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HDSANational

@hdsanational

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HDSA's mission is to improve the lives of everyone with Huntington's disease and their families.
Supporting youth and young adults @hdsa_nya

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We’re hiring!

HDSA is looking for passionate people to help our mission of supporting families facing Huntington’s disease. 💙💙

For more information, visit the link in our bio.

#LetsTalkAboutHD #HDSA #HuntingtonsDisease by @hdsanational

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6 hours ago

Stay up to date with the latest information and helpful resources through HDSA's wonderful Disability Tips series. Hosted by Allison Bartlett, Esq., Senior Manager of Disability Programs.

To learn more, visit the link in our bio.

#LetsTalkAboutHD #DisabilityTips #Huntingtonsdisease by @hdsanational

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9 hours ago

HDSA events are happening nationwide this October, and there are so many great events to choose from!

Find an upcoming event in your neck of the woods at the link in our bio.

#HuntingtonsDisease #LetsTalkAboutHD #HDSA by @hdsanational

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14 hours ago

Are you looking for another way to support the HD community?

Do you have an older vehicle sitting around?

You can donate it to the Huntington's Disease Society of America, and help support families affected by Huntington’s disease!

It's easy, and Impactful!

We accept all kinds of vehicles:
🚚 Trucks
🚗 Cars
🏍️ Motorcycles
🛥️ Boats
…and more!

If It’s time to donate, visit the link in our bio to learn more.

#HuntingtonsDisease #LetsTalkAboutHD #VehicleDonation #CarDonation by @hdsanational

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a day ago

Support Ken Nadsady, a member of our NYC Marathon Team! On November 2nd the team will take on 26.2 miles to help raise awareness for Huntington's disease and raise funds to support all of HDSA's Mission Programs.

You can support Ken by visiting his fundraising page at the link in our bio.

Together, we can make a difference!

#HDSA #HD #NYCMarathon by @hdsanational

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a day ago

#LetstalkaboutHD with the HDSA Florida Chapter

Don't miss this article from Tampa Beacon previewing the 6th Annual Brittany Bosson Hope for Huntington’s Memorial Golf Tournament taking place in Largo, Florida next Friday, October 23rd!

To read the full article, and find more information about the 6th Annual Brittany Bosson Hope for Huntington’s Memorial Golf Tournament, visit the links located in our bio.

#HDSAFamily #HuntingtonsDisease #HD by @hdsanational

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2 days ago

Did you know that every monthly contribution aids HDSA in supporting social workers, our disability program, and sustainable care at HDSA Centers of Excellence, in addition to funding essential HD research and much more?

Discover how you can become a monthly donor today.

To learn more about becoming a monthly donor today, visit the link in our bio.

#HDSA #HuntingtonsDisease #LetsTalkAboutHD by @hdsanational

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2 days ago

Upcoming webinar!

Join us on November 12th at 11:00 AM ET for a community webinar on the PRECISE-HD Trial, a Phase 3 study evaluating pridopidine in Huntington’s disease.

Learn more about the PRECISE-HD study, what potential participation might involve, and where to find additional information.

The presentation will feature Nils Confer, PhD, Executive Medical Director at Prilenia, along with HDSA's own Tamara Maiuri, PhD, Associate Director of Research and Patient Engagement. Allison Bartlett, Esq. Senior Manager of Disability Programs; and MaryAnn Emerick, LMSW, Senior Manager of Youth & Community Services.

To learn more, and register, visit the link in our bio. by @hdsanational

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2 days ago

#letstalkabouthd with the Connecticut Chapter

Check out this news segment from Fox 61, previewing the 2026 Celebration of Hope: A Toast to Hope taking place this Sunday, October 18th in Hebron, Connecticut.

To watch the full video and learn more about the 2026 Celebration of Hope: A Toast to Hope, visit the links located in our bio.

#HDSAFamily #HuntingtonsDisease by @hdsanational

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3 days ago

HDSA and FreeWill have partnered together to offer a free, secure way to write your will online.

The process only takes about 20 minutes, and you can complete it, entirely from the comfort of your own home.

Because planning for the future should be simple, not stressful or expensive.

Visit the link in our bio to learn more.

#LetsTalkAboutHD #HDSAFamily #FamilyIsEverything by @hdsanational

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3 days ago

The latest Installment of our Disability Tips vlog, "Open Enrollment" is available to watch right here on Instagram!

Hosted by Allison Bartlett, Esq., Senior Manager of Disability Programs.

To find more information and helpful resources, visit the link in our bio.

#DisabilityTips #LetsTalkAboutHD #Huntingtonsdisease by @hdsanational

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3 days ago

Fall is in full swing, find an HDSA event near you this October:

2026 Emory University Fall Education Day – Atlanta, GA - 10/17/2026
2026 Ohio Valley Community Family Day - West Chester, OH - 10/17/2026
2026 Team Hope Walk – Orlando, FL - 10/17/2026
2026 Team Hope Walk - Grand Prairie, TX - 10/17/2026
2026 Education Day – Salt Lake City, UT - 10/17/2026
2026 Education Day – Birmingham, AL - 10/17/2026
2026 Celebration of Hope: A Toast to Hope - Hebron, CT - 10/18/2026
2026 Team Hope Walk - Chester Township, OH - 10/18/2026
2026 Team Hope Walk – Long Island, NY - 10/18/2026

To learn more, visit the link in our bio.

#LetsTalkAboutHD #HuntingtonsDisease #HDSA by @hdsanational

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4 days ago