Instagram story viewer> @als_bc> Posts

ALS Society of BC

@als_bc

1.1K

followers

155

following

To cure ALS through funding research, while advocating for and supporting people living with ALS.👇 Link in bio.

POSTS STORIES REELS TAGGED

Thanking Our Extraordinary ALS BC Community

As Thanksgiving Day approaches, our hearts turn to reflection, appreciation, and the power of community. It is a meaningful time to pause and honour the bonds that unite us, the support that sustains us, and the shared hope guiding our mission forward.

Whether you have donated, volunteered, organized a fundraiser, sponsored an initiative, or shared stories to raise awareness, your actions, both big and small, make a profound difference. Every gesture of kindness directly touches the lives of individuals and families living with ALS and PLS in BC and the Yukon, ensuring that no one has to navigate their journey alone.

The ALS Society of BC's office will be closed on Monday, October 12th, 2026, in observance of Thanksgiving Day, and will reopen on Tuesday, October 13th, at 8:00am.

Wishing you and your loved ones a warm, safe, and happy Thanksgiving Day!

#Grateful #Thanksgiving #GiveThanks #ALSBC #ALS by @als_bc

1

0

7 days ago

Patient Information Webinar Series #15 - Navigating ALS BC Programs & Services

📅 Date: Tuesday, October 13, 2026
⏰ Time: 1:00 to 2:00 PM PDT via Zoom
📣 Presenters: Alexandra Guerrero, Patient Services Manager, Billie Doyle, Equipment Loan Manager, Dil Hettiarachchi, Equipment Loan Coordinator, and Marie Montoya, Patient Services Coordinator
💲 Cost: Free Registration

In this session, members of ALS BC’s Programs & Services and Equipment Loan Program teams will provide a detailed overview of the resources and support available to registered individuals living with ALS and PLS across British Columbia and the Yukon.

🔗 To learn more & register, please visit the "Educational Webinars" link in our bio.

#ALSBC #PatientWebinarSeries #ALSBCPrograms #ALSBCServices #ALSBCWebinars #ALSBCPatientInformationWebinar by @als_bc

4

0

9 days ago

Record-breaking support from our local heroes! 🚒✨

Huge thanks to @vanfirecharities for raising a record $50,000 for the ALS Society of BC through this year's annual ALS Shoot for the Cure and Vancouver Firefighters Hockey Club events! 🎯

For over 20 years, Vancouver Firefighters have been true champions for families living with ALS across British Columbia. 100% of the proceeds from these incredible events go toward vital patient programs and services and fund critical research toward a cure through ALS BC Project Hope at the University of British Columbia.

To every firefighter, participant, volunteer, and sponsor, thank you for standing with us in the fight to end ALS! 💜

🔗 Link in bio to read the press release.

#ALSBC #ALS #VFRS #VancouverFirefighters #ALSShootForTheCure @vanfirerescue by @als_bc

22

0

11 days ago

Golfing for something bigger than the game. 💙⛳️

We’re proud to recognize G.P. Denomme and Norm Jackson for representing Cowichan Golf Club in the 2026 PGA of BC Golfathon for ALS.

For G.P., this cause carries a deeply personal meaning, making every hole played and every dollar raised that much more significant.

There’s still time to support their efforts and help individuals and families impacted by ALS. Every donation makes a difference.

💙 Donate through the 🔗 in bio

Thank you to everyone who has donated, shared and supported this incredible cause. taken in Cowichan Golf Club by @als_bc

201

4

12 days ago

Taking a second to appreciate all the great helmets I’ve had over the last five years and the symbolism that went into them. So much appreciation for the artists who took the time 💜 One week left to get your designs submitted for the 2026 #Helmet4Hope contest!

We’re making good progress on the fundraising side as well so far! Thank you to all who have donated, and if you’re looking to get involved, head to the link in my bio

#endALS @als_bc #cureALS by @als_bc

348

6

15 days ago

The ALS Society of BC's office will be closed on Wednesday, September 30th, 2026 in observance of The National Day for Truth and Reconciliation, and will reopen on Thursday, October 1st at 8 AM.

To learn more about National Day for Truth and Reconciliation, please visit our link in bio.

#ALSBC #ALSSocietyofBC #NDTR #EveryChildMatters #Reconciliation #TruthAndReconciliation by @als_bc

6

0

18 days ago

🏕️ From August 20th–23rd, youths and dedicated volunteers gathered at Camp Summit in Squamish, BC, for our annual summer retreat for children and teens affected by a family member's ALS diagnosis.

Campers tackled everything from high ropes and archery to rock climbing and mountain biking. Even a Saturday night thunderstorm couldn't dampen the group’s high energy and bright spirits!

Beyond the thrilling activities, Camp Alohi Lani provides a vital space for emotional healing. Through "Support Circles," campers shared their journeys, processed complex emotions, and were reminded that they are never alone.

💜 Thank You to Our 2026 Sponsors. This life-changing, fully-funded experience is made possible entirely through community generosity. Deep gratitude to: Air Canada Foundation, Ames Family Foundation, Andrew Mahon Foundation, CIBC Foundation, CKNW Kid’s Fund, The Dayhu Family Foundation, Fraternal Order of Eagle Cranbrook #3032, Kiwanis Club of Oliver, The Kiwanis Club of Vancouver, Purcell Family, RBC Foundation, and Royal Canadian Legion #256.

👉 The camp returns in 2027! To learn more, visit our link in bio.

#CampAlohiLani #ALSBC #ALSCommunity #YouthSupport #CampMemories by @als_bc

8

0

21 days ago

Challenge accepted, ALS Society of Alberta! 🧊🪣💙

Our team at the ALS Society of BC took the plunge for the 2026 Ice Bucket Challenge, and we're keeping the momentum going strong!

Why did we do it? To raise awareness for the over 500 individuals who are living with ALS across British Columbia and the Yukon. ALS is a terminal neurological disease that takes away a person's ability to move, walk, and eventually breathe. Without support programs & services like our Equipment Loan Program, families can face up to $160,000 in costs to fight this disease.

Through ALS BC Project Hope, we are also proud to help fund critical research and clinical trials at the ALS & Related Disorders Research Centre at UBC to help bring us closer to a cure.

👉 NOW IT'S YOUR TURN! 👈 We are officially calling out the amazing teams at: 🥼 The ALS & Related Disorders Clinic 🔬 The ALSRD Research Centre at UBC. Take the challenge and pass the bucket forward! Let's keep this momentum going! 🌊⚡️

💙 How you can help: Learn more about our programs and services or make a donation today at www.alsbc.ca (Link in bio!).

#IceBucketChallenge #ALSBC #ALSAlberta #ProjectHope #EndALS #ALSAwareness #UBCResearch #ALSResearch #DMCBH #UBCMedicine #ALSRD @alsalberta by @als_bc

30

2

23 days ago

2026 Move to Cure ALS – Prince George 50/50 Raffle Winner! 🎉

Congratulations to Michelle C. (Ticket #: 119), who WON the raffle! She will receive $500, half of our $1,000 jackpot.

A heartfelt thank you to everyone who participated in the sold-out raffle campaign! Let's also celebrate the dedication of our extraordinary event coordinator, Kristi Francis, and all the amazing volunteers who made this possible through their hard work and commitment.

The proceeds from ticket sales will help support people living with ALS, along with their families and caregivers in BC and the Yukon, through vital Programs & Services and ALS BC Project Hope. 💜

🔗 To learn more about the event, please visit the "Move to Cure ALS Website" link in our bio.

#ALSBC #RaffleFundraiser #Charity #Fundraising by @als_bc

3

0

a month ago

Navigating accessible transit may seem overwhelming, but in our next webinar presented by Shionogi Canada, we delve into practical tips to help you get where you need to be. 🚌 🚄

To guide you through all things TransLink and Accessibility, we welcome Chris Chan, Manager of Travel Training with Public Affairs at TransLink to our Educational Webinar Series. Throughout his career, Chris has been a strong advocate for sharing information about public transit with customers with diverse abilities, seniors and newcomers, and he is eager to share his knowledge with you!

This session will familiarize you with accessible transit options across buses, the SkyTrain, and SeaBus so you can travel with confidence by teaching you how to:

👉 Plan a trip
👉 Use the Transit System
👉 Get help when you are on the system

To register for the free Zoom webinar, please visit the link in our bio. Can't attend the session on September 8th? No problem! A full recording will be uploaded to our website for on-demand viewing.

#teamalsbc #als #alscommunity #alscommunity #alsawareness #accessibletransportation #accessibility @translink by @als_bc

2

0

a month ago

In observance of Labour Day, the ALS Society of BC office will be closed on Monday, September 7th, 2026.

Normal operations will resume on Tuesday, September 8th at 8:00 AM.

Wishing everyone a safe and wonderful long weekend! 💙

#ALSBC #ALSSocietyBC #LabourDay #LabourDayWeekend #OfficeClosure #ALSCommunity #BritishColumbia by @als_bc

0

0

a month ago

The September issue of HopeLink is officially here! 🗞️✨

Stay connected with the latest news, upcoming community events, and inspiring updates from the ALS Society of BC.

Highlights in this issue:

🏃 2026 Move to Cure ALS – Thank you to everyone for your incredible support across BC & Yukon.

🎉 Host a Fundraiser for ALS BC – Turn your ideas and community events into support for families living with ALS/PLS.

💻 Webinar Series #14 – Join our latest educational session tailored for patients, caregivers, and supporters.

🧠 Psychological Treatment Program Workshop – Essential resources and support for RCCs and psychologists.

🏕️ Camp Alohi Lani – Connecting and empowering youth and families impacted by ALS.

Thank you for supporting families living with ALS and PLS across British Columbia and the Yukon. 💜

🔗 Click the link in our bio to read the full September HopeLink e-newsletter!

#ALSBC #HopeLink #MoveToCureALS #Fundraisers #CampAlohiLani #ALSCommunity #NonProfitBC by @als_bc

9

0

a month ago