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Nicola Whitbread-Hastings

@nic_whitbread

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Just the highlights 🎞️
Mum to Rudy & Dex ✨
Medical Mama 🪄
Real life over on @rudysw0rld

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In this episode of Everything Changed, I am joined by my friend Nicola, who bravely shares the reality of raising her son, Rudy, who lives with MCAHS1, an extremely rare genetic condition that causes epilepsy, visual impairment, and profound physical disability.

In this episode we discuss:

• The COVID diagnosis
Navigating the terrifying first weeks of lockdown while realising something was wrong.

• The genetic ‘spelling mistake’
Finding out both she and her husband carried the same rare gene.

• Survival instinct
Why she had to emotionally detach from her second pregnancy to survive the weight of a potential second diagnosis.

• Milestones vs inchstones
The beautiful, small victories that mean everything.

The full episode is available to listen to now, on Spotify, Apple Podcast (link in bio)

✨ Thank you @revitalashuk for sponsoring @everythingchangedpodcast. Use the code ROSIE20 for 20% off at www.revitalash.co.uk

#raregeneticdisorders #mcahs1 #epilespy #motherhood #resilience by @nic_whitbread

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9 months ago

When Rudy met Dex ♾️

Rudy spent a couple of nights at Haven House @havenhousech whilst we brought Dexter home from hospital.

Rudy is getting used to the sounds and smells, and general energy in the house with the newest addition 😍 We are placing them close whenever we can despite their busy and different schedules 😅Look out for the stolen kiss… 🥹

#Brothers #FirstMeeting #VisualImpairment #BoyMum #BabyReels #RainbowBaby #Grateful #SENMum #IVF #PGT by @nic_whitbread

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2 years ago

3 M O N T H S •

Three months as a mum of two, three months of so many firsts. Learning we don’t need to rush to hold you up each time you are a little bit sick. To handle you with such ease! To not hold my breath each time you wake up in case of seizures. Three months of marvelling at the things you can do! The way you watch us cross a room, the way you sleep so easily and peacefully. The way you look at us like you have been here before. The way you can SEE your brother, to reach out, and the way he’s starting to turn to you already. So grateful to experience all these things and so excited to watch you both flourish, together. Rudy and Dex you are the best 🤍🤍

#ThreeMonths #3monthsPostPartum #SENDMum #SuperRare #RareGenetics #RudysWorld #Brothers #MumofBoys #RudyAndDex #BoyMum #ProudMama taken in Sóller, Mallorca, Balaeric Islands, Spain by @nic_whitbread

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2 years ago

Six months of farm life 🌾

The best decision! Everyone is happier. Bigger skies, slower mornings, time outdoors, peace! My nervous system says thank you 🙏🏼✨

#CountryLife #FarmLife #exhale #TheLittleBigThings taken in Hertfordshire by @nic_whitbread

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19 hours ago

Saying goodbye to an incredible summer 💫

💫2026 by @nic_whitbread

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9 days ago

8 years strong @harry_hastings
So proud of us. Love you more and more 🤍
Almost time to start planning the TEN! 🤩🥳 xxxx taken in Deià, Mallorca, Illes Balears by @nic_whitbread

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13 days ago

✨HAPPY 40th BIRTHDAY ✨ to my little brother! ✨How are we here?! 🥹 Life hasn’t always been straight-forward - at times it’s knocked us sideways 🌪️ But I’m so proud of you and everything you have built, the way you have carried yourself, and the beautiful family and life that you have created. I hope you woke up today with a full heart, and ready for another 40 years of memories, magic and madness 🤪🥳🕺🏽😘 #HappyBirthday #JOE40 by @nic_whitbread

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16 days ago

25 years in the same girl band 🪩✨

Missed you @mrsdemosthenous xxx by @nic_whitbread

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16 days ago

Beautiful day for an impromptu Birthday gathering! ☀️💖💌💠🤩💗💎🎂🍹🍕🦋🎈✨

Thank you for all the bday wishes, messages and treats. Feeling very loved and a lucky gyal xxx @tewinburyfarmhotel taken in Tewin Bury Farm by @nic_whitbread

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a month ago

Go get em Rudy! First ever “first day of term” and look how happy he was 🥰 So proud of you xxxx taken in Hertfordshire by @nic_whitbread

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a month ago

What a party 🤩💫

Thank you Joe & Zoe for an incredible gathering 🥳 So many people there for a really good time and to celebrate you!

Fair to say we made the most of our first child-free Ibiza trip in 8 years 🪩💃🏼🕺🏻😵‍💫😝

#IBIZA #JOE40 taken in Ibiza♥ by @nic_whitbread

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a month ago

Norfolk 🌤️🐶⛱️🍦 taken in Norfolk, UK by @nic_whitbread

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a month ago