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Addison’s Advocate

@addisonsadvocate

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Fostering a community of advocates
Account run by @levifilmmkr @hernameismauve
Not doctors, just Addisonians
#addisonsdisease #adrenalinsufficiency

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Patients with Addison’s disease often experience intense salt cravings due to their body’s inability to produce adequate amounts of the hormone aldosterone. Aldosterone helps regulate sodium and potassium levels, and when these hormones are deficient, the body loses more sodium through urine, leading to an electrolyte imbalance. This loss can trigger intense cravings for salty foods as the body instinctively seeks to replenish lost sodium. Recognizing these cravings early can help in diagnosing Addison’s disease and managing symptoms effectively. 🩺💙

#adrenalinsufficiency #addisons #addisonsdisease #addisonsdiseaseawareness #adrenalfatiguerecovery #adrenalfatigue #adrenalfatigueawareness #hashimotos #autoimmunedisease

Did you experience a salt craving before being diagnosed? by @addisonsadvocate

Hey everyone! Hope you all are having a great start to 2023!

I took some time over the new year to dream about the future of @addisonsadvocate and one of the biggest thing I want to help create and foster a community of advocates. I want to create a platform where we are able to engage with each other, ask questions, learn, and together bring awareness to Addison’s Disease.

To kick this off, we’re going to start doing podcasts on Instagram Live with other Addison’s patients, where they are able to tell their story and where YOU will have the opportunity to join in and ask questions. Several days before each interview, I will post photos, and Instagram stories introducing our guest of the week and provide a space for everyone to submit questions that we will answer during the show!

Stay tuned for the announcement of our first guest on the podcast!

#addisonsdisease #addisons #adrenalfailure #adrenalglands #adrenalfatigue #primaryadrenalfailure #secondaryadrenalfailure #hashimotos #autoimmunedisease #raredisease #addisoniancrisis #adrenalcrisis #addisoncrisis by @addisonsadvocate

I get DM’s from people almost every day who have just been diagnosed and they always ask me for tips on how to manage this new disease that they’ve been given. Here are my top 3 tips on how to begin managing this life long disease!

1. Find a GOOD endocrinologist.
- this doctor will be instrumental in your recovery and medication management during your first 2 years of recovering.
2. It takes TIME
- don’t be too hard on yourself for the first couple of years, it takes some time for you to learn your body and how you react to these new medication‘s. Don’t expect to bounce back to the same person that you were right after being diagnosed.
3. Have grace for your process but do NOT fall into self pity
- This one is big. Self-pity will rob you of joy. You will be constantly miserable, people won’t want to be around you, and it’s just an awful way to live. Instead, practice gratitude for the fact that there are medication‘s out there that allow us to live a normal life. It could always be worse.

#adrenalinsufficiency #addisons #addisonsdisease #addisonsdiseaseawareness #adrenalfatiguerecovery #adrenalfatigue #adrenalfatigueawareness #hashimotos #autoimmunedisease by @addisonsadvocate

I was 22 and I was diagnosed with Addison’s disease. At the time, I had a lot of dreams that I want to do accomplish in my 20s like travel, grow my business, learn to surf, and I felt like Addison’s disease robbed me of all of them.

Fast forward a couple years and I finally get my medication under control and slowly, but surely I start to push my comfort zone by starting to travel again, do action sports, and push my body in a way that I was told wouldn’t be possible.

I’m now 29 and about to turn 30 and I’m proud to say I live more adventurous and full life now than I even did before I had Addison’s disease. I know this isn’t the case for everyone and I’m sensitive to that but as long as I feel good, I’m gonna keep living life to the fullest to give others hope that they can do the same with their own life!

#adrenalinsufficiency #addisons #addisonsdisease #addisonsdiseaseawareness #adrenalfatiguerecovery #adrenalfatigue #adrenalfatigueawareness #hashimotos #autoimmunedisease by @addisonsadvocate

come with me to my yearly endocrinology appointment 💊

how often do you visit your endocrinologist?

#adrenalinsufficiency #addisons #addisonsdisease #addisonsdiseaseawareness #adrenalfatiguerecovery #adrenalfatigue #adrenalfatigueawareness #hashimotos #autoimmunedisease by @addisonsadvocate

Traveling can throw off your routine - but when it comes to steroid medications, timing is everything. ⏰ Don’t skip doses, and always keep meds in your carry-on. Your body depends on consistency, even across time zones.

#SteroidSafety #TravelSmart #ChronicIllnessTips #addisonsdisease by @addisonsadvocate

The first in person Addison’s Advocate video podcast is officially released! Head over to YouTube and give Mauve’s story a listen! Link in bio! 🎙️ by @addisonsadvocate

Always carry your Solu-Cortef emergency injection kit— because when it comes to Addison’s Disease, you are your own best advocate. In an emergency, your life might depend on your knowledge and preparedness. 💉 🩵

#AddisonsAwareness #BePrepared #SoluCortef #StayStrong #adrenalinsufficiency #addisons #addisonsdisease #addisonsdiseaseawareness #adrenalfatiguerecovery #adrenalfatigue #adrenalfatigueawareness #hashimotos #autoimmunedisease #chronicillness #chronicillnesscommunity by @addisonsadvocate

Addison’s Disease is a very rare disease that affects roughly 1 in 100,000 people. This makes it difficult to diagnose if doctors don’t know what they’re looking for. Many of us go undiagnosed for years, others are fortunate enough to be diagnosed pretty quickly.

#adrenalinsufficiency #addisons #addisonsdisease #addisonsdiseaseawareness #adrenalfatiguerecovery #adrenalfatigue #adrenalfatigueawareness #hashimotos #autoimmunedisease by @addisonsadvocate

🎙️ OUR FIRST IN PERSON PODCAST 🎙️

So excited to host our first in person podcast with our honorary guest @hernameismauve here in Seattle, WA. Ever heard of the saying “trial by fire”? Unfortunately, this is the primary way Mauve has learned how to manage her disease. Through these trials she has been forced to face Addison’s Disease head on and has taken ownership of her newfound life. That doesn’t mean everything is “all good” now, but she’s gained a lot of valuable wisdom over this past year that I know many of you will be able to glean from.

Her story is wild and I’m sure will resonate with many of you out there just as it did with me.

If you have any specific questions that you would like to ask Mauve, DM them to me OR drop them in the Instagram story question box and we’ll be sure to address as many as we can during our podcast this Saturday!!

#adrenalinsufficiency #addisons #addisonsdisease #addisonsdiseaseawareness #adrenalfatiguerecovery #adrenalfatigue #adrenalfatigueawareness #hashimotos #autoimmunedisease by @addisonsadvocate

⚠️ THIS IS NOT MEDICAL ADVICE ⚠️

Sorry, always gotta throw that disclaimer out there! This is just two people sharing our own personal thoughts and what we’ve found works best for us!

Crazy cool getting to meet and create content for you guys with @hernameismauve who ALSO has Addison’s disease! Give her a follow!

We’ve got some more content on the way!

Drop a comment below and tell us what you keep in your every day bag! 👇🏼

#adrenalinsufficiency #addisons #addisonsdisease #addisonsdiseaseawareness #adrenalfatiguerecovery #adrenalfatigue #adrenalfatigueawareness #hashimotos #autoimmunedisease by @addisonsadvocate

Wondering how to manage your medications when you travel to a new time zone? 💊 💉 Here’s what I do!

#adrenalinsufficiency #addisons #addisonsdisease #addisonsdiseaseawareness #adrenalfatiguerecovery #adrenalfatigue #adrenalfatigueawareness #hashimotos #autoimmunedisease by @addisonsadvocate