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Rebecca

@bigmugoftea

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🇬🇧 parkrunner and CVST/SAH stroke survivor. Living with Blood Cancer

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⭐️ The next chapter ⭐️
I’ve been really open and honest about my stroke journey and I want to continue that as I embark on the next chapter. I went to a haematology (blood) appointment on Wednesday. At my last appointment they took lots of blood to see if I have a blood clotting disorder. I’ve tested positive for the JAK2 mutation/Myeloproliferative neoplasms (MPN). In short, I have a rare type of blood cancer. This is very likely to have caused my CVST which in turn caused my Subarachnoid haemorrhage and stroke. It wasn’t the contraceptive pill after all.

The good news is although it is classed as a cancer, it’s only classed as that as it’s a mutation. It’s not going to be something I have to battle, instead it’s something I will live with. This can’t be cured but it can be treated if it progresses and at the minute I’m fortunate enough that it just needs monitoring.

Please feel free to talk to me about this and ask questions. When I had my stroke I learnt so much about it from questions that people asked that I had to go and look up the answers to. #stroke #strokesurvivor #strokesurvivors #youngstrokesurvivor #strokesurvivorsneverquit #strokeawareness #strokerecovery #ukstrokesurvivor #cvst #thrombosis#Subarachnoidhaemorrhage #sahsurvivor #brainhaemorrhagesurvivor #haemorrhagicstroke #haemorrhagicstrokesurvivor
#mpnawareness #bloodcancer #mpn by @bigmugoftea

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a year ago

Some of you may have noticed I’ve been missing in action. Some of you know why but not all. I’ve cancelled our plans, I haven’t been to work or parkrun etc. I had a stroke on 25th January and have been staying with the wonderful nurses and doctors at the stroke ward at QA Hospital. I had 4 seizures, didn’t know my own name and have had to regain my mobility and coordination. I’m now back at home with a cocktail of pills and daily injections. For those of you who did know and sent messages, gifts and visited I truly thank you. For those I’ve asked to wait before visiting now I am home, I thank you for your patience. There’s a lot for me to process right now and I hope you can understand. As you can imagine I’m desperate to get back to parkrun (and other plans) but it’s going to be a little while yet. #strokesurvivor #youngstrokesurvivor #cvst #Subarachnoidhaemorrhage #brainhaemorrhagesurvivor #strokesurvivorsneverquit #strokesurvivors by @bigmugoftea

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3 years ago

Just swanning around 🦢 #swan #swans taken in Fareham Creek by @bigmugoftea

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a day ago

Sunset on Stoke Road #sunset #gosport taken in Stoke Road Gosport by @bigmugoftea

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9 days ago

Ice cream down the beach. One of life’s little pleasures taken in Lee-on-the-Solent by @bigmugoftea

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14 days ago

Hello October. Now please cool down! #hellooctober by @bigmugoftea

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15 days ago

A week in the North #sheffield #chester #york #bettystearoom #peakdistrict by @bigmugoftea

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a month ago

When you celebrate 2️⃣5️⃣0️⃣ and meet your bestie on the same day. Best day ever 🥳🥳 #parkrun #parkrunuk #loveparkrun #parkruntourism taken in Delamere Forest by @bigmugoftea

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a month ago

Southampton parkrun for parkrun 2️⃣4️⃣9️⃣ Looking forward to celebrating 250 next week! #parkrun #parkrunuk #loveparkrun #loveparkrunuk #parkruntourist taken in Southampton Common by @bigmugoftea

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a month ago

Final sunset of August down the beach with @gosportpilates #gosport #sunset #goodbyeaugust taken in Stokes Bay by @bigmugoftea

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a month ago

Hello September #helloseptember by @bigmugoftea

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a month ago

A very wet Southampton parkrun today for parkrun 2️⃣4️⃣8️⃣ and to see the lovely @the_rainbowrunner #parkrun #parkrunuk #southamptonparkrun #loveparkrun #parkruntourist taken in Southampton Common by @bigmugoftea

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2 months ago