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Fran Haddock 🌳 she/her

@franhaddock_

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🛌 Severe M.E. & Long C (funcap 2.5)
💖 Advocacy from bed
✨ Reality & tiny joys
📍 Sheffield
🎧📖 CR: Where sleeping girls lie
Current theme: 🎃
✍🏼🍰🍄🎢🎵🌈🐋

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🎃 HALLOWEEN RAFFLE FOR MARI (UK DELIVERY ONLY) 👻

Mari is an oppressed person with severe ME who has been fundraising to escape over 5 years of brutal DV for over a year now. She has finally escaped and just recently moved into her own place! — BUT she urgently needs to meet the full gofundme goal in order to survive alone, hire paid caregivers, and afford essential survival and medical needs.

🎃 To enter:

- Donate £5 per entry or £12/3 entries to Mari’s GFM: gofundme.com/marigfm (link in my linktree too)
- Send a screenshot DM confirming the donation to @franhaddock_
- *Deadline is midnight 24th October!*
- The goal is to raise $3000
- Prizes shipped to UK only! (Non-UK can still enter and nominate a UK friend to receive the prizes)

🧡 THE PRIZE:

One person will win:

- @thechocolatesmiths ‘Dr Bradbury’s Compendium of Curiosities’ 13 days of Halloween calendar (worth £75)
- Crochet pumpkin wreath made by @memyselfandcrochet
- The new, amusables S’mores jellycat (worth £35) donated by @livinglowonspoons
- Chronic illness merch including cards, stickers, a meds diary and a spoonie hat!
- 2 sets of Halloween stickers and Halloween colouring pages by @rana.theartist
- Cute Halloween prints and stickers made by @therealchronicillnesscrafter

We will aim to get the prizes posted out before Halloween but pls remember health limitations can sometimes cause a delay.

For legal purposes this raffle should be considered a prize draw with 1 free entry via post per entrant. Please contact @franhaddock_ if you need more info on this.

Tags: #Halloween #TheChocolateSmiths #CommunityCare #MECFS #October, win, prizes, chronic illness, disabled, community care, whimsical, autumn, fall, fyp, scary season, horror, ME/CFS, myalgic encephalomyelitis, millions missing by @franhaddock_

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16 days ago

💙 ME Awareness Week - Mutual Aid (MA) for people with ME 💙

Myalgic Encephalomyelitis, especially in its severest forms, is a life-destroying neuroimmune disease that leaves most unable to work and relying on others to survive, due to its incredibly debilitating nature. Due to decades of medical and societal neglect and abandonment by friends and family being common, many people with ME rely on MA and community support to survive this disease and have their basic needs met.

Medical and systemic racism means many racialised folk are disproportionately affected by under diagnosis and misdiagnosis (despite being disproportionately affected) as well as lack of government support.

There are many people with ME who live in global majority countries where ME is even less recognised than it is in the global north, or in active war zones and areas undergoing genocide.

One of the biggest impacts you can make to the ME community is by sending 💵 and resources directly to MA efforts, to those that need it the most. Especially if you are a non-disabled person or carry more privilege.

NB: there are 100s of MA posts for pwME so it is impossible for us to include them all, when both working with very limited capacity on a short timescale, hence why we invite anyone to add their own or their community members’ requests to the comments too!

Everyone reading, please check the comments as well as the graphics! Could you commit to a monthly transfer? Could you offer anyone help with making graphics and posts? Could you split an amount amongst multiple people?

Post made by @franhaddock_ and @liliomwrites

#MEAwarenessWeek #myalgicencephalomyelitis #MECFS #Community #SolidarityNotCharity Graphic introducing mutual aid post by @franhaddock_

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5 months ago

Time for a reintroduction!

Inspired by a few other people I’ve seen do this recently like @rana.theartist and @_jemma_bella 💖💖

NB most of the background photos do not represent how I am forced to spend most of my life atm (mostly horizontal in bed).

Thank you so much for everyone for being here! Whether you’re new or have been here for years! 💞💞

#ChronicIllness #MECFS #MillionsMissing #LongCovid

[Image IDs: image 1 is an image of Fran, a white woman with brown and pink hair, wearing dark pink dungarees and pink/maroon make up. Text reads ‘time for a reintroduction, hi, I’m Fran!’]

[Image 2: has a background image of Fran when she was younger, with a brown fringe, red lipstick and a gold glitters top. Text reads: Random facts about me: l’ve been a theme park & roller coaster enthusiast since the age of 10
I worked as a veterinary surgeon for 9 years before I became too sick
l’ve been active on this Instagram account since 2017
My favourite animals are orcas, otters and wombats
I used to be an (amateur) DJ at uni
I realised I was queer in my 30s
I love the city I live in (Sheffield, UK) I listen to about 100 audiobooks a year
My favourite colour is burgundy
I am an introvert and a Virgo!]

[Image 3: the background image is of Fran sitting in a wheelchair, holding a piece of her hair and wearing a stripy top with short dungarees. Text reads ‘Random things i love:
Music from the 2000s (and 80s)
Nostalgia
Horror films
Cats
Queer romance books
Sweet treats like cake, brownies and cookies and hot chocolate
Survival podcasts
The chronic illness community
ASMR
Seasonal rituals
Trees and funghi
Lipstick
Earl grey (decaff) tea
Boardgames
Pasta, sushi, burritos
Theme park vlogs
Halloween’] [cont in comments] by @franhaddock_

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8 months ago

Nafas, a queer poet and artist, needs community support to survive. It is vital that their story is shared and they get monetary support to get the care they need.

-Spread the word about Nafas’ search for more covid cautious carers and new housing (Berlin area)
-PP is the best way to send f unds, which go straight to Nafas with no cuts.
-Ko-fi is a great way to send consistent support and receive art,poetry, and exclusive works you won’t find elsewhere!
-Bring Nafas’ artwork home! Postcards, notepads, stickers and morefeaturing their artwork can be found on their Ę t ș y.
-Message us for info about Nafas’ support network if you can offer support either virtually or in-person!

#queerartist #disabledartist #trendingreels #berlin by @franhaddock_

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4 hours ago

SCROLL FOR MEMES ➡️

Chronic illness Obsession memes in honour of horror season and @softxdeath’s Obsession day for their 31 days of Halloween.

Obsession is my favourite film released this year so far. Obvs these memes are designed to be funny and not related directly to the content film. But it’s worth noting the film itself has thought-provoking and serious messages including problems with ‘the nice guy’ archetype (who can still be ab*sive) and around consent, control and autonomy. A must watch if you can tolerate horror. I’m hoping to rewatch it tonight!

#ChronicIllnessMemes #WearAMask #Obsession #MECFS #LongCovid

[Image IDs, image 1 is of Nikki from Obsession, a white woman with long brown hair, doing a creepy over the top smile. Text reads “OBSESSION
Chronic illness memes
Trying to hold it together but you haven’t felt well in over 8 years
@franhaddock_”]

[post 2 is a video, the background is a graphic showing the increase in disability since 2020. Text reads “when you remind the ‘during Covid’ people that Covid was and still is a mass disabling event”. In the foreground is a video of Nikki from Obsession saying “no no no no no no don’t do that”]

[image 3 has 2 images. The top is the image of Nikki from obsession doing an over the top creep smile. Text reads “ready for autumn”. The bottom image is of Nikki from Obsession doing an over the top sad face. Text reads “being hit by the October slide”] cont in comments by @franhaddock_

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4 hours ago

What an ME flare/relays can feel like

This is what it can feel like for me as someone on the ‘milder’ end of severe. These consequences are much more extreme and unbearable for people at the more severe end of severe, e.g. losing the ability to eat, roll over, use a commode etc.

Mutual aid

Please support my dear friend Mari, a multiply marginalised person who is trying to survive on her own with severe ME after escaping DV:

Gofundme.com/marigfm

[Video description: a video of a white woman laying in bed in a dimmed room with an eye mask above her eyes. She looks tired and exhausted. Text pops up on the screen as Help I’m Alive by Metric plays]

#myalgicencephalomyelitis #MECFS #LongCovid #SevereME #ChronicIllness by @franhaddock_

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a day ago

🌸 Get to know our friend Nevra. Part 1: What do we love about Nevra? 🌸

Nevra is a wonderful person. We love her dearly for so many reasons & want to share just some of those reasons with you.

As we share this, we also share a reminder that everyone with M.E. deserves proper care, treatment, & support no matter who they are. People in the Global South, like Nevra, have even less access to care, medications, doctors, & diagnosis. Please continue boosting her reels & her new Global South initiative. Thank you.

GFM: gofundme.com/f/save-nevra
PP: PayPal.me/SaveLizNevra

[Video Description: A picture of Nevra when she was more well with the text "Get to know Nevra through her friends" & the hashtag #MillionsMissing". Nevra is a brown woman with long black hair & is smiling slightly at the camera. Then there are videos from Nevra's friends, Arlette, Annie, Fran, & Dan, all speaking to the camera about her. Arlette is a white person with long brown hair wearing a green shirt. Annie is a white person with long brown hair wearing a black top & hoop earrings. Fran is a white person with long brown hair. Dan is a white person with short brown hair wearing a red jumper & silver necklace.] by @franhaddock_

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a day ago

Bedroom tour as someone approx 95% bedbound and 99% upstairs bound

Previously I couldn’t get to anything that wasn’t within arms reach of my bed. But now I can move around my room a bit to open curtains, get in my drawers etc once or twice a day.

I’ve seen people do much more innovative things than I have but still sharing incase it’s useful! But as always noting I have good care which means I can get people to pass me things, bring me hot food from downstairs, fill my fridge etc.

What set up have you got in your room that makes things easier? Any Qs about mine?

Mutual Aid

My dear friend Nevra needs ongoing support to survive very severe ME in Pakistan with limited medical support. Please see the links in her bio for how to help.

[Video description: Fran, a white woman with brown and faded pink hair in 2 plaits does a video tour of her bedroom. There are captions in white writing]

#BedroomTour #SevereME #bedbound #myalgicencephalomyelitis #LongCovid by @franhaddock_

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2 days ago

🌟 USE AMAZON PRIME DAY TO SUPPORT MARI - October 6th-7th 🌟

Mari’s Amazon Wishlist - bit.ly/marisurvivalneeds (all lower case- case sensitive)

*FYI if the wishlist is playing up and showing nothing available, you may need to put in a random Canadian post code at the top of the page and refresh (I use the CN tower’s- M5V 3L9)* (also a reminder that many disabled people unfortunately do have to rely on unethical companies to survive)

Amazon Prime Day is here. This is a wonderful opportunity to help Mari access urgently needed essentials, which may be discounted for prime day.

Mari’s wishlist includes important essentials such as food delivery vouchers, drinks, medical supplies, and other necessities that help her manage day-to-day survival now that she is surviving on her own.

Every item purchased helps Mari directly by providing ongoing access to essentials. This directly helps her access nutrition and medical needs, while reducing stress, overexertion and supporting her need to rest since she has moved.

Thank you so much to everyone who shares, purchases, and keeps Mari in your thoughts💙

#MECFS #MillionsMissing #SevereME #CommunityCare #ChronicIllness by @franhaddock_

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3 days ago

Lifestyle changes often advised for better physical and mental health that can be completely inaccessible to people with ME…

What did I miss?

Mutual aid

My dear friend Bowie, a trans person with very severe ME, needs fvnds for safe transport to avoid potentially disastrous construction disruption at their accommodation, and also for a new medical mattress to prevent bed sores.

PP: @jacquelinekopra
Paypal.me/jacquelinekopra

#SevereME #myalgicencephalomyelitis #MECFS #LongCovid #ChronicIllness by @franhaddock_

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3 days ago

🔗 DONATION LINKS – IN @reakiro's BIO

HELP WAR REFUGEE WITH VERY SEVERE ME SURVIVE IN NOVEMBER

Daryna is a 29yo Ukrainian with very severe ME and myasthenia gravis.

In June fellow community members urgently evacuated her from a war-zone in Eastern Ukraine to Berlin on a mobile ICU.

Now Daryna is alone in Berlin, and is fully reliant on the fundraising to pay for rent, carers, food and medication. She is stuck in bureaucracy, still waiting for the decision about government help.

The need to exert herself repeatedly with fundraising and survival tasks leads to her deteriorating.

She is in a bad state - can't sit up or speak, has breathing and swallowing difficulties. She cannot hold a spoon and has difficulty chewing. She is fully bedbound and 100% reliant on care.

If fundraising fails she will have to return to a war-zone where she already nearly didn't survive an aerial attack on her home and has no way to flee to shelter.

MONTHLY EXPENSES:

• Caregiving: €1,000 ($1,155)
• Rent: €1,150 ($1,330)
• Medication: €450 ($520)
• Food: €350 ($400)
• Platform fees: €239 ($276)
• Monthly total: €3,189 ($3,681)

€1,950 ($2,195)
left to raise. Every euro matters.

🔗 DONATION LINKS – IN @reakiro's BIO taken in Berlin, Deutschland by @franhaddock_

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3 days ago

The reality of being a supposed ‘sickfluencer’

To be clear, I really do love being here. I wouldn’t have posted nearly every day for the last few years and every week for over 9 years if I didn’t! But it did feel therapeutic to write out some of the hard parts, which only seem to be getting harder with the recent influx in disabled hate.

As I say in the last slide, I have experienced all of these to some degree and that is as a white, cis, straight passing, straight-sized, extremely privileged person. So please remember these factors are amplified for multiply marginalised sick and disabled people sharing their experiences online. I do think I experience significantly less hate than I’ve seen fellow content creators experience.

And I definitely do have less experience with some of these. For instance, I’ve been very lucky to have many friends and family members stick by me. But I wanted to include that point as I know so many ‘sickfluencers’ (and sick people in general) who lose family and friends.

There’s probably loads I missed here, but these are just some of the realities of sharing your life online, even though for me the pros still outweigh the cons.

Fuck Poppy Coburn.

Mutual aid

My dear friend Mari needs ongoing support after finally escaping years of DV with ME. She needs support to afford care, food, medical and survival needs:

Gofundme.com/marigfm

#Sickfluencer #ChronicIllness #Disabled #MECFS #myalgicencephalomyelitis by @franhaddock_

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4 days ago