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๐Ÿ’š Celiac life | Diagnosed before age 3 ๐Ÿ‡จ๐Ÿ‡ฆ
๐Ÿฝ๏ธ Gluten-free finds and adventures
๐Ÿ‘จโ€๐Ÿณ Learning to cook & food reviews
๐Ÿ‘ฆ Child advocacy & Support
POSTS STORIES REELS TAGGED
โ€œHuge news for celiac patients: Teva is reporting major success in an initial trial for the development of a new injection that neutralizes the disease. The antibody, developed in the companyโ€™s laboratories in Netanya, managed to prevent the intestinal damage and inflammation caused by gluten after just one dose.

Until now, the only solution for millions of patients around the world was a strict, complex, and restrictive lifelong diet. Now, the new Israeli drug simply prevents the immune system from attacking the body when exposed to gluten. Beyond treating celiac disease, the antibody was also found to be effective in treating the skin disease vitiligo, and has already received a fast-track approval pathway from the U.S. Food and Drug Administration.โ€ SINAI

Read more @sinaiproject.hq 

For people with celiac, like Kyle, this is huge!! This will still take time, but it is a step in the right direction!!

#celiacdisease #vaccine #sinai #celiacvaccine #celiacawareness by @celiacstrongx
2k
a month ago
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POV: Youโ€™re 10 years old and living with Celiac Disease. ๐Ÿ’š

You learn to read labels before most kids your age. You bring your own food to parties. Your parents spend hours researching safe restaurants, ingredients, and products. You pack containers everywhere you go.

But then you find places that give you freedom.

Places where you can order without fear. Places where being gluten-free doesnโ€™t make you feel different.

Kyle recently wrote about what itโ€™s like to live with Celiac Disease, and his words remind us why awareness matters. His journey isnโ€™t just about avoiding glutenโ€”itโ€™s about inclusion, confidence, and feeling seen.

Through this Instagram account, Kyleโ€™s voice is reaching people around the world. Families living with Celiac Disease are connecting. Companies are reaching out. Brands are helping turn something that once made him feel different into something worth celebrating.

At just 10 years old, Kyle is proving that one voice can make a difference.

Thank you for following along, supporting his journey, and helping spread awareness about Celiac Disease and the gluten-free community. Every follow, comment, share, and message means more than you know. ๐Ÿ’š

If Kyleโ€™s story resonates with you, give him a follow and join our gluten-free journey.

๐Ÿ‘‡ Tell us: Whatโ€™s one thing you wish more people understood about living with Celiac Disease?

#CeliacDisease #GlutenFreeLife #InvisibleIllness #FollowOurJourney #CeliacAwareness by @celiacstrongx
45
4 months ago
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TIRED ALL THE TIME? IT COULD BE CELIAC DISEASE. ๐Ÿ‘€

Think celiac disease always means stomach problems?
THINK AGAIN.

Celiac disease can cause symptoms outside the digestive system โ€” and sometimes digestive symptoms arenโ€™t obvious at all.

Some possible clues include:
๐Ÿ˜ด Fatigue
๐Ÿฉธ Anemia
๐Ÿฆด Bone problems
๐Ÿง  Neurological symptoms
๐ŸŒธ Skin rash
โค๏ธ Reproductive or fertility problems

These symptoms can happen on their own or together, and there can be many different ways celiac disease shows up.

If youโ€™re experiencing unexplained symptoms or think celiac disease could be a possibility, talk to your healthcare provider.

๐Ÿ’š Celiac disease doesnโ€™t always look like what you expect.

๐Ÿ“Œ SAVE this as a reminder.
๐Ÿ“ค SHARE it with someone who needs to hear it.

#CeliacDisease #CeliacAwareness #CeliacSymptoms #CeliacLife #CeliacStrong by @celiacstrongx
20
21 hours ago
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๐Ÿ“ฆ THIS PACKAGE ARRIVEDโ€ฆ AND KYLE HAD NO IDEA WHAT WAS INSIDE! ๐Ÿ‘€๐Ÿ’š

A HUGE box showed up today.
It was WET. ๐Ÿ’ฆ
It was COLD. ๐Ÿฅถ
And Kyle was completely confused. ๐Ÿ˜‚

Then came the surpriseโ€ฆ
๐ŸŽ‰ A FROZEN GLUTEN-FREE PACKAGE FROM @pietrosglutenfree!

Inside:
๐Ÿ Cheese Tortellini
๐Ÿ„ Mushroom & Ricotta Ravioli
๐Ÿฅฌ Spinach & Cheese Ravioli

Needless to sayโ€ฆ Kyle is VERY excited to get into the kitchen and become the chef! ๐Ÿ‘จโ€๐Ÿณ๐Ÿ”ฅ

For a kid with celiac disease, finding exciting gluten-free foods to try can feel like such a win. ๐Ÿ’š

And now we have an important questionโ€ฆ
WHICH ONE SHOULD CHEF KYLE TRY FIRST?! ๐Ÿ‘‡

๐Ÿ’š FOLLOW @celiacstrongx for more gluten-free finds, food reviews, cooking adventures & real-life celiac life!

#CeliacDisease #CeliacStrong #GlutenFreeRavioli #GlutenFreeTortellini #CeliacAwareness by @celiacstrongx
17
2 days ago
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๐Ÿš’ WHAT DO FIREFIGHTERS AND PEOPLE WITH CELIAC DISEASE HAVE IN COMMON? ๐Ÿ‘€

They both have to be prepared.

Firefighters donโ€™t wait for an emergency to figure out what to do. They plan, prepare and train so theyโ€™re ready when it matters.

Living with celiac disease is a lot like that.

You have to plan ahead, pack safe food, read labels, ask questions and think about cross-contact before you eat โ€” especially when travelling, eating at restaurants, going to events or simply leaving the house.
Because with celiac disease, โ€œIโ€™ll figure out what I can eat when I get thereโ€ isnโ€™t always an option.

It can feel exhausting sometimesโ€ฆ but being prepared can make gluten-free living a whole lot easier. ๐Ÿ’š

๐Ÿ”ฅ Celiac community โ€” whatโ€™s ONE thing you always make sure you have with you? Tell us below! ๐Ÿ‘‡

Follow @celiacstrongx for real-life celiac disease, gluten-free living, celiac-safe food finds, tips and kid-friendly celiac awareness. ๐Ÿ’š

Thank you @markhamfire for always being prepared and showing Kyle what itโ€™s like to be prepared as a firefighter!

#CeliacAwareness #CeliacLife #communityhelpers #firefighters #GlutenFree by @celiacstrongx
32
3 days ago
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๐ŸŽƒ๐Ÿ‘ป One of our favourite times of the year is almost hereโ€ฆ **HALLOWEEN!** ๐Ÿ•ท๏ธ๐Ÿ’œ

Today is the day we come together as a family to set up our decorations and start bringing the spooky season to life! ๐Ÿฆ‡๐Ÿ•ธ๏ธ Thereโ€™s something so fun about turning our home into a little Halloween adventure.

Now the countdown is officially on! โณ๐ŸŽƒ We canโ€™t wait for Halloween night when the scares begin, the purple lights are glowing, the spooky vibes are in full swing, and the CANDY IS FLOWING! ๐Ÿฌ๐Ÿ’œ๐Ÿ‘ป

Who else is getting ready for Halloween?! ๐ŸŽƒ Drop a ๐Ÿ’œ in the comments if Halloween is one of your favourite times of the year! or your favourite Halloween treats!!

#HalloweenDecorations #HalloweenIsComing #SpookySeason #HalloweenLovers #celiacawareness by @celiacstrongx
18
4 days ago
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๐Ÿšจ๐Ÿซ **GLUTEN-FREE ALERT: AERO CHOCOLATE BARS HAVE CHANGED!** ๐Ÿ’š

Celiac families, this is your reminder to ALWAYS check the labels! โš ๏ธ

For years, Aero chocolate bars were one of our go-to treats for Kyle. They were something he loved and could enjoy without worry. ๐Ÿ’š Now, weโ€™ve noticed a change: the packaging carries a **โ€œmay contain wheatโ€ warning**, which means Aero is no longer a safe choice for Kyle.

And honestly? Heโ€™s sad. ๐Ÿฅบ๐Ÿ’” It might seem like just a chocolate bar to some people, but when you have celiac disease, losing a favourite treat is another reminder that the things you once enjoyed can suddenly be off the table.

@nestle, we have to askโ€ฆ what changed? Why is there now a may contain wheat warning? Was there a change in the facility, production line, or manufacturing process?

This is exactly why we check labels EVERY SINGLE TIME we shop. Even if youโ€™ve bought the same product for years, ingredients, manufacturing practices and allergen warnings can change without you expecting it.

๐Ÿ’š **PLEASE SHARE THIS POST** to help spread awareness and remind other celiac families to check their chocolate bars before buying or eating them.

Because when you have celiac disease, label checking isnโ€™t optional. Itโ€™s part of keeping yourself safe.

Have you noticed this change, too? Let us know in the comments! ๐Ÿ‘‡

#CeliacDisease #CeliacAwareness #GlutenFreeAlert #GlutenFreeCanada #LabelReading by @celiacstrongx
759
6 days ago
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๐ŸŽƒ๐Ÿ‘ป HALLOWEEN GLUTEN-FREE FINDS! ๐Ÿ‘ป๐ŸŽƒ

A quick trip to @walmartcanada showed us that there are LOTS of gluten-free treats to choose from this Halloween! ๐Ÿซ๐Ÿฌ๐Ÿ’š

If youโ€™re shopping for a child with celiac, weโ€™ve got you covered! ๐Ÿ™Œ Making Halloween a little easier, less stressful, and just as fun is what weโ€™re all about! ๐ŸŽƒ

There are so many options this year, and trust usโ€ฆ you wonโ€™t be disappointed! ๐Ÿ˜

๐Ÿ‘‰ But remember: ALWAYS check the packaging! Labels and ingredients can change, and when you have celiac, checking the package is just part of keeping ourselves safe. ๐Ÿ’š

๐ŸŽƒ Happy gluten-free Halloween shopping! ๐Ÿ‘ป

#CeliacAwareness #GlutenFreeHalloween #GlutenFreeTreats #CeliacKids #GlutenFreeKids by @celiacstrongx
39
6 days ago
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๐ŸŒง๏ธ ITโ€™S POURING RAINโ€ฆ SO KYLE WENT RUNNING. ๐Ÿƒโ€โ™‚๏ธ๐ŸŒง๏ธ

Kyle stood on the bridge watching the water rush through the ravine and had one thought:
โ€œWOULD YOU RUN IN THIS?โ€

Kyle would. ๐Ÿ˜‚๐Ÿ’š

Because celiac disease doesnโ€™t stop him from having adventuresโ€ฆ so why should a little rain?
No thunder.
No lightning.

Just rain, fresh air and a chance to have some fun. ๐ŸŒง๏ธ๐Ÿƒโ€โ™‚๏ธ

Sometimes you just have to put on your shoes, embrace the weather and GO!

Celiac disease is part of Kyleโ€™s life โ€” but it doesnโ€™t define what he can do. ๐Ÿ’š

WOULD YOU RUN IN THIS RAIN? ๐Ÿ‘‡๐ŸŒง๏ธ

Follow @celiacstrongx for real-life celiac adventures, gluten-free living and watching Kyle prove that celiac doesnโ€™t have to hold you back. ๐Ÿ’š

#KidsWhoRun #AdventureKids #RunningInTheRain #CeliacAwareness #CeliacKids by @celiacstrongx
27
7 days ago
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๐Ÿ“๐Ÿ‰ THE LITTLE THINGS PEOPLE DONโ€™T THINK ABOUTโ€ฆ MEAN EVERYTHING TO KYLE. ๐Ÿ’š

While exploring Kensington Market in Toronto, Kyle found a special treat at @tonofjuice. ๐Ÿฅค

But before ordering and taking a single sip, Kyle did what he always doesโ€ฆ

HE ASKED QUESTIONS.
Is it gluten-free?
Are there any gluten-containing ingredients?
Is there a risk of cross-contact?

Because when you have celiac disease, you canโ€™t always just grab something while exploring.

Kyle chose a strawberry + watermelon juice ๐Ÿ“๐Ÿ‰ โ€” and he absolutely LOVED it!

And then something happened that might seem small to most peopleโ€ฆ

His brother and sister got one too. ๐Ÿฅน๐Ÿ’š One got the same as he did and one got a Mango smoothie.

For once, all three kids could enjoy the same treat while exploring Toronto together.

That might not sound like a big deal.

But for a kid living with celiac disease, moments like this can mean EVERYTHING.

Itโ€™s something many people donโ€™t think about when planning a family day out. For Kyle, food safety is always at the forefront of his mind.

A huge thank you to @tonofjuice for being so patient while Kyle asked his questions and made sure his juice was safe for him. ๐Ÿ’š

He loved every single sip โ€” and weโ€™ll definitely be back! ๐Ÿฅค๐Ÿ™Œ

๐Ÿ‘‡ Whatโ€™s a โ€œlittle thingโ€ that makes a HUGE difference for you or your child?

๐Ÿ“Œ SAVE & SHARE this with someone who wants to better understand what everyday life with celiac disease can look like.

Follow @celiacstrongx for real-life celiac disease, gluten-free living, gluten-free food finds, Toronto adventures and celiac awareness. ๐Ÿ’š

#CeliacDisease #CeliacAwareness #GlutenFree #GlutenFreeToronto #KensingtonMarket by @celiacstrongx
23
8 days ago
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๐Ÿ”๐ŸŒฏ WHAT HAPPENS WHEN A BURGER MEETS AN EGG ROLL?

CHEF KYLE CREATES BURGER RICE PAPER ROLLS! ๐Ÿ‘จโ€๐Ÿณ๐Ÿ”ฅ

Think juicy meat, veggies, cheese and homemade Big Mac Sauceโ€ฆ all wrapped up in a rice paper roll.
Itโ€™s basically an egg roll with all the fixings of a burger โ€” and somehow, it works! ๐Ÿคค

On the side: zucchini and a cold carrot salad. ๐Ÿฅ’๐Ÿฅ•
Creative โœ”๏ธ
Fun to make โœ”๏ธ
Delicious โœ”๏ธ
Gluten-free โœ”๏ธ๐Ÿ’š

We love watching Kyle get creative in the kitchen and build the confidence and independence heโ€™ll need as he grows up with celiac disease.

WOULD YOU TRY A BURGER RICE PAPER ROLL? ๐Ÿ”๐ŸŒฏ๐Ÿ‘‡

Give Chef Kyle a โญโญโญโญโญ if youโ€™d try this!

Follow @celiacstrongx for gluten-free meals, kid-friendly recipes, celiac awareness, food reviews and Kyleโ€™s journey growing up with celiac disease. ๐Ÿ’š

#CeliacDisease #kidchef #CeliacKids #RicePaperRolls #BurgerRecipe by @celiacstrongx
33
9 days ago
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Our next BIG event. @glutenfreegoodnessexpo 

๐†๐ฅ๐ฎ๐ญ๐ž๐ง ๐…๐ซ๐ž๐ž ๐†๐จ๐จ๐๐ง๐ž๐ฌ๐ฌ ๐„๐ฑ๐ฉ๐จ โ€“ ๐‘จ๐’๐’„๐’‚๐’”๐’•๐’†๐’“
๐Ÿ“… ๐’๐ฎ๐ง๐๐š๐ฒ, ๐๐จ๐ฏ๐ž๐ฆ๐›๐ž๐ซ ๐Ÿ, ๐Ÿ๐ŸŽ๐Ÿ๐Ÿ”
๐Ÿ•™ ๐Ÿ๐ŸŽ๐š๐ฆ โ€“ ๐Ÿ’๐ฉ๐ฆ
๐Ÿ“ ๐€๐ง๐œ๐š๐ฌ๐ญ๐ž๐ซ ๐…๐š๐ข๐ซ๐ ๐ซ๐จ๐ฎ๐ง๐๐ฌ
Marritt Hall (Main Building)
630 Trinity Rd S, Jerseyville

$7 admission
Kids 12 & under are FREE
Free on-site parking

Canโ€™t wait to see you there?
Bring your family, bring your kids- buy a small gift.  Proceeds are donated to @ccaceliac to help support celiac research. by @celiacstrongx
44
10 days ago
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