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wakefuldreams

@wakefuldreams

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A sleepy girl living a beautiful life.
Awake account @_andy_girl_

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Full wakefulness is a possibility for all of us. You don’t have to be sleepy and having cataplexy for the rest of your life. #narcolepsy #autoimmunerecovery #remission #cataplexy #sleepattack by @wakefuldreams

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5 months ago

#narcolepsyremission #nomorecataplexy #narcolepsy #cataplexy #orexin by @wakefuldreams

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9 months ago

Being awake and not struggling with cataplexy is such mental freedom. No more worrying about needing to stay dry if I end up down on the wet winter trail.
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I wish someone had told me that with slow steady changes I could put narcolepsy behind me and live a full vibrant life. I was told by my Dr it’s permanent and that the hypothalamus can’t make new neurons to produce more orexin.
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Autoimmune diseases can get better. And so can narcolepsy. Be assured - You don’t need to take naps on muddy trails forever.
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#autoimmunerecovery #narcolepsy #narcolepsyremission #remission #brainrecovery #orexin by @wakefuldreams

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2 years ago

Life outside the haze and drifting dreams is becoming a reality for so many of us. Med free days that are clear, bright and without cataplexy is possible. ✨💗 Life with zero symptoms feels like a true miracle. I’m soaking it in for as long as it lasts.
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#narcolepsyawareness #narcolepsy #narcolepsyday2024 #nomeds #useeverywakefulmomentwisely by @wakefuldreams

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2 years ago

Freedom. To step outside for a cold evening walk and not have to worry if I’m dressed warm enough to lay down on the road.
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Simple walk on a crisp starry January night. Each footstep catches my weight securely. Enjoying the cold air & trusting my body can get me home.
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#thisisit #ownyourlife #believe #makeithappen by @wakefuldreams

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3 years ago

What a beautiful thing it is to wake up each morning. Feeling so blessed. Good morning 2024 by @wakefuldreams

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3 years ago

Some mornings feel like a resurrection. I’m caught in the inbetween. Pulling and dragging every cell back into this living world so I can rise. ✨
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#narcolepsy #resurrection #wakeup by @wakefuldreams

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3 years ago

My ritual. Pray I to the cup with every sip. Pray to wake up enough to make the day happen. by @wakefuldreams

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3 years ago

by @wakefuldreams

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3 years ago

Can you see what’s in my heart?

#health #freedom #connection #love #possibility #wakefulness #consciousness #vibrance #peace #easiness #flow #narcolepsy #narcolepsyremission by @wakefuldreams

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4 years ago

After an epic stretch of wakeful days, I was at a full stop this afternoon. I caught myself heading into a spiral of analyzing which thing triggered the sleepiness. I have learned it’s best to think about this at another time. Digging through what I ate, who I spoke to, analyzing last night’s sleep quality etc can create more tiredness in the moment.
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Sometimes it’s best to accept what’s happening, cancel plans and be okay to chill exactly where I am.
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Taking full responsibility for every bit of sleepiness I have, has enabled me to make great progress but it’s a fine line to@to walk of also having 100% compassion and understanding for myself.
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This journey has never been a straight line ahead. And this sleepy day is an opportunity to learn more about myself and Joe to keep navigating.
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#narcolepsy #sleepyday #sleepdisorder #stormyweather by @wakefuldreams

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4 years ago

Narcolepsy remission? Why isn’t this talked about more? Remission is a common idea within most autoimmune disorders and many many brain disorders. Epilepsy is considered to be in remission after 5 years off meds and no seizures. MS can go into remission, there is a great link on my bio worth watching. Why isn’t it a discussion amongst the narcolepsy community??
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The Neurologist I met with told me stories of Narcolepsy remission and so years ago I started searching for people living an amazing wakeful life and without medication.
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Narcolepsy remission is possible! I don’t know the technical requirements but gosh being awake without medication continues to be an amazing experience.
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I do feel shadows of narcolepsy lurking! I know I haven’t been medication free long enough a medical professional would deem me in full remission but I’ve connected with a few people who have been! They still have shadows and moments they get sleepy if they’re not staying on top of a quality daily life. They aren’t perfect but gosh …. From where I’m standing it looks and feels like remission to me!
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Nothing would make me happier than to see this become a discussion, an idea, a possibility for all of us. 💗
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#narcolepsy #narcolepsyawareness #narcolepsyproblems #narcolepsyremission #cataplexyremission #cataplexy #sleepattack #sleepdisorder #braindisorder by @wakefuldreams

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4 years ago