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The Andreas Foundation, Inc.

@andreasfoundation

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Supporting families through neonatal encephalopathy & infant loss. Education, advocacy, and community for the ones who need it most.🕊️
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The Andreas Foundation is committed to expanding knowledge, supporting families, and fostering hope for those impacted by neonatal encephalopathy and pregnancy and infant loss. Through research, education, and compassionate resources, we aim to lessen the impact of this condition on newborns and their families. #neonatalencephalopathy #infantloss #infantlossawareness by @andreasfoundation
Because of this community, this work continues. Thank you to everyone who has supported our initiatives and helped raise funds for the Andreas Foundation. Your support allows us to invest in research, care, and hope for families and babies affected by neonatal encephalopathy & infant loss. by @andreasfoundation
Grief math:⁠ ⁠ The due date that still lives in your body even years later.⁠ ⁠ The age they would have been.⁠ ⁠ The number of months since. Then years. Then the moment you realize you have stopped counting because counting got too heavy.⁠ ⁠ The holidays you dread starting in October.⁠ ⁠ The songs you cannot hear anymore. The aisles you avoid in the grocery store. The names you cannot say out loud without your voice changing.⁠ ⁠ Nobody teaches you this math. You just start doing it.⁠ ⁠ And the hardest math of all:⁠ ⁠ That they are gone. And they are still so loved. And those two things have to exist at the same time. Every day. Forever.⁠ ⁠ If you know this math - save this. And know that you are not doing it alone.⁠ ⁠ #GriefMath #InfantLoss #BereavingParents #YouAreNotAlone #TheAndreasFoundation #GriefSupport #NeonatalLoss #GriefIsReal by @andreasfoundation
Your grief does not need to be explained. It does not need to be edited. It does not need to make sense to anyone but you.⁠ ⁠ It just needs space.⁠ ⁠ We are here to hold some of that space with you.⁠ ⁠ Save this if you need a reminder. Share it if someone else does.⁠ ⁠ #GriefAffirmation #InfantLoss #BereavingParents #YouAreNotAlone #TheAndreasFoundation #NeonatalLoss #GriefSupport #HoldSpace by @andreasfoundation
Grief counseling after infant loss should not depend on what your insurance covers.⁠ ⁠ It should not depend on what you can afford in a month when you are also receiving bills from the hospital.⁠ ⁠ It should just be available.⁠ ⁠ We are working toward that. One partnership, one funding round, one donation at a time.⁠ ⁠ Today we are asking directly - help us get one more family into a counseling session they could not otherwise access.⁠ ⁠ Link in bio.⁠ ⁠ #GriefCounseling #InfantLoss #MentalHealthAccess #TheAndreasFoundation #DonateNow #BereavementSupport #FreeGriefSupport #NeonatalLoss by @andreasfoundation
We are building educational resources about neonatal encephalopathy - plain language, accessible, designed for families in crisis and families who are just trying to understand what happened.⁠ ⁠ These resources need to reach more people.⁠ ⁠ Your donation helps us build and distribute content that gets in front of families before they need it - so that if the worst happens, they are not starting from zero.⁠ ⁠ Share this post. Follow this page. Donate if you can.⁠ ⁠ Every person who sees this is a potential bridge to a family who needs it.⁠ ⁠ Link in bio.⁠ ⁠ #NeonatalEncephalopathy #PatientEducation #InfantLoss #TheAndreasFoundation #DonateNow #ShareThisPost #NICUFamily #BuildingResources by @andreasfoundation
Some words stay with grieving parents forever. So does silence. 💗 When a baby dies, even well-intentioned words can cause harm. And sometimes, what we don’t say hurts just as much. But how do we support grieving parents when we don’t know what to say? In honor of Infant Loss Awareness Month, I’m sitting down with Ryan @andreasfoundation, a father who lost his son in the NICU and author of Words That Wound, Words That Heal. We’ll talk about his journey, the words that helped, the words that hurt, and what families, friends, and healthcare professionals need to understand about showing up after loss. Because we may not be able to take away someone’s grief, but we can make sure they don’t have to carry it alone. 🗓 Sunday, October 25 | 7 PM ET 📍 Instagram Live @momandme_md Join us for an honest, necessary conversation. 💗 Save this post and share it with someone who cares for or supports grieving families. #InfantLossAwareness #NICULoss #GriefSupport #PregnancyAndInfantLoss #MomAndMeMD by @andreasfoundation
A mother who gives birth to a living child gets up to 12 weeks of protected leave.⁠ ⁠ A mother who loses that child gets 3 to 5 days.⁠ ⁠ This is federal policy. Right now.⁠ ⁠ The data we are collecting shows exactly what this costs families. And we are not going to stop talking about it until it changes.⁠ ⁠ Share this post. Donate to fund the research that makes the case. And tag someone in HR or policy who needs to see this.⁠ ⁠ Link in bio.⁠ ⁠ #FMLA #BereavementLeave #InfantLoss #PolicyChange #TheAndreasFoundation #FamilyImpactStudy #DonateNow #ShareAndAct by @andreasfoundation
🧐 “The single BIGGEST problem in communication is the illusion that it has taken place.” George Bernard Shaw 🤔 Most supporters really don’t consider what they’re actually communicating to the grieving person they’re there to support. And this is especially true about the family and friends of bereaved fathers. ☹️ Whether it’s after opening about a spontaneous loss of pregnancy to a friend, or as extended family learn of the baby’s death due to medical complications, bereaved fathers are often reminded of how insignificant their experience of a loss is by the people who show up to support them. 😇 A supporter’s spiritual, religious, and sociopolitical worldviews; as well as their own discomfort with grief and death, usually lead to the saying of the most cringeworthy, disturbing, and inappropriate comments that — on the surface — seem thoughtful and harmless. ❌ The goal is not saying the perfect thing. ❌ The goal is also not saying nothing at all. ✅ The goal is to clearly define what you actually want to communicate. 💔 The truth is, the death of a baby — IN ALL ITS ITERATIONS — is really difficult to talk about even for the people who’ve experienced it 💔 ✅ So, if nothing else, let what you say acknowledge that. And that’ll be more than enough 🩷💙💚 #grief #babylossawareness #fatherhood #mensmentalhealth #griefcoach by @andreasfoundation
If you have experienced the loss of a baby - we want to hear from you.⁠ ⁠ Not to revisit your pain. But to turn it into something that changes what the next family goes through.⁠ ⁠ Our Family Impact Study asks about the financial and professional impact of your loss - hospital billing, time off work, what your employer did or did not do, how the system showed up for you.⁠ ⁠ Your experience is data. And data is how we change policy.⁠ ⁠ Link in bio. Takes about 10 minutes. And it matters more than you know.⁠ ⁠ #FamilyImpactStudy #InfantLoss #BereavementResearch #TheAndreasFoundation #ShareYourStory #AdvocacyMatters #NeonatalLoss #BePartOfTheChange by @andreasfoundation
Something that doesn’t get talked about enough is how grieving baby loss may change how you communicate with your partner 🩷💙💚 In my conversation with Ryan Brown Jr. of @andreasfoundation, I ask him to address this issue when discussing his book, “Words That Wound, Words That Heal”. This conservation is available across all podcast platforms. 💬 In the comments, let me know what’s changed in the communication with your partner since your loss Communication is one of the categories I offer coaching support around. Let’s connect on a brief virtual call to discuss how I might support you in helping to improve the communication with your partner since the loss. Visit the Dad Always website to schedule your 30-min call. #babyloss #communication #griefsupport #fatherhood #whatnottosay by @andreasfoundation
Dr. Melissa Buck, MD is a neonatologist. She deals with urgent NICU situations every day.⁠ ⁠ She was also one of the last doctors working on our son Andreas.⁠ ⁠ In the years since, she and I have built something out of that experience. A program to teach medical students how to have the hard conversations - how to give families honest information without stripping them of hope. How to show up in the room as both a clinician and a human being.⁠ ⁠ Because "sometimes these things just happen" is not a diagnosis. And families deserve better than that.⁠ ⁠ Support this work. Link in bio.⁠ ⁠ #DrMelissaBuck #MedicalEducation #NeonatalEncephalopathy #TheAndreasFoundation #NICUCare #DonateNow #ChangeFromWithin #NeonatologyLeadership by @andreasfoundation

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