Megan Murano Moore

Hey, I just wanted to say since it’s swim syndrome awareness month I would just like to say thank you to all my friends and family. You have been supportive and thank you for all the love. I love every single one of you and I thank you again for your love and support. Life goes a very long way when you have people who love and support you. I feel like people have no idea what it’s like when you have Williams syndrome and you have have to go through a lot of stuff this week. I have realized that I have probably been to the hospital and doctors more time than ever and sometimes I wish I could be a normal child or young adult and not have to go to so many appointments and Hospital visits it is time that we do more research. too many people with my disability have passed away due to unknown circumstances as we do more research, we can make sure and help that there will be no more sudden deaths in our community.