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Megan Murano Moore

@meganmoore1997

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I love my life I have great friends and great family
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Yes this is true I have been through a lot with my condition yes some days are good and sometimes they are bad yes it breaks your heart but sometimes it’s a challenge but I’m blessed with the life god has blessed me with I’m so thankful for every single one of you guys god made me this way for a reason I have had two surgeries in the last three months but I’m thankful to be alive and continue to share my story by @meganmoore1997
Y’all have probably been wondering where I have been. I am in the hospital. I had surgery. I had a perforation and diverticulitis and I caught it soon enough that I was able to get surgery. I cannot wait to go home and lay in my own bed and relax at home with my grandma and grandpa and my dog. I love you all very much you want to stop by you are more than welcome to. by @meganmoore1997
If there is one thing this surgery taught me is that I am tough and brave this surgery was one of the biggest surgery’s I ever had it is not easy and I am thankful that it’s over and done with because it’s a mile stone that I am doing good But it’s not easy by @meganmoore1997
Thoughts and prayers are sincerely appreciated as we navigate this crucial day. by @meganmoore1997
Welp surgery is in a week from next week. I am ready for the surgery to be done and over with. I am ready to start a new chapter in my life. I know some of you may not understand that the surgery is going to be a major surgery, so please keep me in your thoughts and prayers and I will be happy and healthy on the other side when I am done getting the surgery by @meganmoore1997
Hey everyone today is another Williams syndrome awareness day I want to say thank you so much for all of your support yes this journey is not easy I believe in the good the bad and the ugly I believe I was given a chance to be here to help make a difference and help others understand from a disability standpoint not chewing anybody out but I believe that in order to help others understand I have to make people aware of things life is too short to be mad at each other and be mean to people because you never know what is going on in someone else’s life being kind doesn’t take much just remember disability people have to work for things harder weather it’s becoming independent or medical stuff we all have different things but at the end of the day please be kind by @meganmoore1997
Today is reflection day this month is Williams syndrome awareness month there has been ups and downs but I want you all to understand something I have been through more medical stuff this year than I ever have been through before it is not a easy thing to deal with people can tell me Megan you are going to be okay but in reality I’m not I don’t need your gonna be okay what I need is just sit with me where I am at and understand that my condition is not easy for me to deal with that’s why I’m bringing awareness about it if I said to you I wish I was normal what would you say to that I know I shouldn’t say that because it’s apart of who I am but sometimes it’s really hard to deal with I go to the doctors so many times I can’t even count I go to the hospital many times I can’t even count that either by @meganmoore1997
Hey, I just wanted to say since it’s swim syndrome awareness month I would just like to say thank you to all my friends and family. You have been supportive and thank you for all the love. I love every single one of you and I thank you again for your love and support. Life goes a very long way when you have people who love and support you. I feel like people have no idea what it’s like when you have Williams syndrome and you have have to go through a lot of stuff this week. I have realized that I have probably been to the hospital and doctors more time than ever and sometimes I wish I could be a normal child or young adult and not have to go to so many appointments and Hospital visits it is time that we do more research. too many people with my disability have passed away due to unknown circumstances as we do more research, we can make sure and help that there will be no more sudden deaths in our community. by @meganmoore1997
Today is Williams syndrome awareness month and if you have someone with Williams syndrome hold them close and tell them you love them by @meganmoore1997
I have been wanting to tell you all an update since I first told you all that I am having surgery and need to loose weight it’s been hard not going to lie I have been trying my best to go to the gym making the right decisions is hard I have cried 4 times since then I have been struggling its not easy when you are pressured to loose weight in a certain time frame and have to do hard things so you can lose weight I wish I could loose weight overnight but I know I can’t please keep me in prayer and in your thoughts I appreciate it by @meganmoore1997
Hey everyone I was trying to find away to say this I have to have surgery because I have a highatal hernia and they need to fix it it’s going to take about 3months for me to loose weight and be ready for the surgery i am kinda sad because I have to miss out on the Williams syndrome convention and this surgery is major so please keep me in your thoughts and prayers that I do what I need to do to get prepared for this surgery and no this post is not about how beautiful I look lol love you all by @meganmoore1997
I was afraid to do this, but I am going to tell you how I feel about what is going on in our world today. Specifically, the US I don’t care about what side you are on or what religion you are, but when it comes down to it, I believe in doing things peacefully I think both sides of what’s going on have gotten out of hand. I am not Maga or anything like that. I am just a human being that believes in peace and love right now I feel that everyone has a right to say what they feel but to do things with violence I do not believe in that. When is all the hate and violence going to stop? That’s what I would like to know. by @meganmoore1997

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