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indieugood?

@indieugood

763

followers

186

following

🧶🎨 artist/writer/student ✍🏼
🐼 PANS/BGE + tourette's
🧠 generalized epilepsy
📌 read pinned post before DMing

POSTS STORIES REELS TAGGED

note: THIS IS NOT AI CONTENT 🙄 instagram decided to label it as such, but that's incorrect.

POST DESCRIPTION:
A post with the creator’s username “indieugood?” is heading the top. A brain, a panda, and a squirrel are the three main graphics on this page. The message layered on top of a notecard graphic says the following:
“Hi, I’m Indie. I’m an epilepsy, PANS/PANDAS, and disability advocate.
A few things to bear in mind when messaging me:
• Please do not ask me for medical advice, diagnoses, treatment recommendations, or opinions about your individual medical situation. I am not a doctor, and any and all medical questions should be directed to your own treatment team.
• If I respond to your message, please understand that l am simply responding to a message. A response does not imply an ongoing personal relationship, friendship, or availability for continued conversation. I may not have the bandwidth to respond again, and that’s not personal.
• This account is an educational and advocacy space. I am not a personal resource service, therapist, or substitute for professional support. I cannot provide individualized resources, evaluate your situation, or help you navigate your personal circumstances. I encourage you to seek the help of a qualified professional for any of those needs.
• Please be respectful of these boundaries and remember to take care of yourself. 💙”
END OF POST DESCRIPTION

#Epilepsy #Panspandas #BGE #Lyme #Epilepsyawareness by @indieugood

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a month ago

never. i will never quit.
VIDEO DESCRIPTION:
Indie, a white, brunette haired individual, shows clips of her life before and after epilepsy. When the music starts going faster, Indie plays clips of their life living with cerebellar ataxia now. Tone of video is thoughtful and a bit melancholy. Transcript of subtitles in comments.
END OF VD
#Epilepsy #Epilepsyawareness #TBI #Ataxia by @indieugood

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3 months ago

just B+ guys

VIDEO DESCRIPTION:
Indie, a white, brunette haired individual, is seated with their medium-length hair down over their blue shirt. They are recalling a funny memory over how they were informed of their blood type and narrating it whilst trying not to laugh (and still laughing).
END OF VD

#Blood #Positive #Bpositive by @indieugood

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16 hours ago

VIDEO DESCRIPTION:
Indie, a white, brunette haired individual, is seated with hair tied back, wearing a pink sweater. They are posting a video message they had sent a friend that includes a rather humorous tic, with the caption on screen reading "New tic just in time for halloween. Apologies to the friend i sent this video message to, you know who you are🤣".
END OF VD

#Tourettes #Tics #Funny by @indieugood

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3 days ago

messy mandalas ft. cerebellar ataxia

VIDEO DESCRIPTION:
Indie, a white individual, has the camera focused on their brown, wooden desk. As they do a voiceover, the footage shows them adding designs to a small, white, square piece of paper. The ink they are using is black ink, and the design is shaky, but that’s the whole point. Indie is using this video to work with their cerebellar ataxia that causes such difficult movements and coordination - not against it.
END OF VD

#Ataxia #Cerebellarataxia #Mandala #Art #Artist by @indieugood

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4 days ago

Felt that this was relevant to certain events lately.
“Everybody Knows” cover by Leonard Cohen:
Sigrid arrangement. s/o to Timothy Schmidt for the instrumental💙
VIDEO DESCRIPTION:
Indie, a white, brunette haired individual, is seated with hair down over their shoulders, wearing a black camisole with little flowers on it. In front of them is a blue microphone and they are wearing an earbud. They are singing a cover of a song they feel is relevant to things they have witnessed in the news, in their community, and in their life.
END OF VD
#Song #Cover #Singing #Sing by @indieugood

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5 days ago

(this is sarcasm and is not actually what i tell myself. i’m glad people are living their lives🤣)

VIDEO DESCRIPTION:
Indie, a white, brunette haired individual, is seated with their hair down, wearing a Gophers tee and green plaid pajama bottoms. They are lipsyncing to a tiktok audio. Caption on screen reads: “What I tell myself when I see people living their lives and I’m housebound”. (This video is sarcasm and is not actually what Indie thinks)

#Epilepsy #Panspandas #BGE #Cerebellarataxia by @indieugood

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6 days ago

this tickled me

VIDEO DESCRIPTION:
Indie, a white, brunette haired individual, is seated wearing a salmon-colored sweater with their hair down. They show text messages from their conversation with their brother and best friend regarding their birthday. Messages are as follows:
Indie, on Saturday: OK - confirmed date and time is oct. 25th @ 5:30pm ✅
Indie, on Monday, after no response: bros pls give me a courtesy thumbs up or smthn so i know you got the memo
Indie’s brother sends a voice messahe that screams: YEAHHHH
Indie’s best friend: My bad y’all I didn’t mean to miss all these texts 🤦🏾‍♂️. Just seeing this!
Indie finally received thumbs up on their messages.
Tone of video is indeed quite humorous.
END OF VD

#Friends #Brothers #Birthday by @indieugood

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7 days ago

VIDEO DESCRIPTION:
Indie, a white, brunette haired individual, has pieced together clips of them in non-convulsive status epilepticus, which they describe the symptoms of in the video. Tone of the video is personal and educational.
END OF VD
#Epilepsy #Epilepsyawareness #NCSE #Nonconvulsivestatusepilepticus by @indieugood

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8 days ago

happy PANDAS/PANS awareness day everyone 💙 i am hoping next year i can actually make a sufficient video, but for today, this will have to do. and what a great example of P/P at that! 🤣

VIDEO DESCRIPTION:
Indie, a white, brunette haired individual, is wearing two plaits and a yellow pajama shirt with leaves on it. They are seated and discussing how they can’t make a proper PANDAS/PANS awareness video on the day of PANDAS/PANS awareness. They do find this a bit funny.
END OF VD

#Pandaspans #BGE by @indieugood

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2

10 days ago

courtesy of brain atrophy from untreated status and 5 ASMs

VIDEO DESCRIPTION:
Indie, a white, brunette haired individual, has their hair in a braid to the side and is wearing a salmon-colored shirt. They are lipsyncing to a tiktok audio of someone stuttering. Caption on screen reads: “how i sound most of the time thanks to epilepsy and anti epileptic medication”. Indie is making light of their situation in this video.
END OF VD

#Epilepsy #Epilepsyawareness by @indieugood

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11 days ago

almost missed this

VIDEO DESCRIPTION:
Mickey, a black and white dog whose breed is a cross between a blue heeler and a boston terrier, has his face pressed against the seat of a chair, begging for food. the tiktok audio is from a cult-classic movie from 2004 called mean girls, and this audio is usually used annually on oct. 3rd.
END OF VD

#October3 #itsoctober3rd #dogs by @indieugood

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16 days ago