey? Let us know in the comments below! 👇

🎙️ Whether you are a patient, a care partner, or just want to understand the fastest-growing neurodegenerative disease, this episode is packed with essential guidance and real hope for the future.

@iamunmc

This is Parkinson’s is dedicated to honest conversations and real stories from people living with Parkinson’s, caregivers and experts and this podcast shines a light on the realities of the disease while building a community of support, education and hope.

If Parkinson’s has touched your life in any way, this is the space for you.

Watch and listen now on YouTube, Apple Podcasts, Spotify or wherever you get your podcasts.

Visit our website and send us a message if you’d like to share your story of living with or experiencing Parkinson’s.

The Mission is simple: To make sure no one feels invisible.

Learn more: thisisparkinsons.org

💙 Please support the This is Parkinson’s mission.

💙💙Click the donate link in our bio

💙💙💙 Visit: thisisparkinsons.org/donate

#ParkinsonsAwareness #universityofnebraska #huskers #universityofnebraska by @thisisparkinsonsofficial

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a month ago

What happens when you look below the surface of a Parkinson’s diagnosis? 🤔 This week on This Is Parkinson’s, Lisa Volenec is thrilled to welcome Dr. Erin Smith, a Movement Disorder Specialist from the University of Nebraska Medical Center. ( @unmcmovementdis )

We’re talking about the realities of the disease that go far beyond a tremor—from navigating the emotional toll and hidden symptoms like apathy and compulsions, to the absolute necessity of building a multidisciplinary care team.

🎙️ Whether you are a patient, a care partner, or just want to understand the fastest-growing neurodegenerative disease, this episode is packed with essential guidance and real hope for the future.

@iamunmc

This is Parkinson’s is dedicated to honest conversations and real stories from people living with Parkinson’s, caregivers and experts and this podcast shines a light on the realities of the disease while building a community of support, education and hope.

If Parkinson’s has touched your life in any way, this is the space for you.

Watch and listen now on YouTube, Apple Podcasts, Spotify or wherever you get your podcasts.

Visit our website and send us a message if you’d like to share your story of living with or experiencing Parkinson’s.

The Mission is simple: To make sure no one feels invisible.

Learn more: thisisparkinsons.org

💙 Please support the This is Parkinson’s mission.

💙💙Click the donate link in our bio

💙💙💙 Visit: thisisparkinsons.org/donate

#ParkinsonsAwareness #universityofnebraska #huskers #universityofnebraskamedicalcenter #drerincameronsmith by @thisisparkinsonsofficial

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a month ago

What happens when you look below the surface of a Parkinson’s diagnosis? 🤔 This week on This Is Parkinson’s, Lisa Volenec is thrilled to welcome Dr. Erin Smith, a Movement Disorder Specialist from the University of Nebraska Medical Center. ( @unmcmovementdis )

We’re talking about the realities of the disease that go far beyond a tremor—from navigating the emotional toll and hidden symptoms like apathy and compulsions, to the absolute necessity of building a multidisciplinary care team.

🎙️ Whether you are a patient, a care partner, or just want to understand the fastest-growing neurodegenerative disease, this episode is packed with essential guidance and real hope for the future.

@iamunmc

This is Parkinson’s is dedicated to honest conversations and real stories from people living with Parkinson’s, caregivers and experts and this podcast shines a light on the realities of the disease while building a community of support, education and hope.

If Parkinson’s has touched your life in any way, this is the space for you.

Watch and listen now on YouTube, Apple Podcasts, Spotify or wherever you get your podcasts.

Visit our website and send us a message if you’d like to share your story of living with or experiencing Parkinson’s.

The Mission is simple: To make sure no one feels invisible.

Learn more: thisisparkinsons.org

💙 Please support the This is Parkinson’s mission.

💙💙Click the donate link in our bio

💙💙💙 Visit: thisisparkinsons.org/donate

#ParkinsonsAwareness #universityofnebraska #huskers #universityofnebraskamedicalcenter #drerincameronsmith by @thisisparkinsonsofficial

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a month ago

Tell Me Something Good at the 2026 World Parkinson Congress | This Is Parkinson’s

We love how many of you took the time to sit down and recorded your “Tell Me Something Good” — sharing moments of appreciation, hope, laughter, and progress in the Parkinson’s community.

A huge THANK YOU to everyone who stopped by our This Is Parkinson’s booth at #WPC2026 in Phoenix!

We loved getting to meet and talk with you! Seeing your smiling faces, hearing your voices, your stories and your optimism made the week unforgettable.
 Together, we can show the world that there’s more to Parkinson’s than challenges — there’s resilience, connection, and joy. 
Stay tuned as we share more of your inspiring Tell Me Something Good messages!

Thank you to: Reka Janisse, Amy Christ, Jason Gooding, Angie Gooding, George Ackerman, Rachel Rutley, Jen Upon, Tara Winterbothem, Casey Peluso, Jagdeep Singh Aujla, Ruth Stergiou, Dauda Sulaiman Dauda, Erin Raskin, John Lipp, Jo Bidwell, Therese Uthke, Christoph Dressel, Eric Aquino, Tim Hague, Lynn Ginzberg, Mark Needel, David Warner, Mike DeBartolo, Patty Ruybal, Dan Feehan, Krintine Coelho, Lucy Peterson, Ethan Henderson.

#ThisIsParkinsons #WPC2026 #WorldParkinsonCongress #TellMeSomethingGood ParkinsonsCommunity Hope TogetherWeCan by @thisisparkinsonsofficial

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2 months ago

Honored, inspired, and deeply grateful. ✨

This is Parkinson’s Founder Lisa Volenec recently had the privilege of moderating the Fireside Chat: Stories and Solutions—How Lived Experience Shapes Research at the 2026 NINDS Nonprofit Forum, hosted by the National Institute of Neurological Disorders and Stroke in partnership with the American Brain Coalition ( @americanbrainco ).

Joined by incredible panelists Erin “Stroke Mama” Adelekun (@stroke.mama) and Dr. Maria Kefalas (@curemld), the conversation centered on the vital role personal experience plays in driving research forward.

The forum brought together an extraordinary room of advocates with lived experience, nonprofit leaders, researchers, scientists, clinicians, industry partners, and federal agencies—all united by a single mission: to strengthen collaboration and advance neuroscience research.

Seeing the meaningful progress being made firsthand was nothing short of impressive. True breakthroughs happen when lived experience leads the way. 🧠💡

#NINDS #AmericanBrainCoalition #ThisIsParkinsons #NeurologicalDisorders #CureMLD by @thisisparkinsonsofficial

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2 months ago