Instagram story viewer> @icpcare> Posts

ICP Care 501c3 nonprofit

@icpcare

5.9K

followers

2647

following

Providing evidence-based educational resources, support groups & raising awareness of Cholestasis of Pregnancy rare liver disease. Saving babies.

POSTS STORIES REELS TAGGED

Download All

October is Pregnancy & Infant Loss Awareness Month.

Today, we are honored to share a powerful story of loss, resilience, and hope.

Twenty-nine years ago, her mother was pregnant with twins. She didn’t know she had ICP, and sadly, her twin sister passed away in the womb. Years later, her family learned that ICP was connected to the loss.

Twenty-nine years later, at 25 years old, she became pregnant with her first baby — never knowing that she, too, could experience ICP.

She began experiencing unbearable itching, especially on her hands and feet. After testing her bile acids, she was diagnosed with Intrahepatic Cholestasis of Pregnancy (ICP).

Knowing her family history made the diagnosis even more terrifying. She spent her pregnancy facing constant monitoring, sleepless nights, fear, and eventually an early induction due to the risks associated with ICP.

But after everything she endured, she finally held her baby in her arms.

She says:

“It was worth every itch. Every sleepless night, every tear, every fear, and every painful moment was worth it when I finally held my baby in my arms.”

She is sharing her story so that another mom experiencing these symptoms knows she is not alone.

If you are pregnant and experiencing intense itching, especially on your hands or feet, please talk to your healthcare provider and ask about ICP and bile acid testing.

Thank you for sharing your story and helping us raise awareness about ICP and the families whose lives have been forever impacted by it.

#PregnancyAndInfantLossAwarenessMonth #ICP #CholestasisOfPregnancy #ICPstory by @icpcare

26

5

20 hours ago

October is Pregnancy and Infant Loss Awareness Month.

At ICP Care, we remember and honor every precious baby whose life was lost, and we hold their families close in our hearts. There are no words that can erase the pain of loss, but you are not alone. Our ICP Care community stands with you in remembrance, love, and support.

Intrahepatic Cholestasis of Pregnancy (ICP) can carry a devastating risk when not properly recognized and managed: stillbirth.

One of the most common symptoms of ICP is moderate to severe itching during pregnancy, often without a rash. Itching in pregnancy should never be ignored. Talk to your healthcare provider about your symptoms and ask about ICP.

Know the signs.
Speak up about the itch.
Help spread awareness.

This month, help us honor the babies we have lost by sharing lifesaving information with someone who may need it.

Together, we can raise awareness, support families, and work toward a future where fewer families experience the heartbreak of pregnancy loss. Fight the itch. Save a life.

Learn more about ICP and Pregnancy & Infant Loss Awareness Month — link in bio.
https://icpcare.org/event/october-pregnancy-and-infant-awareness-month/

#PregnancyAndInfantLossAwarenessMonth #Stillbirthprevention #Stillbirth #IntrahepaticCholestasisOfPregnancy #CholestasisOfPregnancy by @icpcare

68

1

5 days ago

Why do we need the ICP Care Patient Registry?

Because ICP is rare, researchers need data from many patients to better understand the condition, improve care, and help prevent complications in future pregnancies.

By sharing your pregnancy experience and filling out the surveys, your voice can help shape the future of ICP care.

Participation is voluntary, secure, and open internationally. Your information is kept confidential, and data shared with researchers is de-identified.
Add your voice. Help advance research. Help improve care.

Join the ICP Care Patient Registry today:
ICP Care Patient Registry https://icpcare.org/icp-community/patient-registry

#ICPawareness #IntrahepaticCholestasisOfPregnancy #ICPResearch #PatientRegistry #MaternalHealth

https://icpcare.org/icp-community/patient-registry by @icpcare

12

1

8 days ago

Having ICP is NOT your fault.

You didn’t cause it, and you’re not alone. Intrahepatic Cholestasis of Pregnancy (ICP) is a pregnancy-related liver disorder that deserves awareness, proper care, and support.

#IntrahepaticCholestasisOfPregnancy #Cholestasisofpregnancy #MaternalHealth #Cholestasis #HighRiskPregnancy by @icpcare

44

0

13 days ago

Your experience with ICP could help researchers learn more.

There is still so much we don’t know about Intrahepatic Cholestasis of Pregnancy (ICP). Certain experiences are especially important to research, including:

• Twin or multiple pregnancies
• Diagnosis during the first trimester
• ICP alongside another liver disorder

By joining the confidential ICP Patient Registry, you can contribute your experience to help researchers better understand ICP and work toward improved care and treatment.

Every experience adds to what we know. Your information could help make a difference for future pregnancies.

Join the Free ICP Patient Registry today:
https://icpcare.org/icp-community/patient-registry/

Help us advance ICP research. Share your experience. by @icpcare

8

0

15 days ago

Today is National Stillbirth and Prevention Awareness Day. ICP Care remembers and honors all of the babies lost to stillbirth today.

ICP Care is dedicated to protecting pregnancies, families, and their unborn babies from Intrahepatic Cholestasis of Pregnancy (ICP) through raising awareness and encouraging advocacy for moms and their health care providers.

We can prevent stillbirth by continuing to shine a light on this condition in sharing our stories, being a support to one another, and promoting research. Consider sharing your story with ICP Care.

https://icpcare.org/icp-community/pregnancy-stories/

Fight the Itch. Save a Life.
•

#intrahepaticcholestasisofpregnancy #icppatientregistry #stillbirthprevention #stillbirth #nationalstillbirthpreventionandawarenessday by @icpcare

94

1

17 days ago

Itching during pregnancy isn’t always just part of pregnancy.

Intense itching—especially without a rash—can be a warning sign of Intrahepatic Cholestasis of Pregnancy (ICP), a liver disorder that can increase risks for both mom and baby.

Knowing the signs and asking for the right testing can make a difference.

If you’re experiencing persistent itching during pregnancy, talk to your healthcare provider and ask about bile acid testing and liver function tests.

Your symptoms deserve to be heard. Your baby deserves to be protected.

Fight the itch. Save a life.

For more information, resources, and support, visit icpcare.org

📲 Save this post and share it with an expecting mom—you never know who may need to see it.

#IntrahepaticCholestasisOfPregnancy #BileAcids #LiverHealth #ICPAwareness by @icpcare

38

0

20 days ago

FREE ICP CARE EDUCATIONAL BROCHURES ARE AVAILABLE!

Whether you’re newly diagnosed with Intrahepatic Cholestasis of Pregnancy (ICP) or a healthcare provider caring for someone who has experienced ICP, having reliable information matters.

ICP Care offers two FREE educational brochures and infographics, available to order in packages of 15:

1. Intrahepatic Cholestasis of Pregnancy — Patient Brochure
A helpful guide covering ICP symptoms, diagnosis, treatment, pregnancy management, and important long-term health considerations.

2. Considerations After an ICP Pregnancy — Healthcare Provider Brochure
A resource for healthcare providers covering future health risks, conditions associated with ICP, and considerations for follow-up and screening after pregnancy.

3. ICP Infographics - A one-page visual graphic containing clickable links to facts and information regarding Intrahepatic Cholestasis of Pregnancy.

Order your FREE brochures today:
https://icpcare.org/shop

Share this post with someone who could benefit from these resources.

ICP Care — Connect. Support. Educate. Empower. by @icpcare

7

0

22 days ago

Itching during pregnancy? Listen to your body

Intense itching—especially on the **palms of your hands and soles of your feet, and often without a rash—can be a symptom of **Intrahepatic Cholestasis of Pregnancy (ICP).

ICP is more than an uncomfortable pregnancy symptom. Recognizing the signs and getting the appropriate testing can help protect moms and babies.

If you’re experiencing persistent or unusual itching during pregnancy, talk to your healthcare provider and ask about bile acid testing.

✨ Know the symptoms.
✨ Ask questions.
✨ Advocate for yourself and your baby.

Fight the itch. Save a life.

Share this Reel with an expecting mom. Awareness matters.

Learn more, find evidence-based resources, and get support at icpcare.org

#IntrahepaticCholestasisOfPregnancy #icppregnancy #cholestasisofpregnancy #itchingpregnancy by @icpcare

13

0

a month ago

ICP is a pregnancy-specific liver disorder that can cause bile acids to build up in the blood.

The most common—and often only—symptom is moderate to intense itching, often affecting the hands, wrists, feet, and ankles, and sometimes occurring all over the body. It may be especially intense at night.

Know the signs. Know the risks. Speak up.

If you or someone you know is experiencing unexplained itching during pregnancy, encourage them to **contact their healthcare provider and ask about testing for ICP.

Share this post. You never know who may need to see it.

Learn more about ICP at https://icpcare.org

#IntrahepaticCholestasisOfPregnancy #PregnancyAwareness #MaternalHealth #PregnancySymptoms #KnowTheSigns by @icpcare

22

1

a month ago

Do you know the signs and symptoms of Intrahepatic Cholestasis of Pregnancy (ICP)?

The most common symptom of ICP is **moderate to intense itching**, often on the **palms of the hands and soles of the feet**, but it can occur anywhere on the body.

Other symptoms may include:

-Right upper quadrant abdominal pain
-Dark urine
-Pale or greasy stools
-Jaundice (yellowing of the skin or eyes)

If you are pregnant and experiencing unexplained itching or any of these symptoms, don't ignore them. Talk to your healthcare provider and ask about testing for ICP.

Early recognition, appropriate testing, and monitoring are important for the health of both mom and baby.

Learn more about ICP, symptoms, testing, and pregnancy management at https://icpcare.org

#IntrahepaticCholestasisOfPregnancy #secondtrimester #thirdtrimester #cholestasisofpregnancy by @icpcare

13

1

a month ago

My ICP Story | Magdalynn's Journey

"I found out I was pregnant in September 2025 at just 20 years old. As a first-time mom, I was so excited to meet my baby girl. Then I developed severe itching that left scars and kept me awake at night. I told my OB, and bloodwork confirmed Intrahepatic Cholestasis of Pregnancy (ICP) at 27 weeks. My bile acid levels were extremely high, and I began frequent monitoring and medication. I was constantly worried about my baby and hoping to see her moving at every ultrasound. At 36 weeks and 4 days, I was induced and welcomed my beautiful, happy baby girl."

Her story is a reminder that severe itching during pregnancy should never be ignored. ICP can put both mom and baby at risk, but recognizing the symptoms, getting bile acids tested, and receiving appropriate monitoring and care can make a difference.

Thank you, Magdalynn, for sharing your ICP story and helping raise awareness.

If you're experiencing moderate to intense itching during pregnancy, especially on the hands and feet, talk to your healthcare provider and ask about ICP.

Learn more: https://icpcare.org
Submit your My ICP Story today https://forms.gle/fXtxf2wepZaZ2MoJ7

#MyICPstory #IntrahepaticCholestasisOfPregnancy #ICPpregnancy #Stillbirth #cholestasisofpregnancy by @icpcare

41

0

a month ago