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My Several Worlds ✍️ Stories of Disability, Illness & Belonging(@myseveralworlds)'s profile avatar HD Profile

My Several Worlds ✍️ Stories of Disability, Illness & Belonging

@myseveralworlds

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✒️ WRITING & ART 🎨
👩‍🦼 MSW supports people living with #axSpA #fibromyalgia #MECFS #APS #Disability #ChronicPain
🦋 By @carriemarshallmsw
POSTS STORIES REELS
📢 My coloring book is on sale now until Friday. 🎉Use MOREBOOKS15 to get 15% off your copy of My Several Worlds: A Coloring Adventure for Spoonies at 🔗 https://www.lulu.com/shop/carrie-kellenberger/my-several-worlds-a-coloring-adventure-for-spoonies/paperback/product-kv9yrz8.html LINK IN STORIES #SpoonieArtist #ColoringBook #ArtTherapy by @myseveralworlds
This is the one and only time in my life that I can ever say that I'll be hosting Saturday Night Live! 🤩 🇨🇦 🇺🇲 Set your clocks for 9pm EST to see me and Fibro May from TFA社團法人台灣纖維肌痛症關懷協會（請確實回答4個問題才會批准入社，謝謝） (Taiwan Fibromyalgia Association) 🇹🇼 TAIWAN: Sunday morning, Dec 3rd at 10am! 🇨🇦 🇺🇲 I'm livestreaming at 10pm EST - Carrie Kellenberger Presents Live, My Several Worlds (I'll be talking about the nitty gritty details about life with #fibromyalgia and I promise to entertain you.) 🇹🇼 TAIWAN: Sunday morning, Dec 3rd at 11am! The direct link to Fibromyalgia Community Conference 2023 is here on FB or on YouTube here: https://www.youtube.com/live/izAFgJwd_z4?feature=shared We also have an On Demand feature, so if you missed the livestream, no worries. The video link will be out soon! #SupportFibro #TeamFibro #FibroNerds #TheNerdsAreHere #LifeWithPain #ChronicIllness #ChronicPain #MySeveralWorlds #KeepOnGoing #Spoonie #Fibromyalgia #MECFS #InvisibleIllness #FibromyalgiaAwareness #ThisIsFibro  #ButYouDontLookSick #disability #arthritis #StillSick #ChronicPainAwareness #DisabilityAwareness #InvisibleDisability #AwarenessMatters #SelfCare #ThisIsPain #ChronicallyFabulous #ChronicTruths #MyChronicLife #SickSelfie by @myseveralworlds
Keeping It Real With Arthritis by Effie Koliopoulos INCLUDING ME! Sadly my author copy has not arrived, but I bought a copy (all proceeds go to @ifaiarthritis which makes me very happy) and my mother in law hand delivered it to me in Taiwan. SWIPE to see Taiwan on the arthritis map! In the spirit of the title of this book, I am keeping things real. I'm having a hard time getting in gear for 2023. I feel sad and tired today. My pain level is high, I couldn't sleep last night; I was at the hospital, & I feel low. I figure there is no better way to kickstart this year than with a book I contributed to in 2022. I'm staying focused on tomorrow for a better day. My friend Jaymi at @theocbookgirl messaged this morning with a new weekly #nonfiction reading challenge called Medicine. (She has uncanny timing.) Here is my submission. Take your meds, arthritis peeps! 💙 I took extra today! I'm practicing gratitude for my #ChronicIllness & Bookstagram community. I'm trying to be mindful of my mood. It's normal for me to struggle with physical problems. The #MentalHealth probs with pain and illness are always there. I just don't talk about here as much. (Still pretty open about this topic though. You can find it on MSW.) Anyway ➡️ THE BOOK! Keeping It Real With Arthritis includes 100+ stories from folks living around the world with arthritis. Read on to learn more about this incredible book and the people who had the courage to share. Have a peak at my review and some of the wonderful quotes from arthritis patients that offer a hope, resilence, and understanding. TELL ME SOMETHING FUN! LINK IN BIO or read it: https://www.myseveralworlds.com/2022/12/16/keeping-it-real-with-arthritis-book-review/ @keepingitrealwitharthritis @risingabovera @imaginewepublishers @carriekellenberger 🏷 #Arthritis #ArthritisAwareness #axSpA #PsA #RheumatoidArthritis #JuvenileArthritis #BooksYouShouldRead #LifeWithPain #ItsNotJustArthritis #ChronicIllness #ChronicPain #Spoonie #Spondylitis #AnkylosingSpondylitis #Fibromyalgia #InvisibleIllness #disability #ChronicPainAwareness #DisabilityAwareness #InvisibleDisability #ThisIsPain #ChronicallyFabulous #ChronicTruths by @myseveralworlds
15 signs your #MentalHealth Is getting bad again *Irritable *Unable to focus *Racing thoughts & mood changes *Endless scrolling *Extreme anxiety *Suicidal thinking *Feeling not good enough or a burden *Easy to anger *Feeling numb *Zoning out *Loss of appetite *Intrusive thoughts *Physical tension in the body and headaches *Inability to cope with daily problems or stress *Crying all the time *Unable to get out of bed *Unable to sleep *Stop cleaning up after yourself *Never-ending to-do list What's a sign for you that your mental health is getting bad again? #MySeveralWorlds #MentalHealthMatters by @myseveralworlds
"Disabled people are more vulnerable to bullying and abuse." Credit Unknown. Stats verified by Stats Canada. #MySeveralWorlds #DisabilityStudies #MedicalGaslighting by @myseveralworlds
After 20+ years living in Taiwan, I came back to Canada and had to rebuild my healthcare from scratch. What I didn’t expect? That the most consistent, real-time support I’d get… would be from a pharmacist. While I wait months for specialists, one local pharmacy in Carleton Place is helping me: ✔️ track down medications ✔️ reduce costs ✔️ communicate with my doctor ✔️ and actually listen This article matters—especially if you’re navigating the system, caring for someone, or feeling stuck in waitlists. 👉 Read it here: https://www.myseveralworlds.com/2026/05/04/carleton-place-pharmacy/ If you’ve ever had a pharmacist step up for you, I’d love to hear your experience. #CanadianHealthcare #Pharmacists #ChronicIllness #HealthcareAccess #PatientAdvocacy #CarletonPlace #OntarioHealthcare #InvisibleIllness #DisabilitySupport #HealthcareSystem by @myseveralworlds
I used to be scared of being in a #wheelchair for the rest of my life. Now I see it gives me freedom on days when my body isn't capable of walking." Today's article explores a list of essential questions about #WheelieLife from readers 🔗 https://www.myseveralworlds.com/2024/10/22/essential-questions-from-new-wheelchair-users/ #Spoonie #ChronicPain #Disability #MobilityAidsAreFreedom by @myseveralworlds
Ramifications of weak connective tissues in the ehlers-danlos syndromes TISSUE WEAKNESS FROM EDS SKIN FRAGILITY Poor wound healing Abnormal scarring Hyperextensible skin UNSTABLE MAST CELLS Flushing Gl issues Anaphylaxis Hives VASCULAR FRAGILITY Blood pooling and POTS Fatigue Easy bruising Arterial aneurysms Autonomic dysfunction FUNCTIONAL GI ISSUES Nausea, vomiting Pain Gastroparesis, dumping syndrome Intestinal dysmotility LIGAMENT LAXITY Pelvic floor dysfunction Joint instability Joint pain, Migraine, muscle pain Frequent injuries, dislocations Tight, inflamed muscles and tendons Joint hypermobility Credit: @izzy.kornblau @hips.dont.kill.my.vibe #MySeveralWorlds #EDS #EhlersDanlosSyndrome #ConnectiveTissueDisease by @myseveralworlds
What happens when a disabled person’s need for physical assistance gets mistaken for dependence? When the floor they can’t mop becomes more visible than the business they’re running. When the groceries they can’t carry matter more than everything they carry that no one can see. This is a deeply personal story, but it’s also about something much bigger: ableism, invisible labour, and the dangerous assumption that needing help means being helpless. And yes, it starts with a mop. The actual fucking mop. 🧹 The Invisible Weight of a Disabled Wife 🔗 https://www.myseveralworlds.com/2026/09/10/the-invisible-weight-of-a-disabled-wife/ #Ableism #MySeveralWorlds #DisabledWomen #InvisibleLabour #DisabilityAdvocacy #DisabilityAndMarriage by @myseveralworlds
Non verbal signs of pain: 😟 Facial expressions 🧍‍♀️Body posture. (Pain patients tend to protect their body by holding their limbs close or move unnaturally in an attempt to protect their body) 😭 Crying and sounds of distress Withdrawal from activity or into silence 🤬 Mood changes - quick to anger, aggression, irritability, and agitation 😕 Confusion 👐 Hand movements can show distress or pain 🥵 Excessive sweating 🔗 MySeveralWorlds.com #PainAwareness #PainCounts #LifeWithPain #CPP #ArthritisAwareness #ArthritisStrong #MySeveralWorlds #SuicideAwareness by @myseveralworlds
It's about time I got one of these! Who would use this? "I need THIS in my life A bean bag "bed" with built in blanket and pillow." Credit Unknown #MySeveralWorlds #SpoonieLife #LifeHacks by @myseveralworlds
Art Therapy with Karen Fitch Coping with #AnkylosingSpondylitis / #axSpA and #Fibromyalgia Through #ArtTherapy 🔗 https://www.myseveralworlds.com/2018/05/01/art-therapy-for-chronic-illness-interview-with-karen-fitch/ The purpose of this series is to express how we use art to express our feelings about being chronically ill. Art can be used in so many different ways. It allows us to show our pain, our emotions, it can be used as a daily visual journal of our day to day life; the possibilities are endless. Today I'd like you to meet my friend and fellow AS and fibro warrior Karen Fitch from Morgan Hill, California. Learn how Karen uses many different forms of art to cope with her chronic life. by @myseveralworlds

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