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@heldlight

@heldlight_

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Sometimes our deepest pain gives us the ability to understand someone else’s darkness and help them find the light.

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Maybe part of loving somebody with Parkinson’s is learning that you don’t always have to fix the problem.

Sometimes you just hold them and ride out the storm together.

#ParkinsonsDisease
#YoungOnsetParkinsons
#Dyskinesia
#ParkinsonsCaregiver
#CaregiverLife by @heldlight_

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4 months ago

Caregiver syndrome is real.
Being tired all the time. Snapping at people you love. Stress eating. Living in fight-or-flight like it’s normal.
This isn’t a personality flaw. It’s what happens when your nervous system never gets to stand down. #CaregiverBurnout
#CaregiverSyndrome
#CaregiverLife
#ChronicStress
#NervousSystem
SpousalCaregiver
CaregiverSupport by @heldlight_

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723

8 months ago

When Parkinson’s progresses, communication changes.

There are moments where speech just isn’t there. That doesn’t mean connection is gone, it just means you have to adapt.

This is one way we’ve learned to bridge that gap.

Simple tools like sign language or even a basic chart can give your person a way to communicate when words aren’t available.

It’s not perfect. It takes patience. But it keeps them from being trapped in their own body without a voice.

If you’re walking into later stages of this disease, start thinking about communication early. It matters more than you think.

Follow HeldLight for real-world caregiver strategies and what this actually looks like day to day.

#parkinsons #parkinsonsdisease #caregiverlife #signlanguage #asl by @heldlight_

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6 months ago

A friend of mine died this week, and I’m carrying a lot of sadness and anger about it. If you’re in a dark place, please reach out to somebody. You don’t have to sit there alone with it.

#MentalHealth #SuicidePrevention #CaregiverSupport #YouAreNotAlone #HeldLight by @heldlight_

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17 hours ago

A pink ribbon looks good. Actually reducing cancer risk would look a hell of a lot better.

#BreastCancerAwareness #Pinkwashing #CancerPrevention #CancerAwareness #HeldLight by @heldlight_

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2 days ago

Sometimes caregivers finally get the break they’ve been asking for and have no idea how to use it. I had three hours yesterday and blew every damn minute of it.

#CaregiverLife #Caregiving #CaregiverBurnout #CarePartner #CaregiverSupport by @heldlight_

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3 days ago

Caregiving burnout can change you. I’ve become crankier, angrier, and sometimes I’ve been a real asshole to people who didn’t deserve it. The important part is recognizing it, owning it, apologizing, and trying to do better.

#Caregiving #CaregiverBurnout #CaregiverMentalHealth #Caregiver #HeldLight by @heldlight_

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4 days ago

This long-term caregiving journey has taught me to be more reactive, less proactive. Has it done the same for you?

#CaregiverLife #Caregiving #CaregiverSupport #CarePartner #CaregiverBurnout by @heldlight_

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7 days ago

Near the end of the conversation, Daniel offered the HeldLight audience 25% off Solenva on the spot.

I gave him one last chance to back out.

He didn’t.

The reason behind it matters more than the discount: they want more people with Parkinson’s and their care partners using the product, giving feedback, and helping them continue building the real-world data around it.

Full podcast:

YouTube:
https://youtu.be/0wVSnY4V7Xs?si=8w53LRMkg1P9vArQ

Spotify:
https://open.spotify.com/episode/7r7gMcg2rB1Avj8CyiCpo0?si=29abccbe7aa24b14

Learn more about Solenva:
https://www.getsolenva.com/

25% off with code: HELDLIGHT25

HeldLight currently receives no commission or affiliate revenue from use of this code.

Disclosure: Solenva provided the product used by my wife at no cost. HeldLight was not paid for this interview. This content is educational and informational only and is not medical advice. Solenva is not being presented as a cure or proven treatment for Parkinson’s disease. Talk with your physician, neurologist, or movement-disorder specialist before changing medications, supplements, or cannabinoid use.

#ParkinsonsDisease #Parkinsons #Cannabinoids #Caregiving #HeldLight by @heldlight_

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9 days ago

A lot of people hear words like palliative care, hospice, and end-of-life care and immediately shut down because it feels like admitting something they’re not ready to say out loud.

But these conversations matter. Knowing the difference, knowing who to talk to, and knowing where to go for support can make a huge difference for both the patient and the family.

Sometimes the hardest part is just saying, “We need to talk about this.”

The sooner you do, the sooner you can get support, answers, and help figuring out what comes next.

This is from my full conversation with Chelsey Ernst, PA-C — @YourPalliativePA.

Watch on YouTube:
https://youtu.be/xJ_x3qXRdBo

Listen on Spotify:
https://open.spotify.com/episode/4f6nNG8DaggfSjWP5d0r3f?si=63553eb87f144bd8

#PalliativeCare #Hospice #EndOfLifeCare #Caregiving #CaregiverSupport by @heldlight_

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10 days ago

There’s a difference between being needed by your spouse and feeling wanted by them. Parkinson’s has taken a lot from our marriage, and sometimes I have to remind myself that what I’m angry at is the disease, not my wife.

#CaregiverLife #SpousalCaregiver #Parkinsons #CaregiverLoneliness #Caregiving by @heldlight_

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11 days ago

Had such an amazing convo on the @heldlight_ podcast

Find the whole interview on YouTube or Spotify! Let me know if you’d like the YouTube or Spotify link!

#podcast #palliativecare #hospice #death #endoflifecare by @heldlight_

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12 days ago